plague rat 🐀
@x3r0gx4
"The FDA’s new voucher program may appear to be progress, but in reality, it speeds up a few applications while everyone else waits in the slow lane." cato.org/blog/who-deser…
After many requests, we are now accepting donations @amaticahealth Donations will be put towards: - Sample acquisition for patients taking drugs of interest. - R&D for new projects (Covid persistence) And more amaticahealth.com/donate/ Thank you to everyone who donates!
Words of @KarenLHargrave are so true. Over the past 3 years I've met & photographed many #pwME trapped in bedrooms, desperate for appropriate care. Info on exhibition and book tinyurl.com/58khuv8z #MECFS #DocumentaryPhotography #InvisibleIllness #ChronicIllnessAwareness
Thank you @KarenLHargrave of #ThereForME for commenting so strongly on the DHSC Plan for #ME published in The Times today.
looks like joe rogan
This chimp has alopecia revealing just how insanely muscular they actually are..!!
Are we ready for SMC backlash on the Delivery Plan news? It's coming... All the usual players, my bingo card: Carson, Sharpe, Crawley & PG. Perhaps Gerada as GPs involved. #Pwme This is when the main Charities should be already prepared with responses.
Help us restore a 2.5 acre #Carolinian #woodland #Whitby #Durham #Ontario #fundraiser #environment #forests #climatechange gofund.me/7967c69e
Last time i taught medical ethics students agreed that people in prison shouldn't receive medical care and we should just let them die, alternatively, we could harvest their organs or use them for medical experiments
the concept of taking a medical ethics course in a room full of people who don't mask
The main danger in the ME/CFS delivery plan of something getting worse is the local healthcare support model. This will mean a nurse with 30 minutes eLearning being the only contact and a loss of referrals to specialists in hospitals. It could be a strategy to deny care.
The NIHR/MRC only funded psychosomatic and exercise based studies all the way from the late 1990s to 2021. All the doctors were threatened for treating patients and ultimately left the NHS and went private, some lost their licenses to practice when they treated patients.
Someone correct me if I'm wrong, but it seems the ME delivery plan actually leaves UK ME patients worse off: - no serious investments in research funding - no serious improvements in clinical care - promotion of an optional e-learning module that minimizes & psychologizes
9) The report acknowledges the poor funding of ME/CFS research and low number of applications but the measures it announces are rather disappointing. Stakeholders asked for ring-fenced funding for ME/CFS research, but the plan refused, saying it is not usual practice.
8) The report also notes that ME/CFS has been a priority area at the MRC for a number of years, through maintenance of a research priority notice. It seems, however, that this has been up since 2003 and has not been very effective.
4) Unfortunately, there is no new funding for fundamental biomedical research on ME/CFS and its underlying pathologies. When we know so little about the illness, evaluating the cost-effectiveness of existing healthcare models should probably not be the main priority.
Today is not a victory. The @DHSCgovuk have, through their own inactions over decades, placed #myalgicencephalomyelitis patients up the creek without a paddle. The plan is a PR exercise. New ways of campaigning will have to be considered.
What is striking in the release of The ME Delivery Plan, is the strategic silence of @wesstreeting - no comment - no mention - no press - not even a tweet or RT Yet, it's under his watch, this echo in the void tells us much about the NHS's priority for ME.
Sean O’Neill on Times Radio talking about the new government delivery plan for ME/CFS “I’ve never seen a plan that lacks detailed quite such as this. I think it you couldn’t really call it a plan at all, it’s a kind of wish list.” youtu.be/wu21bQ6GEg4?si…
Looks like Trump is trying to back-door the state AI regulatory ban that was rejected in the Senate 99-1. From today's release of the AI "action plan":
@martinruecker schreibt im Newsletter, dass die Stellungnahme eine Positition des aktuellen DGN Vorstands sei. In diesem sind u.A. Dr. Christiana Franke (Referentin ME/CFS Conference 2025, Leiterin der PoCoVit Studie der NKSG+ Versorgung der Schwerstbetroffenen in PAIS Care) und
Alarming neglect of another hospitalised young woman with severe #MyalgicEncephalomyelitis. Please read, sign and share. 🙏 #MECFS #C4News @Channel4News #r4today @BBCr4today @BBCBreaking
My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance