Tom Kindlon

UK government press release: "Boost in support for patients with chronic fatigue syndrome or ME: Better care for patients living with ME/CFS, with plans to invest in research & offer [care] closer to home" gov.uk/government/new… #MEcfs #CFS

From the Irish ME Trust Our next social gatherings will take place in BRAY, LIMERICK DUBLIN & KILKENNY. #PwME #MyalgicEncephalomyelitis

Tom Kindlon @TomKindlon: Just the two of us today but we had a good chat. #PwME #MEcfs

Single-cell RNA-sequencing highlights a curtailed NK cell function in convalescent COVID-19 pregnant women frontiersin.org/journals/immun… Screenshot from Science for ME weekly update #LongCovid #PASC

From Germany: "Given the importance of monocytes/macrophages system, YKL-40 may become a potential marker for the long-term dysregulation of the innate immune system" archiv.ub.uni-heidelberg.de/volltextserver… Screenshot from Science for ME weekly update #LongCovid #NeuroPASC

From the US: A data-mining analysis of host solute carrier family proteins in SARS-CoV-2 infection with reference to brain endothelial cells and the blood-brain barrier in COVID-19 frontiersin.org/journals/neuro… Screenshot from Science for ME weekly update #LongCovid #NeuroPASC

"This analysis emphasized that people with ME/CFS have important first-hand knowledge to contribute to the field." via.library.depaul.edu/cgi/viewconten… Screenshot from Science for ME weekly update #MEcfs #CFS

“…When I hear about my old schoolmates becoming doctors or accountants while I'm disabled and unemployed living with my parents as my carers, it can be easy to think you're a failure and weak or be worried people see your life as unimpressive and pathetic…” #MEcfs #PwME 1/

Fulltext now published: Beneficial effects of intermittent intravenous saline infusion in dysautonomic patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a case-series frontiersin.org/journals/neuro… Hopefully a double-blind trial will be done somewhere #MEcfs #CFS

I’ve finally got around to watching #voicesfromtheshadows and it’s one of the most impactful documentaries I’ve seen on #MECFS. It’s excellent. Initially I thought it wasn’t available in the UK, but I clicked “Rent $3.00” entered promo code ‘Voices’ and it worked for free!

The @JoeFinneganShow intends to do a series on the devastating & life-changing illness ME/CFS. Listen to the first episode here 👇 (25 mins). V. well done. Moving & relatable email from listener who describes becoming a "ghost" in their own life. Interviews parent, Dr Speight.

In BE is men nog bezig aan een behoeftenonderzoek, ook belangrijk maar heel erg laattijdig… Aan iedere ME/cvs-patiënt in BE: laat het RIZIV weten waar je in de zorg tegen aanloopt (vragenlijst ca 30 min) survey.kce.be/974677?lang=nl

The plan is finally online: "ME/CFS: the final delivery plan. The final delivery plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), focusing on 3 main areas to improve care and support for those with ME/CFS" gov.uk/government/pub… #MEcfs #CFS

Lots going on today with ME coverage! 📺 📻 Some coverage we’re expecting today (pending news schedules): - Our co-founder @KarenLHargrave due to be featured on Radio 4 World at One between 1-2pm - #ThereForME Ambasador @BinitaKane due on Channel 4 News between 7-8pm

Archive version here: archive.ph/2025.07.21-231…

Everything published so far on the DHSC Plan for #ME in one thread. Thank you @TomKindlon

Thank you so much @JoeFinneganShow and @NorthernSoundFM. This is an excellent 25min segment. Thank you Dr Speight, Shirley, Ciaran, @TomKindlon and @IrishMECFSAssoc. Looking forward to future segments in the coming months! Please keep up the good work spreading awareness!