Daniel Moore
@Talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Here's my new song on the tension filled subject of #MECFS and hope. I'm honoured to include spoken word by @jayletay. They talk of hope... youtu.be/UW1gPX0LVfU

Hopefully of interest to counsellors who specialise in working with #chronicillness and to anyone with a chronic illness like #MyalgicEncephalomyelitis (aka #MECFS) and #LongCovid who's considering #counselling. #therapy #therapistsconnect #MentalHealth #MentalHealthMatters #bacp
🧵 Just going out to subscribers to the Chronic Living Therapy newsletter - a round up of developments including an insights and reflections from @Dan_Wyke - thanks for being our first interviewee Dan! chroniclivingtherapy.com/dan-wyke-inter…
I open twitter for the first time in ages. Why is every advert some scam picture of Stephen Barselett?
“Tories would be worse” translated… “I’ll accept them killing some disabled people because it could be worse”. Actually… I won’t accept ANY. Labour are the ones in Government. Labour are the ones killing disabled people. So if you fail to call this out, you’re complicit
a couple of people have asked me this in the comments so: the lowest amount of PIP someone can be awarded (above £0) is £28.70 a week, which is £114.80 a month, so remember that when the media tries to whip everyone into hysteria over this benefit. it is often a pittance
All Labour MPs have reportedly been called in to Downing Street for talks with Starmer about the expected disability benefits cuts. If you have a Labour MP, this is the time to email them. Tell them your objections. Tell them your experience.
Announcing a new project - a directory of counsellors and therapists who understand the 'biomedical nature' of #MECFS #LongCovid and other similar conditions - and want to help you cope (not 'talk you out of it'). chroniclivingtherapy.com Subscribe to email newsletter!
#FundThePlan launching now 👇
🎥 Today we’re launching our #FundThePlan campaign! With over a month until the delivery plan is finalised, ministers can still reconsider the resources behind it. We want to show them why it is important to #FundThePlan. Share a video on social media using our template ⬇️
I appreciate you sharing this. But tbh I feel pretty uncomfortable as a bedbound person with this being shared from a charity who’s chairman thinks I could just get up and make a cup of tea if I really wanted to 🙃. Also if you could tag me to credit I would appreciate that
No one who hasn't experienced chronic illness will understand the devastating grief of letting go of another day of your life. When you try to be active whatever that means for you and you realize you just can't do it today, that you have to let the day go and hope for tomorrow.
We support this strong message on @cochranecollab failure to address critical issues in its review of exercise therapy for #MECFS.
Despite years of work & input from the IAG & new author group, @cochranecollab fails to address critical issues in its review of exercise therapy for #MECFS. Cochrane has not followed its stated processes & principles. The IAG has a message for Cochrane. meaction.net/2025/01/24/coc…
🧵 1) Dear @RachelReevesMP Hello, I'm Tim. You don't know me, so I wanted to talk to you about me & my world. It's a world of #MS #epilepsy, & #disability Can I start with symptoms? - Unable to walk. - Co-ordination problems. - Seizures, major & minor. - Depersonalisation.
This honestly could not look more like a Nazi salute
A man freezing his hair and really enjoying it.
I just love how happy such a simple thing makes him! 😊😊😊
Had to check this myself as I didn't believe the tweet. Wow.
I had to triple check this was real. It is. The Australian Open on YouTube, due to rights issues, are getting around them by replacing real players with Nintendo Wii Sports Tennis characters. I think I love this.
Most people are children in adult bodies. Emotional immaturity is a silent epidemic. How to know if someone is emotionally mature:
There are better organisations to support. Ones with Chairmen that don’t ridicule pwME for not moving enough. Ones that don’t threaten to sue members and fundraisers for asking why money is being paid to trustees. Ones that don’t sit on £3million for years instead of spending it.
Become a member of the ME Association. Full Membership is available to all adults with ME/CFS, carers, and anyone with an interest in the disease. Annual UK membership costs £18. More information here: meassociation.org.uk/8cjm Join the MEA: meassociation.org.uk/nmrs #pwME #MECFS…
My uncle was really interested in my ME and how it affects me recently. These conversations are so rare. He asked me what I do with my time. I realised that it was difficult to put into words what resting means. How do you explain the process of doing absolutely nothing?!
Plot thickens....
1⃣ Email to Neil Riley, Chairman, Board of Trustees, ME Association; Dr Charles Shepherd, Trustee/ Director, Board of Trustees, 3 January 2025