Solve ME/CFS Initiative

Register for “ADDRESS-LC Trial: Studying the Impact of #Bezisterim on #BrainFog & #Fatigue in People w/ #LongCovid.” We'll discuss how to join & implications for #MECFS. 7.22 @ 3 pm PT/6 pm ET ow.ly/LuQ450WiKtY

"The recommendation seems 'arbitrary' given the lack of relevant evidence, said Hannah Wei, co-founder of @patientled. Higham agreed.. 'We have seen time and time again people developing #LongCovid from exercising with infection.'" — @thesicktimes thesicktimes.org/2024/09/03/as-…

TODAY @ 3 pm PT/6 pm ET! Register for “ADDRESS-LC Trial: Studying the Impact of #Bezisterim on #BrainFog & #Fatigue in People with #LongCovid.” We'll discuss how to join & implications for #MECFS. @biovie @MichaelPelusoMD #clinicaltrials ow.ly/LuQ450WiKtY

💙 How care is delivered matters. Clayton Powers, DPT, shows how small changes like dimmed lights, quiet voices, and empathy, can transform care for ME/CFS & Long COVID. Compassion is a clinical tool. Use it. 🎥 Watch: bit.ly/46glQZ2 #MECFS #LongCOVID @uofuhealth

We are deeply saddened to learn of the passing of our friend @Bridget_OShea . A medical writer and advocate dedicated to educating people about #MECFS, she wrote at length about her struggle with the disease. Sending our condolences to her loved ones. ow.ly/GLCN50WsVNp

Tomorrow @ 3 pm PT/6 pm ET! Register for “ADDRESS-LC Trial: Studying the Impact of #Bezisterim on #BrainFog & #Fatigue in People with #LongCovid.” We'll discuss how to join & implications for #MECFS. @biovie @MichaelPelusoMD #clinicaltrials ow.ly/LuQ450WiKtY

Ck out this piece from Solve Research Advisory Council member Dr. Anthony L Komaroff on how #MECFS & #LongCovid are just 2 examples of an even larger class of illness-- post-acute infection syndromes (#PAIS) -- & why studying them has big implications. ow.ly/55XO50WqM4t

A fascinating new study by Vishnu Shankar et al. @stanfordimmuno shows that oxidative stress is a shared characteristic of ME/CFS and Long COVID in lymphocytes due to inability to clear reactive oxygen species. This happens in sex-specific manner. (1/) pnas.org/doi/abs/10.107…

🎥 ICYMI Video Update: A Muscle Biopsy Study to Understand the Molecular Mechanisms of #PEM 👉 Watch the interview and learn more about this study: ow.ly/leAU50Wkrk8.

Dutch court rules that Dutch Employee Insurance Agency (@UWVnl) must accept new research and test like CPET and tilt table test for PEM and OI to diagnose ME. A breakthrough after 20 years — justice at last for patients denied benefits. 💪 ENG subtitles: youtube.com/watch?v=2spHCW…

Register for our July 31 @ 12 pm PT / 3 pm ET webinar with #MECFS Catalyst Award winner @VirusesImmunity (@YaleMed). Dr. Iwasaki will discuss her study, “Probing Functional Autoantibodies in Patients with ME/CFS.” 👉ow.ly/eVNv50VReaH #MECFS

Our ICanCME New Frontier grants are an opportunity to contribute to the field of ME research, but are also an opportunity to form new connections, collaborate on new ideas, learn about patient partnership, address gaps in research, etc. Please consider applying.

We’re partnering with Long Covid Families to fight Long COVID with advocacy, education, and research—especially for children. Together, we can create real change. Learn more: braininflammation.org/long-covid-fam… #LongCovid #ResearchMatters #BrainHealth

Big news! Alaska will officially recognize May 12 as ME Awareness Day! Solve is proud to have supported the advocates who worked for the passage of this law, SB 60. Big thanks to them & @lgtobin and @repzackfields for being champions for our community. #MEAwarenessHour

📢 Thanks to the efforts of a dedicated group of advocates in Alaska, the state will officially recognize #MECFS Awareness Day on May 12. Congratulations on your success, and thank you to Senator Loki Tobin and Rep. Zack Fields for your support! #MEAwarenessHour

🌟 Exciting news! We just launched a brand-new webpage where you can explore U.S.-based clinical trials for #MECFS, #LongCovid, & related conditions. This is your chance to help drive discovery and bring us closer to answers. Click here to learn more: ow.ly/4Gcr50Wqhrn

📢Chronic Fatigue (#ME/CFS) research of potential treatment (Hydrogen Water): Volunteers needed. New study of OTC supplement for chronic fatigue symptoms. Home-based. Participants paid up to $100. For more information, study coordinator: [email protected]

Register for our 7/22 webinar on the ADDRESS-LC trial re: potential impact of the drug bezisterim on cognitive impairment/brain fog & fatigue on #LongCovid. Positive results could lead to future research on its impact on people with #MECFS. ow.ly/XhE350WpzA3

The Summer 2025 edition of The Chronicle is now available! It includes summaries of significant research studies from this quarter--with topics like a genetic risk score for #MECFS, identifying biomarkers for #LongCovid, and more. Read it here: ow.ly/gZcW50WqfIr