Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Hey #NEISvoid & friends - first PEM crash in a long time here. Thought I had paced well with Visible and Garmin body battery, but this crash snuck up on me. I’m currently following Bateman Horne Center’s Crash Survival Guide as best I can (radical rest, reducing stimulation
Of course, a simple Google search turns up the doc who wrote this opinion piece treats Long Covid related mitochondrial dysfunction with graded exercise therapy.
Not endorsing, sharing for sight MedPage: The Dangers of Crowdsourced 'Cures' for Long COVID 'Stop letting social media dictate care' 'Complex, multi-system diseases like long COVID, management belongs in the hands of qualified healthcare professionals' medpagetoday.com/opinion/second…
Millions of children are living with #LongCOVID. Their symptoms disrupt memory, energy, mood, and development, keeping them out of school, sidelined from friendships, and left without answers. Join us for #PediatricLongCOVIDAwareness Week. longcovidfamilies.org/advocacy/ped...
Not endorsing, sharing for sight MedPage: The Dangers of Crowdsourced 'Cures' for Long COVID 'Stop letting social media dictate care' 'Complex, multi-system diseases like long COVID, management belongs in the hands of qualified healthcare professionals' medpagetoday.com/opinion/second…
CBS 19: 'UVA scientists link rogue antibodies to Long COVID symptoms' 'Their research led to the discovery of so-called abzymes, or antibodies that act like enzymes' '..led by Dr. Steven Zeichner...leading them to suspect the body's own immune response' cbs19news.com/news/uva-scien…
Healio: “VIDEO: Calabrese discusses NASEM’s long COVID definition, lupus nephritis treatment” “chief medical editor of Healio Rheumatology, noted the ongoing efforts to define long COVID” healio.com/news/rheumatol…
Would be great if any doctor was knowledgeable enough to help me, I feel like I always have to come in with a bunch of my own research or nothing gets done 😭
Qualified health professionals in the area of Long COVID are practically non-existent
@JAMA_Pediatrics manuscript on characterizing Long COVID in early childhood is now open access. #NIHRECOVER jamanetwork.com/journals/jamap…
New research in @JAMA_Pediatrics sheds light on Long COVID in early childhood! Our #NIHRECOVER study found distinct symptom patterns for infants/toddlers (0-2 years) vs. preschool-aged children (3-5 years) after COVID infection. Learn more: [jamanetwork.com/journals/jamap…] #LongCOVID
'Abnormal Long COVID PET/MR Findings Linked to Future Cardiac, Pulmonary Diseases' 'Long COVID patients with abnormal cardiopulmonary PET/MR findings may be more likely to develop heart and lung diseases, according to new research published..' dicardiology.com/content/abnorm…
'Thoracic radiologists publish post-COVID CT imaging recommendations' 'Thoracic radiologists from multiple international institutions and societies have collaborated on new guidelines..in CT imaging for patients with post-COVID lung abnormalities' auntminnie.com/clinical-news/…
Maine's Medical Assocation and Licencing board testified against our bill to RECOMMEND educating providers in long covid and other Infection Associated Chronic Conditions... The doctors can't reclaim a narrative they don't understand & are unwilling to train in..
2. This medical coaching & consulting program will address a needs gap for patients with Complex, Multi-system, Chronic Conditions (CMCCs) like ME/CFS, Long Covid, Chronic Tick Borne conditions, and associated comorbidities.
Announcement!! 1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows! We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC
The Final Delivery Plan for ME/CFS has been released today. The full report was shared with some organisations and media outlets late yesterday. We’re waiting for it to go online. A short 🧵with some thoughts… (1/)
Diagnostic Imaging: 'Study Reveals Significant Prevalence of Abnormal PET/MRI and Dual-Energy CT Findings with Long Covid' diagnosticimaging.com/view/study-pre…
UVA Health: 'Scientists ID Rogue Antibodies in Patients After COVID' '...new findings support the possibility of abzyme involvement in Long COVID' “Post-viral syndromes, and Long COVID..have affected the health of many people in very distressing ways..' newsroom.uvahealth.com/2025/07/22/sci…
Diagnostic Imaging: 'Chest CT for Post-COVID-19 Abnormalities: Nine Takeaways from a Multi-Society Consensus Statement' diagnosticimaging.com/view/chest-ct-…
SO important - #longcovid researchers need to be measuring PEM!
STAT: 'A rare drug trial for long Covid failed, yielding lessons on study design' 'BC 007, a German infusion that had lifted hope of patients, is heading for new study' By Betsy Ladyzhets — The Sick Times statnews.com/2025/07/22/lon…
Thank you for speaking up on Long COVID, @SenTimKaine
I asked a Trump health appointee if he believes in Long COVID. Couldn’t get a direct answer. I asked if he’d recommend the COVID vaccine. Couldn’t get a direct answer. Let’s set the record straight: Long COVID is real and vaccines work. Claiming otherwise is dangerous.
I asked a Trump health appointee if he believes in Long COVID. Couldn’t get a direct answer. I asked if he’d recommend the COVID vaccine. Couldn’t get a direct answer. Let’s set the record straight: Long COVID is real and vaccines work. Claiming otherwise is dangerous.