PostX #UniteToFight2024
@TeamPostX
Co-Founder of @U2Fight_World /#UniteToFight2024//Long Hauler since 2020
When life exists mostly in memories #MECFS A disease so disabling- yet doubted by the ignorant ME patients are resilience personified We find hope NOT in pseudoscience but a brilliant, compassionate community
Distinct immunotypes in ME/CFS based on CSF analysis #MECFS
Data from Dr. Akiko Iwasaki @VirusesImmunity, Dr. Victoria C. Bastos, and Kerrie Greene found 2 distinct immunotypes of ME/CFS. This work suggests distinct drivers of disease, helping to differentiate the pathophysiology of #MECFS. Read it in AAI News: ow.ly/MWR950VXhzw
What looks like a girl laying still and resting is in reality a pure torture 24/7. I wish people listened and didn’t only judge by what “it seems” and what they perceive. Artwork by: kate_drawingcolor on Instagram. Inspired by my symptoms. #mecfs #pwme #longcovid
V. excited to join the SPEAR (Spike Protein Elimination and Recovery) team with @MichaelPelusoMD @microbeminded2 @PutrinoLab @Invivyd to study whether broadly neutralizing mAb can treat Long COVID and post-vaccination syndrome subset driven by persistent spike protein.…
Scientist Dr. Akiko Iwasaki @VirusesImmunity Joins SPEAR Study Group to Investigate Monoclonal Antibodies for Long COVID and COVID-19 Post-Vaccination Syndrome investors.invivyd.com/news-releases/…
Ich stimme Prof. @C_Scheibenbogen in der Bewertung dgn.org/artikel/zum-ak… zu. Das Papier der Neurologen liest sich so, als ob man bäte, in ME/CFS nicht viel Forschungsgeld zu investieren. Repräsentiert das wirklich die Haltung der Kollegen? Es wirkt, sorry, verharmlosend
Die neue Stellungnahme der DGN zu ME/CFS ignoriert leider aktuelle wissenschaftliche Fortschritte zu den immunologischen Mechanismen postinfektiöser ME/CFS. Stattdessen propagiert sie überholte Konzepte – und legitimiert damit auch weiterhin unwirksame und schädigende Therapien.…
Die DGN-Stellungnahme spiegelt eine national rückständige Position wider – wissenschaftlich isoliert, politisch folgenlos und inhaltlich überholt. Dass dies ausgerechnet von einer der zentralen neurologischen Fachgesellschaften kommt, ist alarmierend.
dmz-news.eu/2025/07/23/me-…
Genau das!
Die neue Stellungnahme der DGN zu ME/CFS ignoriert leider aktuelle wissenschaftliche Fortschritte zu den immunologischen Mechanismen postinfektiöser ME/CFS. Stattdessen propagiert sie überholte Konzepte – und legitimiert damit auch weiterhin unwirksame und schädigende Therapien.…
University of Virginia researchers found that 6 of 20 COVID-19 survivors with lingering lung symptoms had antibodies mimicking ACE2 enzyme activity, which was linked to drops in blood pressure after exercise, suggesting a possible cause for long COVID. journals.asm.org/doi/10.1128/mb…
Anktiva—the BioShield for HIV—published today! Prof. Caskey (Rockefeller Univ): “What we’re most excited about is… some participants maintain low-level viremia for a prolonged time.” Next up: Long COVID trials. NK cells matter. Clear the virus! #HIV aidsmap.com/news/jul-2025/…
RIP Ozzy Osbourne (1948 – 2025). As a global rock icon, Ozzy inspired millions with his music, but even more profoundly, he moved the Parkinson’s community by bravely sharing his diagnosis and becoming a pioneer in the conversation around advanced therapies, including stem cell…
Berlin Cures’ failed LC clinical trial yields lessons on study design - new start-up APTA Therapeutics, led by former Berlin Cures CEO von Stein, acquired BC 007 & plans to continue research with future studies that learn from prior trial’s shortcomings thesicktimes.org/2025/07/22/ber…
Meine Mail an DNG: Betreff: ME/CFS – Suizid ist keine psychische Komponente. Es ist eine Systemantwort. Sehr geehrte Damen und Herren, mit großer Irritation habe ich Ihre jüngste Stellungnahme zum aktuellen Forschungsstand bei ME/CFS vom 22. Juli 2025 gelesen. Ich schreibe…
The German association for Neurology just released a statement on ME/CFS, saying there have been no consistent immunological factors identified, and research should focus more on psychosomatic diagnostics and treatment. And not 1 word on dysautonomia. dgn.org/artikel/zum-ak…
Accelerated brain ageing during the COVID-19 pandemic: accelerated brain ageing correlates with reduced cognitive performance only in COVID-infected participants nature.com/articles/s4146…
UK study of 996 people found that brains aged about 5.5 months faster during the COVID pandemic, regardless of infection. Only those who caught the virus showed cognitive decline, pointing to stress and environment as key drivers of brain ageing. nature.com/articles/d4158…
Paris researchers studied golden hamsters and found that SARS-CoV-2 can persist in the brainstem for 80 days, triggering gene changes linked to neurodegeneration and causing depression-like behavior, memory loss, and anxiety-like symptoms. nature.com/articles/s4146…
Aus aktuellem Anlass #WirsindSarah #LearnAboutME #Fight4ME #MillionsMissing #UniteToFight #BiggestMedicalScandal
1) 🇬🇧 In the UK, the delivery plan for ME/CFS has finally been published. Here's what it says about scientific research on ME/CFS...
Everything published so far on the DHSC Plan for #ME in one thread. Thank you @TomKindlon
UK government press release: "Boost in support for patients with chronic fatigue syndrome or ME: Better care for patients living with ME/CFS, with plans to invest in research & offer [care] closer to home" gov.uk/government/new… #MEcfs #CFS
@klausholetschek #MECFS „Forschungsförderung sollte sich an medizinischer Relevanz und wissenschaftlicher Qualität orientieren - nicht an wirtschaftlichen Interessen oder Traditionen.“ Danke @NewsDMZ für die sachliche Aufbereitung: