Katiana.
@katiamek
26. Former greek Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Hello everyone, it’s not easy for me to share this, but I wanted to be open about the challenges I’m facing. This is a cry for help. More info below. gogetfunding.com/support-katian… #mecfs #longcovid #longcovidgreece
I can’t do this any longer. Not one person in my life really understands how it feels like to be literally in pain 24/7 even if you look decent or if you’re able to do something „fun“ for a while. And then they complain why I’ve changed #mecfs #longcovid #pots
I have 10 days before August rent is due, I need 832.33£ or $1,131.18 This is an emergency, so few people have donated recently, I’m at risk of homelessness, I could not survive that Please boost/engage! 🚨 Rent PayPal: paypal.com/paypalme/SaveL… GFM: gofundme.com/f/save-nevra
July update here! Please RT, QT, comment for engagement Been such a hard month, I need to move into safer housing but am so sick now from mould and water damage So grateful for your help ❤️🩹 💜 Rent PayPal: paypal.com/paypalme/SaveL… ❤️ GoFundMe: gofundme.com/f/save-nevra 🧵 1/3
“Do you really think you know more about your condition than an actual doctor?” Yes, actually, and that’s a problem. I’m not saying I’m a genius. I’m saying that there are things that they do not know enough about yet still act like they know everything. It leads to negligence.
This is devastating. @Bridget_OShea’s last experience was not being believed and being dismissed by her own mother just before she died. It’s what this community goes through over and over. I hate this world
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
New: the hundreds of parents being investigated for child abuse when they seek help or diagnosis for their sick children thetimes.com/article/720f66…
An article in @thetimes today by @emilydugan highlights the challenges families can face when complex health conditions are poorly understood. ‘We demand help for our sick children. We were accused of abuse’ thetimes.com/life-style/par… #FII
New: the hundreds of parents being investigated for child abuse when they seek help or diagnosis for their sick children thetimes.com/article/720f66…
My CCI neurological symptoms are getting really severe. I have more and more episodes like stroke and intense neurological seizure like episodes. My crashes are so much worse. I’m in an endless crash living here. I need assessment and care. 😔 #mecfs #pwme
Listen! Isla is gone. She is in heaven now. She was not believed and was placed under a Child “Protection” Plan for 9 months, carrying the distress of seeing her own caring family falsely accused. She is not the only case, and she will not be the last. To those who caused this,…
Refusal to acknowledge Isla's symptoms, refusal to provide home tuition. Accusations of prefabricated illness (couldn't even get the term right), 9 months of Isla being on a Child Protection plan, 0 support, 0 compassion and hardly any learning.
🖤 Warum versagen wir so? Morgen, Dienstag 15. Juli, eine Woche nach @sarah_buckel, wird auch Denise Burgy (50, 🇳🇱) ihr Leben durch assistierten Suizid beenden. Wegen schwerem #MECFS. Wegen fehlender Therapie, medizin. Versorgung und Forschung.
No, not all Long COVID is ME but nothing about ME minimises Long COVID—it’s one of the worst outcomes of a COVID infection. If you’re reading this and you’re worried it is, maybe you should advocate for ME more so it stops being minimised by people attached to outdated evil.
Thinking of Denise, who will end her life at 10.30 am today, as her ME/cfs has been unbearable for a long time.🕯️ Earlier, more and better research could have saved her life - like that of so many others. I hope a better life is waiting on the other side for them.
People don’t fake disability, they fake being well. They aren’t stealing your tax dollars, they’re forced into legislated poverty. They’re not the reason you can’t get ahead. Denying them healthcare or social supports won’t better your life. Almost everyone ends up disabled
Heard my mother today comparing me to a 27 year old daughter of another couple who married : “she has her job, she’s marrying now. Not like her (me, her daughter) who chose to destroy her life”. This is how my parents talk while I’m suffering by something I didn’t choose. #mecfs
How does a debilitating neurological symptom become a target for mockery? Internal tremor, a brainstem-related symptom, ends up being joked about and used for trolling. It’s not limited to vax injury. It can happen in Long COVID, MS, Parkinsonism, and more.
Internal tremors are a very distressing symptom many of my vaccine-injured patients are experiencing. But instead of constantly trolling me Dr Stone, why don’t we discuss publicly on a podcast?
Δεν υπάρχει ενδιαφέρον για τον αδύναμο, για τις μειονότητες, για την εργατική τάξη χωρίς ενδιαφέρον για την υγεία τους. Και ενδιαφέρον για την υγεία τους δεν υπάρχει χωρίς προστασία απέναντι στην Covid-19, δηλαδή χρήση μάσκας, φίλτρων HEPA και τεστ.
Different patients have different manifestations under the term #LongCovid. It's unlikely to be one singular entity. Causes of the severe chronic inflammation include viral persistence, autoimmunity, immune dysfunction, and microbiome dysbiosis. Al-Aly MD👇
It happened! A few days ago they took me outside in bed so I could see the sky, and breathe the air, and see the plants. Have been asleep almost non stop and struggling since (plus two tube replacements and two cannula replacements) but it was the absolute best for my soul.