👻ghost of submersibles ablaze🌊
@MECFScomrade
she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
Oh yeah, super easy to find decent carers let alone be able to afford them
At that point why not get a caretaker to do your grocery shopping and cooking?
I’m fucking JUMPING FOR JOY because I have a chance to not get the mono that has left me bedbound with an incurable illness
You suddenly wake up from a Saturday afternoon nap in 1998 to find it was all a dream--what you doing first?
The number of "leftists" "socialists" "communists" I've encountered who are utterly convinced that any disabled person can get assigned a caregiver if they need one and if they don't have one then they're just not trying
I mean what’s wrong with just getting Taco Bell all the time? I’m fully bedbound, I can’t cook, and have too many food intolerances to eat microwave meals, even if they weren’t disgusting. Restaurant deliveries are essential for me
I feel like a lot of people don't realize that you can order from grocery stores on apps like DoorDash, Grubhub, etc. That's the "essential" function I think people are talking about, not just having constant access to Taco Bell or something.
⚠️ There's another #pwME in a vulnerable situation in a UK hospital. Savannah is being neglected, not receiving appropriate pain management and essential care. Please sign the petition and share. #GreatestMEdicalScandal #MillionsMissing
CN: ME abuse Support a Black individual in the UK who is being neglected in hospital. Sign below (I think it's UK only but PLEASE share) chng.it/4jgTSmrpMv
Going to sleep with heartburn and waking up with the same heartburn is sickening
Someone died in our community and instead of grief, some of you are picking apart how. Your first instinct was to play coroner, not friend. “ME doesn’t kill.” “It was a heart attack, not ME.” “Probably COVID.” Are you serious? You sound like the people we’ve all spent years…
This is a temporary phone I am currently using so I can contact with u and hopefully with ur support I can get a new one. This is my family only life line.please support my family, share and contribut. Thanks for ur generous support. gofund.me/adcfb093
My friend Adam is stuck in a moldy house, with abusive MAGA parents. He is deteriorating by the day in this environment, and his car is also full of mold. If you can spare anything to help him get out of there, pls click the link below for his gofundme 💜 gofundme.com/f/DisabledButS…

It’s Wednesday and we knead pain management I’m still having massive pain from my back as well as stomach issues that are exacerbating my pain and inflammation so we knead this covered Last donoz were 5, 10, 20, 30 if ne1 can match 65/300
Starting NAD+ injections. Will let you all know whether it helps or not
Tell me you have ME/CFS without saying you have ME/CFS. I’ll go first. I tried to play the Sims today but quit after a couple minutes because it was too tiring designing the characters.
Alexandra is seriously ill and needs urgent help. She's been unable to leave her room for years. Please consider donating to support her travel and surgery. Every bit counts. Share! gofund.me/402d7ff8
More from @Bridget_OShea, who died last week, on Substack in 2023. I wish, so much, that those who hamper real research and education about #ME would acknowledge that they are responsible for an ever growing list of deaths from the illness.
I have #SevereMECFS. I can no longer speak. I am bedridden. Today it is 5 years 8 months since I was outside. (2069 days) #MECFS needs a biomarker in order to get a FDA approved treatment. Please donate to BioQuest. #philanthropy #socialgood omf.ngo/me-cfs-new-bio…
My orange would murder me for way less
So, oranges can be fixed by grandpas. Okay, noted.
You clearly don’t have ME/CFS
I like how deodorant brands say “72-hour odor protection!” like we’re going to not shower for three days to test that claim.
She's wondering if you've donated to or shared any crowd funds lately
i’ve decided to raise funds to seek private healthcare as the only public option for ME/CFS care has a 3 year waitlist, and i won’t make it that long. anything helps, you’ll be giving me a chance at getting my life back 💗 $33/3500 ✨ pls sh@re ✨ gofundme.com/f/help-star-ac…