Sarah O'Connell
@SarahOC_MECFS
#pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
We can not have our children continue to be ignored, neglected, abandoned Services are needed urgently #LongCovid #LongCovidKids
🧵🛑 Don't shut the door on us. Closing Long Covid clinics without training healthcare professionals, & without clear care pathways & long-term plans, risks leaving thousands of children & young people without the support they need. And if we don't act?👇 #LCandMe #FundOurFuture
When the attorney representing roughly 20 Epstein victims asked to be included in the highly inappropriate meetings between Todd Blanche & Ghislaine Maxwell, but was barred from attending - Blanche is acting as Trump’s lawyer, not the US Deputy AG. Release the #EpsteinTrumpFiles
This is the kind of abuse (& it IS abuse!) that ppl w #MyalgicEncephalomyelitis(& also #LongCovid) receive from clinicians daily! WHO recognises both ME & LC! Exists a wealth of research proving without doubt they're physical diseases This ignorance & discrimination is systemic!
A paramedic told me yesterday: "ME is a clinical condition, it cant be proven with a blood test, so anyone can just give you a diagnosis - it isn't real. It's all in your head. You are just a hypochondriac. I suggest u go to therapy so u can free urself from living like this”
"@NHSuk must take measures to stop Dill deteriorating" @AshleyDalton_MP @wesstreeting severely ill #pwME are still being forced to petition to get the care they urgently need & are entitled to. Please sign & share ✍️🔁 chng.it/vXCgqMW7WF
Once we thought it would be nearly impossible to modulate #LongCovid in rodent models, but science is getting there. More evidence for direct #COVID neuroinvasion, viral persistence in the brain , and more explanations for cognitive and psychiatric alterations... #NeuroCovid
It still blows my mind that most people genuinely think the pandemic ended just because all the governments said it did. Capitalism over lives. I’ve always been cynical, but this is ridiculous levels of wishful thinking and compliance. Real life “Don’t Look Up” mentality.
Let’s review: 1) Trump files a bogus lawsuit against CBS 2) Paramount caves; pays Trump over $16 million 3) Trump’s FCC approves Paramount’s sale to Skydance, giving Redstone family a $2.4 billion payday 4) Trump allies now own CBS News This is authoritarianism in action.
Breaking News: The FCC said it would allow Paramount to merge with the Hollywood studio Skydance, clearing the biggest remaining hurdle for the deal. nyti.ms/44Nlwjl
Columbia University will pay a $200 million to settle allegations from the Trump administration that it failed to stop Jewish harassment. This is how Trump will make his money - by using his office to extort settlements from those who fears retribution. politico.com/news/2025/07/2…
I am deeply disappointed by reports of Columbia University’s outrageous and embarrassing $200 million capitulation to the Trump Administration’s repugnant extortion campaign. Let’s be clear: no investigation was ever conducted by the Department of Education’s Office of Civil…
A joint statement on Gaza from AFP, AP, BBC News and Reuters
Fire Pete Hegseth NOW. If any other federal government employee did this, they would be out of a job.
The House subcommittee just PASSED my motion to subpoena the Epstein files. The DOJ must now release them to the Oversight Committee. The American people deserve transparency and accountability, and his victims deserve justice. The wealthy and powerful are not above the law.
I just offered a motion to subpoena the Epstein files. If Republicans really want to find ways to protect children from being trafficked, let’s get to it.
Please sign ✍🏼 and share 🙏🏻 Savannah is in a UK hospital, she has very severe ME complicated by paralysing pain. She is suffering from neglect that has caused infections, and under threat of discharge to an FND service (dangerous for pwME). change.org/p/save-savanna…
⚠️ There's another #pwME in a vulnerable situation in a UK hospital. Savannah is being neglected, not receiving appropriate pain management and essential care. Please sign the petition and share. #GreatestMEdicalScandal #MillionsMissing
CN: ME abuse Support a Black individual in the UK who is being neglected in hospital. Sign below (I think it's UK only but PLEASE share) chng.it/4jgTSmrpMv
Smart There's a worldwide epidemic of violence against #women. The type of people who claim that this pilot is discrimination that shouldn't be allowed are the same ppl doing nothing to address that! Hopefully,we'll live in a world one day where this isn't necessary #WomenSafety
Uber will let women drivers and riders request to avoid being paired with men starting next month in the US
Exclusive: The Justice Department told President Trump in May that his name is among many in the Epstein files on.wsj.com/4mcTIKV
Today we’re celebrating a year to the day since @KarenLHargrave & @GoreLloyd launched #ThereForME! We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far.
Breaking News: Speaker Mike Johnson said he would shut down the House until September to block a vote on calling for the release of the Jeffrey Epstein files. nyti.ms/4nZtblR
🆕 “From an equity perspective, it is essential that children are actively included in ongoing and future clinical trials for long COVID to ensure that pediatric populations are not left behind in the development of effective diagnostics and treatments” link.springer.com/article/10.100…
"Four-year old Razan Abu Zaher gave up her fight for life on Sunday." "She died at a hospital in central Gaza from complications brought on by hunger and malnutrition, according to a medical source. Her skeletal body was laid out on a slab of stone."
If you know someone with ME/CFS or Long Covid -read the blog. Read it for Bridget. -empathize She didn’t give up. She spoke out. We will keep pushing for truth, for care, for change. Rest in peace You wrote beautifully. #MEAwareness #MillionsMissing