Andrea Fighting for #MECFS Diagnostic Biomarkers

I have #SevereMECFS. I can no longer speak. I am bedridden. Today it is 5 years 8 months since I was outside. (2069 days) #MECFS needs a biomarker in order to get a FDA approved treatment. Please donate to BioQuest. #philanthropy #socialgood omf.ngo/me-cfs-new-bio…

It is my birthday this week 🥳🎈 And I'm a running my bday fundraiser for @wecrunchme! If you appreciate our work *and* have the means, please consider chipping in a digital 🍺 If unable, retweets are v gratefully received too! TYSM, link below #MECFS #LongCovid

On a monthly basis, the #MECFS community has to 1) intervene/advocate for very ill patients being psychologized and denied care 2) mourn ill patients who have died from lack of care, or inability to continue on

Are we ready for SMC backlash on the Delivery Plan news? It's coming... All the usual players, my bingo card: Carson, Sharpe, Crawley & PG. Perhaps Gerada as GPs involved. #Pwme This is when the main Charities should be already prepared with responses.

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It's happening yet again! Please sign and share this petition in support of Savannah. #SevereME #MedicalNeglect #MEKills #MyalgicEncephalomyelitis #ThereForME #MECFS #pwME

Please sign ✍🏼 and share 🙏🏻 Savannah is in a UK hospital, she has very severe ME complicated by paralysing pain. She is suffering from neglect that has caused infections, and under threat of discharge to an FND service (dangerous for pwME). change.org/p/save-savanna…

Rally to The Cause! Unite under the BioQuest banner! Support Open Medicine Foundation's Quest to find a BioSignature for #MECFS, validate it, and commercialize it. tinyurl.com/OMFBioQuest #socialgood #philanthropy #crowdfunding #pwME #LongCovid

On S4ME, people pointed out that the PRIME project was due to efforts by Prof. Chris Ponting and his team. So it wasn't really an initiative taken by the government to support ME/CFS research. Source: s4me.info/threads/uk-gov…

My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance

Too Many Of Us Are Dying I see people protesting the rights of many marginalized groups and important issues. I see people up in arms over injustices faced by people all around the world…BUT WE ARE DYING. Not to mention suffering endlessly from symptoms that are often only…

Invest in your own future Support Open Medicine Foundation's Quest to find a BioSignature for #MECFS, validate it, and commercialize it. tinyurl.com/OMFBioQuest #socialgood #philanthropy #crowdfunding #pwME #LongCovid

Excited for @RedefiningMECFS (Simmaron) to participate in The Southeastern Wisconsin Consortium of Drug Discovery and Development Meeting @UWM today! Innovation is driven by a strong partnership between academia and industry partners with early support from the federal government…

"Yes, there are warm words aplenty. However, this delivery plan is sorely lacking in detail on how change will be delivered. It is a plan without any actual plan." To no one's surprise, the Delivery Plan fails to deliver. #MyalgicEncephalomyelitis #MECFS

My dream since Christmas is a fully-funded OMF BioQuest. Knowing that all 1200 samples will be tested rigorously. Knowing that if a #MECFS BioSignature is found from proteins and metabolites, Linda Tannenbaum will see it validated and commercialized into a blood test.

I slept through most of my anniversary day, woke up to a horrible UK delivery plan for ME/CFS with no mention of a blood screen or funded biomarker program, psychiatric propaganda article under written the guise of global health. Sleep through Mondays but they still happen.

If I was sitting on the board of a #MECFS / LongCovid org, I would be advocating for that org to fund and advocate for OMF BioQuest. I would be rallying all orgs, all patients, under one banner to fund our current best chance at a diagnostic blood test @actionforme @PlzSolveCFS

omf.ngo/me-cfs-new-bio… - Large scale Multi-omic biomarker study - 1200 Samples - 600 samples clinically diagnosed CCC #MECFS samples - disease samples, and healthy controls - analyzing proteins, metabolites, cytokines and lipids - designed to be commercialized into blood test

We are deeply saddened to learn of the passing of our friend @Bridget_OShea . A medical writer and advocate dedicated to educating people about #MECFS, she wrote at length about her struggle with the disease. Sending our condolences to her loved ones. ow.ly/GLCN50WsVNp

Today, more than ever, I wish we were on the Autoimmune list. #MECFS