ME/CFS Science
@mecfsskeptic
In-depth analysis of research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS).
Words of @KarenLHargrave are so true. Over the past 3 years I've met & photographed many #pwME trapped in bedrooms, desperate for appropriate care. Info on exhibition and book tinyurl.com/58khuv8z #MECFS #DocumentaryPhotography #InvisibleIllness #ChronicIllnessAwareness
Thank you @KarenLHargrave of #ThereForME for commenting so strongly on the DHSC Plan for #ME published in The Times today.
“We didn’t even see his eyes for over a year.” “It was like dealing with someone almost in a coma.” Clip from Channel 4 News: Nick Benton (@BentonNick18437) and his family on life with severe #MECFS — as the government finally releases its delivery plan.
Channel 4 News segment (5 mins) on the new government delivery plan for #MECFS. Interviews with Dr @BinitaKane, Sajid Javid and Nick Benton a patient and his family. youtu.be/1sYD5iBXw8k?si…
On S4ME, people pointed out that the PRIME project was due to efforts by Prof. Chris Ponting and his team. So it wasn't really an initiative taken by the government to support ME/CFS research. Source: s4me.info/threads/uk-gov…
2) The plan announces two new research investments. First, the MRC has awarded £845,000 to PRIME, a new partnership award that aims to build a solid foundation for a permanent infrastructure for ME/CFS research, building on previous investments in DecodeME.