Ror Preston
@RorPreston
Founder @wecrunchme | Data-informed advocacy to accelerate research on infection-associated chronic conditions (IACCs) 💙 | #MECFS #LongCovid
It is my birthday this week 🥳🎈 And I'm a running my bday fundraiser for @wecrunchme! If you appreciate our work *and* have the means, please consider chipping in a digital 🍺 If unable, retweets are v gratefully received too! TYSM, link below #MECFS #LongCovid

It is my birthday this week 🥳🎈 And I'm a running my bday fundraiser for @wecrunchme! If you appreciate our work *and* have the means, please consider chipping in a digital 🍺 If unable, retweets are v gratefully received too! TYSM, link below #MECFS #LongCovid
Update on my birthday fundraiser for @wecrunchme 🎈 We are *very* close to hitting our primary target of £1,000 - thank you so much to everyone who has donated so far 💙 Can you help us get over the £1k line...? (Link below) #MECFS #LongCovid #Philanthropy
@BBCNewsnight @BBCr4today @BBCPM @LBC
A reminder of what the global research output on #MECFS looks like, when compared to other diseases 😳 In the US at least, each of these other diseases now has a lower burden (measured in DALYs) than ME/CFS - and yet ME is barely off the floor. #MECFS #LongCovid
This appalling situation is the same here in Australia. When will you implement Rec 8 of the long COVID Parliamentary inquiry to ⬆️⬆️⬆️ funding for #mecfs biomedical research & practitioner education @Mark_Butler_MP?? @Mon4Kooyong @Hayley_Gleeson @jasemurphy @CroakeyNews @RACGP
A reminder of what the global research output on #MECFS looks like, when compared to other diseases 😳 In the US at least, each of these other diseases now has a lower burden (measured in DALYs) than ME/CFS - and yet ME is barely off the floor. #MECFS #LongCovid
Excited to announce that our team received a @ZonMw grant to study mast cells in Post-Exertional Malaise in Long COVID & ME/CFS. We focus on the interaction between immune cells & muscle @VU_FGB @AMSmovement @TeamDerave amsterdamumc.org/en/research/in…
A reminder of what the global research output on #MECFS looks like, when compared to other diseases 😳 In the US at least, each of these other diseases now has a lower burden (measured in DALYs) than ME/CFS - and yet ME is barely off the floor. #MECFS #LongCovid
I've been so impressed with @MichaelPelusoMD and the team at @UCSF in moving us towards a more systematic approach to #longcovid and ME/CFS healthrising.org/blog/2025/07/1…