Naomi Harvey PhD #WearAMask
@Naomi_D_Harvey
Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ http://naomidharvey.bsky.social
BMJ Rapid Response: Steps doctors and other medical professionals can take today to improve medical care for people with Myalgic Encephalomyelitis #MyalgicEncephalomyelitis bmj.com/content/383/bm…
Any #MCAS folk in the UK I’ve been Rxd *white* fexofenadine & montelukast but can’t find any without colouring.. Before I go back to the consultant defeated, do you know of any brands that don’t use colouring? Thnx! @angryhacademic @Naomi_D_Harvey #pwME #MEcfs #LC #LongCovid
Fort Lauderdale scientists report salubrinal may ease ME/CFS and long COVID by reducing WASF3, a protein that disrupts mitochondria. In cell studies, salubrinal restored energy and may reverse brain fog symptoms. Human trials are still needed. cell.com/trends/molecul…
Dr Alexis Gilbert has outlined what the Final Delivery Plan for ME/CFS *should* have looked like (on IG): instagram.com/p/DMa8sjPMzd2/
"You are never where you want to be, you are never doing what you want to do and you are never the person you really are." This is "living" with ME. #GreatestMEdicalScandal #MillionsMissing #MyalgicEncephalomyelitis #pwME (Full ALT text below)
Someone asked me to do a short piece on #MEcfs #c4news
⚠️ There's another #pwME in a vulnerable situation in a UK hospital. Savannah is being neglected, not receiving appropriate pain management and essential care. Please sign the petition and share. #GreatestMEdicalScandal #MillionsMissing
CN: ME abuse Support a Black individual in the UK who is being neglected in hospital. Sign below (I think it's UK only but PLEASE share) chng.it/4jgTSmrpMv
It's happening yet again! Please sign and share this petition in support of Savannah. #SevereME #MedicalNeglect #MEKills #MyalgicEncephalomyelitis #ThereForME #MECFS #pwME
My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance
Please sign ✍🏼 and share 🙏🏻 Savannah is in a UK hospital, she has very severe ME complicated by paralysing pain. She is suffering from neglect that has caused infections, and under threat of discharge to an FND service (dangerous for pwME). change.org/p/save-savanna…
This excerpt from the ME Delivery Plan shows the inherent disease inequity for ME. Can you imagine saying to severe Parkinson's patients - sorry we are not going to provide an NHS service for you because it's not: 👉 Practically feasible 👉 Financially viable 👉 Affordable 😳
my baby Awakened has been out for 7 weeks! if you’ve read and enjoyed it and have the capacity, please do drop a little review on amazon/waterstones/b&n/goodreads it’s a sad fact of modern bookselling, but it really does help the algorithm the more positive reviews there are!
Dr. David Systrom recently attended the International ME/CFS Conference 2025 in Berlin, Germany. As part of the conference, he gave two presentations: 🔹 Circulatory dysfunction in #MECFS 🔹 OMF’s Life Improvement Trial (LIFT) Watch the recordings: ow.ly/heaj50Wtmqi.
Where is there is 7mg patches for sale Australia? Fast delivery. I’m too wrecked to search.🥺😪
Announcement!! 1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows! We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
This made me properly laugh 😆
This is Chester. He dramatically slides down the stairs every morning. Just because he has woken up doesn't mean his legs have. 13/10
‘A plan without any actual plan’ @TimesONeill Thank you for precisely summing up today’s DHSC Delivery Plan for #ME. thetimes.com/article/e4a603…
Does anyone have personal experience treating acute Covid with metformin? I have a supply. It usually takes me about 6 weeks before I start feeling any better & I already have #LongCovid so I’m looking for meds/supplements to lessen the blow. It’s my 5th infection. 🥺
DHSC delivery plan for #ME published today. Article about it in The Times. #DeliveryPlan thetimes.com/article/0bd815…
I read today that only 3% of people who start a novel, actually finish writing it (30 in 1000), and only 6 of those 30 ever actually publish in anyway. So I wanted to say an extra well done to my friends @Sally_writes and @TinyWriterLaura and any other writers in here 📖
“Do you really think you know more about your condition than an actual doctor?” Yes, actually, and that’s a problem. I’m not saying I’m a genius. I’m saying that there are things that they do not know enough about yet still act like they know everything. It leads to negligence.