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@BerlinBuyers
covid destroyed us, we are young, we want our lives back / DMs not checked here. Please contact via our website.
How long will people with Long COVID (& ME/CFS!!) have to wait until this public health emergency is taken seriously? #LongCovidAwareness2025 #5YearsLongCOVID #HalfADecadeOfNeglect
Tw death Bridget has passed from #MECFS. Her own mother has hung up the phone after she called her and said she was afraid she might die. I am heartbroken and angry. This whole system tears patients down, and even relatives don't care.
Sehr fraglich dass über nur 15 Mio. € Forschungsgelder für #MECFS gestritten wird, aber dann solche immensen Summen für Belanglosigkeiten ausgegeben werden. Das sage ich als ehemalige Gamerin, die wegen voranschreitendem M.E nicht mehr zocken kann.
Level up für Games in Deutschland! 🍄🏃♂️ Das #BMFTR gibt der Innovationsbranche #Games in Deutschland einen Push! Wir schaffen zum Beispiel ein eigenes Referat (aka ein Arbeitsteam allein für Games). Außerdem erhöhen und verbessern wir die Förderung! @DoroBaer
Last chance to share your opinion/vote here for potential Zimi Mask x BBC samples now :) docs.google.com/forms/d/e/1FAI…
Wow, who wouldn’t love to see a collaboration between @zhouliang_mask and @BerlinBuyers ?! @coffeeteanxiety @lgoshen @FrauXausNRW Check the designs you‘d love to wear and they‘ll consider creating some samples!👇 docs.google.com/forms/d/e/1FAI…
Die neue Stellungnahme der DGN zu ME/CFS ignoriert leider aktuelle wissenschaftliche Fortschritte zu den immunologischen Mechanismen postinfektiöser ME/CFS. Stattdessen propagiert sie überholte Konzepte – und legitimiert damit auch weiterhin unwirksame und schädigende Therapien.…
Starting today, four new Zimi ONE limited edition color mask filters are available for sale. The first to go on sale is the M size, and the XXS and S size filters will be available this week. The L and XL size filters will be available next week.
German start-up Berlin Cures announced it would not conduct additional research after a failed #LongCOVID clinical trial of novel drug BC 007. In collaboration with @statnews Betsy Ladyzhets dives deep on what went wrong with the trial and what's next. bit.ly/44KAwhT
Disappointing yet not surprising
The German association for Neurology just released a statement on ME/CFS, saying there have been no consistent immunological factors identified, and research should focus more on psychosomatic diagnostics and treatment. And not 1 word on dysautonomia. dgn.org/artikel/zum-ak…
The fact that people who love us are forced into this situation just to keep us alive is a major indictment of our society. We should be striving and struggling for the communisation of care, against scarcity and for abundance
slowly coming out of a major funk, thank god. i know my suffering can't ever possibly compare to that of my partner's but severe ME is just relentless. no days off, just ultimate discipline needed day in, day out. doesn't matter what else is going on, you don't get a pass.
@Bridget_OShea was a much beloved member of this community. I’m so sad and horrified she’s gone and her last experiences were abandonment by her family Rest in peace angel I’m so sorry of the hardships you faced here. Praying you are somewhere easier xx
Omg, I just learned that @Bridget_OShea has passed. I am so angry at this disease for killing my friends. Rest in peace Bridget, I’m sorry for all the suffering you had to endure.
A reminder of what the global research output on #MECFS looks like, when compared to other diseases 😳 In the US at least, each of these other diseases now has a lower burden (measured in DALYs) than ME/CFS - and yet ME is barely off the floor. #MECFS #LongCovid
This is devastating. @Bridget_OShea’s last experience was not being believed and being dismissed by her own mother just before she died. It’s what this community goes through over and over. I hate this world
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
Second SCIG infusion tomorrow. The first one went really well and I still feel like I’m experiencing benefits a week later (for instance, I’ve been able to walk up some stairs a few times in the past week without experiencing PEM).
Omg, I just learned that @Bridget_OShea has passed. I am so angry at this disease for killing my friends. Rest in peace Bridget, I’m sorry for all the suffering you had to endure.
Check out this cool astrocyte multitasking in the brain! It manages a blood vessel on one side while supporting a neuron on the other. Everything in the brain, from blood vessels to neurons, is interconnected! 🔬 🧠 #microscopy #Neuroscience
Sadly, I am no longer a professor at ETH (@eth_en) due to very severe #longCovid and #MECFS. ethrat.ch/de/ernennungen….
Please help Rhi out with affording life-saving medication and housing 💚 even a little bit helps. 🎁
I am fully bed ridden in crippling pain and can’t even afford my meds or a roof over my head without support because of this. If I have to go back to hospital I’ll end it I can’t handle another round of that Give a little coming soon, PayPal is [email protected]
✨ Exciting summer fundraiser update! ✨ We're thrilled to share that all donations this month will now be matched, up to our goal of $30,000, thanks to the Disability Visibility Project (@DisVisibility)! Help us keep our vital work going into 2026: the-sick-times.fundjournalism.org/donate/
Up to us…but also up to the bacterial, viral, parasite & other pathogens that repeatedly infect - and often persist - in our bodies across a lifetime. These pathogens can accelerate features of aging by hacking our gene expression, mitochondrial function & immune signaling
Only ~20% of lifespan is genetic. The rest is up to you