Whitney Dafoe

✏️ My ME/CFS Blog: whitneydafoe.com/mecfs ❓What is ME/CFS? whitneydafoe.com/mecfs/whatisme… 👤 My Story: whitneydafoe.com/mecfs/mystory 📄 ME/CFS Resources: whitneydafoe.com/mecfs/resource… 🙏 Donate to ME/CFS Research: whitneydafoe.com/donate ⤵️ Useful Document Downloads whitneydafoe.com/mecfs/download… 🖼️ My…

The misinformation about disability benefits over the years has been very effective. Studies showed that the public VASTLY overestimate how much money disabled people receive and how "easy" it is to get them so they don't think it's an issue.

Chronically ill people with fluctuating and/or progressive illness have to reinvent themselves all the time. And yet there are people who think we don't get better because we can't let go of an illness identity?? Lol we're experts at reshaping our identity. #ChronicIllness

Too Many Of Us Are Dying I see people protesting the rights of many marginalized groups and important issues. I see people up in arms over injustices faced by people all around the world…BUT WE ARE DYING. Not to mention suffering endlessly from symptoms that are often only…

If you've spent years minimizing ME, lying to vulnerable people about the "ME Mafia" stealing your research funds, and calling ME patients "whiny" when they post about their profound suffering, you should keep the names of dead ME patients out of your filthy snake mouths

Dr. Bhattacharya, there are millions who suffer with #MECFS, including @DafoeWhitney, son of one of your Stanford colleagues, Ron Davis, PhD. This patient population has been neglected and disregarded for decades. You're in a position to help give us our lives back. Please. 🙏🆘

It seems we never even had the chance to pick up the phone for Bridget. I'm so sorry. This world let you down in the most profound way possible. 💙 We will all miss you and we will never forget you. 💙💙💙

The one thing that’s making me madder than anything else around disabled people’s fight to stop welfare cuts is that it’s only us fighting. We see allies standing loudly for trans rights and Palestine (as they should) but where are they in our fight? Why don’t we matter as much?

A reminder of what the global research output on #MECFS looks like, when compared to other diseases 😳 In the US at least, each of these other diseases now has a lower burden (measured in DALYs) than ME/CFS - and yet ME is barely off the floor. #MECFS #LongCovid

TW death Imagine posting this because of how sick you are and getting no support and then dying within the week 💔 It is so upsetting how ingrained into every fiber of our society it is to not believe women when they are sick. Especially if they have an IACC. Bridget 💙

I just found out that @Bridget_OShea has passed. She was always kind to me. In a space that can feel isolating and brutal, her presence felt like a soft place to land. I’m heartbroken. She deserved so much better. So much more care, more support, more everything. Rest easy,…

Just because someone passes away due to another medical issue, does not mean myalgic encephalomyelitis didn’t play a role. In the very least, many people stop seeking medical care due to the stigma and abuse from healthcare surrounding the disease

The universe is always changing. Everything can change in a moment. You never know what will happen in the future. Never stop fighting. I'm fighting with you. If you feel like giving up, give it to me. I will carry it for you. - Whitney Dafoe #MECFS #SevereME #pwME 💙🙏🏻💙🫂💙

ME is five times more prevalent now than before the ongoing SARS-CoV-2 pandemic due to Long Covid. batemanhornecenter.org/covid-19-trigg… @DafoeWhitney on "What Is ME/CFS?" 👇 whitneydafoe.com/mecfs/whatisme…

This is a dynamic condition, and the approach should be dynamic too. There were times my daughter needed cromolyn sodium three times a day or she couldn’t eat anything. Now she doesn’t take it anymore. There were times she had to use valacyclovir 3000 mg a day to control her…