#MEAction Network

BREAKING NEWS: #MEAction has just received a $25,000 fundraising match opportunity! Every donation will be doubled! meaction.net/donate We are working hard to support and fight for this community on multiple fronts, but we CANNOT do this work without your financial support.

Listen below to Dr Charles Shepherd (@MEAssociation) and Janet Sylvester (@meactionscot) talking about the DHSC Delivery Plan on Radio Scotland this morning #MyalgicE #DeliveryPlan #DepartmentOfHealthAndSocialCare #MyalgicEncephalomyelitis

Today (July 24th) is the final day to submit art for the Severe ME Artists Project! meaction.net/2025/07/10/sev… We are here to help! Just email [email protected]. As always, we are holding space for those unable to practice their art or even possibly access art. #pwME

We are educating clinicians and the public about ME! Scientific Director, Jaime Seltzer, is preparing a presentation at upcoming IACFS/ME conference, recently presented for ME/CFS San Diego, & advised SciShow about ME. Further science updates: meaction.net/2025/07/22/mea… #pwME

We have a great MEpedia update for you! - Our articles have been viewed 55+ million times! - We recently created German & Spanish versions of our TEN most popular pages. Check it out: me-pedia.org #pwME #MECFS #wiki #myalgicE #longCovid

We have lots of science updates for you! We are excited about these promising updates regarding the scientific work #MEAction is leading to advance the field of ME/CFS research and we hope you will be too! meaction.net/2025/07/22/mea… #pwME #MyalgicE #MECFS #LongCovid

The Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): the final delivery plan has been published. We are still working through the publication & our response as we were not given an advance copy of the plan or publication. ow.ly/s6Wc50WtvZB

REMINDER! Tomorrow is the deadline to submit your art for the Severe ME Artists Project - Thursday, July 24th. Details here: meaction.net/2025/07/10/sev… If you need help submitting your piece, you can email us at [email protected]. #SevereME #pwME #MyalgicE #MECFS

My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance

#MEAction has announced the 2025 Severe ME Artists Initiative, celebrating artistic talents for #SevereMEDay on Aug 8th. People with Severe ME are invited to showcase their creativity through literature, photography, illustration, and more. buff.ly/lI797rW

Four Days Left to Submit Art for Severe ME Artists Project– deadline is July 24th! Details: meaction.net/2025/07/10/sev… We have had a wonderful response so far and can’t wait to see what comes in during these next few days! #SevereME #SevereMEDay #pwME #art

#MEAction’s vision is a world where #pwME are believed, supported by systems that work & have access to effective medical treatments. We are asking you to donate today while we have a generous match! Do TWICE THE GOOD when your donation is doubled! meaction.net/donate

We have been asked to share the following update about Karen Gordon. Karen's father asks you all to, 'Please keep sharing this petition and telling people about Karen’s situation.' ow.ly/HBTP50Wr48F #MyalgicEncephalomyelitis #VerySevereME #pwME

Our stories have power! Social media impact campaigns create change! That is why #MEAction has decided to join forces with We Belong: Everywhere & Space Dream Productions to ask you to help create videos for a social media impact campaign. Sign up: forms.gle/eh4n8haScqLhDf…

⁉️📣 Calling those with #LongCOVID, #MECFS, or #POTS who have tried Guanfacine — how did your symptoms change overall? If you experienced improvements or worsening, let us know which symptoms changed for you in the comments. Please share 🙏 @patientled @ahandvanish…

We have some positive news to share! The Second Annual RECOVER-TLC Workshop has been scheduled for September 9- 10, 2025. More info coming: fnih.org/our-programs/r… #pwME #NIH #MECFS #MylagicEncephalomyelitis #longCovid

It's almost that time of year again! Our Severe ME Artists Project is coming up! Can you believe it will be the 5th one?!? Deadline to submit is July 24th! Details and submission link: meaction.net/2025/07/10/sev… If you need help, email us at [email protected].

We are excited to bring a new project to you in time for #DisabilityPrideMonth! #MEAction is joining We Belong: Everywhere & Space Dream Productions to ask you to help create videos for a new social media impact campaign. Sign up: forms.gle/eh4n8haScqLhDf… #pwME #MECFS