ChronicLivingTherapy
@ChronicLiving1
Directory of counsellors and therapists who understand the biomedical nature of ME/CFS, Long Covid, Fibromyalgia and other similar chronic illnesses.
Here's a round up of many interesting and useful links from May 2025 on chronic illness in general, focusing on the emotional fall out of being ill (as befits a therapy website). chroniclivingtherapy.com/2-elsewhere-on…
Especially after yesterday, a MASSIVE shoutout to @ABrokenBattery for capturing so many of these moments! 🙏 Total public service to the ME community and we’re very, very grateful.
We’ve been working to change narratives around ME and Long Covid. Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories
This will happen again and again until the NHS & medical institutions learn about #MECFS #LongCovid and other energy limiting conditions. In 2022, a CAMHS psychologist told me I was causing Anna's illness by my own "anxiety". That's quite a powerful weapon I apparently wield!
Clip Sarah Boothby on todays BBC Breakfast segment on the UK government's new #MECFS Delivery Plan “I was accused of fabricating Maeve’s symptoms right up to the point in which she died. Two days before she died, we were subject to safeguarding investigations.”
Don’t blame yourself. There’s only so much we can do to manage this illness. And don’t lose hope. There are medications that can help improve function. Severity can fluctuate over time. Hang in there.
This is big. MoD acknowledges that blast waves cause TBI. Also, first time I've heard a neurologist use the term "functional" in the correct context. *Dys*function = cellular / molecular damage. itv.com/news/2025-07-2…
How many more decades? How many more deaths or people seriously harmed? How many more people will be denied health care and disability income? Too many! Thanks David!
Words fail at the astonishing arrogance and shear nastiness of not engaging with Sarah Boothby to correct falsehoods. To 'carry on regardless' in their approach to misinformation about ME. Doctors need science and accuracy, not propaganda @bmj_latest
The BMJ @bmj_latest has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…
What is striking in the release of The ME Delivery Plan, is the strategic silence of @wesstreeting - no comment - no mention - no press - not even a tweet or RT Yet, it's under his watch, this echo in the void tells us much about the NHS's priority for ME.
#ME isn’t a mental illness. It’s a neuro-immune illness. Psychiatrists have a role to play here - making sure that ME patients don’t get accepted under #Psychiatry. #MedEd
Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."
1 year of @ThereForME_UK ! Still count my lucky stars that Karen + Emma invited me to join the team. So proud of what we’ve achieved. Huge thanks to everyone who’s supported us -letters, interviews, surveys, shares. Our power is collective - we couldn’t have done it without you
Today we’re celebrating a year to the day since @KarenLHargrave & @GoreLloyd launched #ThereForME! We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far.
As a psychologist and carer of a young adult with very severe ME, I'm increasingly horrified by the pseudopsychological nonsense that permeates collective narratives, obstructs treatment & care, impacting patient safety, & erodes the confidence of patients & carers. Enough!
After 3+ years of waiting the Final Delivery Plan for ME is being released today. Our comment 👇
My conclusion so far - they correctly identified the feedback themes on lack of research, training and service provisions and then decided not to do anything they were told was required. This is a plan to plan at best, it lacks little of substantive change.
Delighted that the Final Delivery Plan on ME is finally available 👇🏽 Now to look at the detail… gov.uk/government/pub…
Some of the press have focused on NHS staff being trained on ME/CFS. This is not accurate. The delivery plan is only going to promote its optional (bad) eLearnings. There is no training plan to produce specialists or even have the NHS staff broadly aware of ME/CFS at all.
I've started reading the delivery plan and I'm irritated. It uses 'feel' - how we feel we've been treated etc. No - how we have actually been treated. Facts not feels #pwME
Dr Alexis Gilbert has outlined what the Final Delivery Plan for ME/CFS *should* have looked like (on IG): instagram.com/p/DMa8sjPMzd2/
Advocate extraordinaire @tessamunt stands up in parliament just now demanding to know why the Delivery Plan has not been made public. @AshleyDalton_MP seemingly unaware - clear this is not how it should be and says she will take up with officials.
“I honestly just did not realise that it was possible, in the UK in 2025, to be as sick as my husband is & for there to be basically no specialist NHS services to provide any kind of support” Our co-founder @KarenLHargrave on Radio 4 WATO 👇 (Recording via @ABrokenBattery)
My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance
Thanks for posting this. Excellent from Karen. Where r the services that cater for the severely/very severely affected? Leeds? I've had patients decline psychosocial based therapy! What lever will elict more funding for ME services if there are no effective treatments? 🤔
3 years for a #MECFS plan seemingly lacking any plan. Optional e-learning modules to train untrained clinicians. A promise to boost research with a closed cheque book. #pwME have been let down again. @wesstreeting @AshleyDalton_MP is this really the best you can do? #FundThePlan
We're improving care for people living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). This includes new training for NHS staff to help tackle the stigma of the condition. ME/CFS patients will also get care closer to home through our 10 Year Health Plan.