Long Covid Advocacy Ireland
@LCAIreland
The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
We've many patients contacting us who've developed #LongCovid in last 1/2 years having had this experience. Taxpayers, be aware that the HSE is wasting YOUR MONEY on public doctors running unnecessary medical tests because Doctors aren't trained how to spot #LongCovid! #HSE
As predicated;. Ppl no longer test for #Covid ➡️ Ppl develop #LongCovid but don't know that's what it is ➡️ Many of them getting lost in a mess of unnecessary tests, medical gaslighting & inappropriate psychiatric involvement. If they're 'lucky' will get diagnosis of PVFS..
What happens when you compare brain scans from people before and after the pandemic started? A new study with 996 participants shows the pandemic accelerated brain aging for all, but those infected with COVID also presented reduced cognitive performance. #NeuroCovid #LongCovid
Long Covid in Year 5: Some Progress, Still Many Questions 🔥Journal of Insurance Medicine: ➡️"After 5 years, long Covid remains largely unsolved." ➡️"Although clearer clinical phenotypes and distinct disease mechanisms are emerging, the absence of useful biomarkers remains a…
"Chronic Denial: A debunked theory about chronic fatigue syndrome is being recycled to explain Long Covid—with troubling results" by David Tuller @davidtuller1 openmindmag.org/articles/going… Screenshot from July AMMES email newsletter #LongCovid #MEcfs @mhornig
Four Days Left to Submit Art for Severe ME Artists Project– deadline is July 24th! Details: meaction.net/2025/07/10/sev… We have had a wonderful response so far and can’t wait to see what comes in during these next few days! #SevereME #SevereMEDay #pwME #art
Today we’re celebrating a year to the day since @KarenLHargrave & @GoreLloyd launched #ThereForME! We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far.
🆕 “From an equity perspective, it is essential that children are actively included in ongoing and future clinical trials for long COVID to ensure that pediatric populations are not left behind in the development of effective diagnostics and treatments” link.springer.com/article/10.100…
#HistoryMatters #LongCovid #pwME #pandemic #pandemicimpact #COVID25 #MyalgicEncephalomyelitis thinkglobalhealth.org/article/long-f…
Check out our 'Resources' website page for some useful links on all sorts of #LongCovid topics. longcovidadvocacyireland.com/useful-informa…
If you know someone with ME/CFS or Long Covid -read the blog. Read it for Bridget. -empathize She didn’t give up. She spoke out. We will keep pushing for truth, for care, for change. Rest in peace You wrote beautifully. #MEAwareness #MillionsMissing
Webster-Kirkwood Times: 'The Long Haul Of Long COVID' “My body no longer processes exertion the way it should,” she said. “I don’t just feel tired — I feel completely wrecked." - Rhonda Pollard Lofgren, former fitness instructor timesnewspapers.com/webster-kirkwo…
💙 How care is delivered matters. Clayton Powers, DPT, shows how small changes like dimmed lights, quiet voices, and empathy, can transform care for ME/CFS & Long COVID. Compassion is a clinical tool. Use it. 🎥 Watch: bit.ly/46glQZ2 #MECFS #LongCOVID @uofuhealth
‘We don't talk much any more about longCovid, especially in kids. Maybe because it's inconvenient. Maybe it’s too scary. But it's very real.’ ‘We’ve stopped testing & isolating but Covid hasn’t stopped. Without clear guidelines from schools or Govt, we’re all just making it up.’
Today on CBS Mornings Health Watch, per CDC data, the rate of young children going to the Emergency Room due to COVID is at the highest level since March. It’s July.
#LymeDisease is a bacterial infection that can be spread to humans by infected ticks. Most people with early symptoms of Lyme disease develop a circular red skin rash around a tick bite. For more information on symptoms to look out for, visit: bit.ly/40QagjR
Tonight (Sunday) at 7pm #LongCovid
This Sunday at 7pm is our monthly online support meeting for spouses, partners, carers and parents. #LongCovid
Amazing that the technology exists to massively reduce the risk of catching covid or any other virus transmitted through the air but neither capitalists nor neoliberal states want to pay for it so instead long covid is now the number one chronic illness in children
A fascinating new study by Vishnu Shankar et al. @stanfordimmuno shows that oxidative stress is a shared characteristic of ME/CFS and Long COVID in lymphocytes due to inability to clear reactive oxygen species. This happens in sex-specific manner. (1/) pnas.org/doi/abs/10.107…
CDC Says #COVID19 Cases Rise in 25 US States; biggest, parts of South, SE & West Coast usnews.com/news/health-ne… @Concern @ifglobalhealth @CovidWomenVoice @LCAIreland @LifeAccrdingLiz @LCCampaign @HsehealthW @HSELive @INMO_IRL @CMOIreland @stjamesdublin @MaterNursing @FergalBowers
This Sunday at 7pm is our monthly online support meeting for spouses, partners, carers and parents. #LongCovid
Our petition closes on 30th July! We are asking the Government to fund training for all healthcare providers on spotting & dealing with #PoTS and to facilitate the correct form of healthcare! Please sign today and SHARE FAR AND WIDE: petition.parliament.uk/petitions/7068… #MECFS #LongCovid