Clare

It is my birthday this week 🥳🎈 And I'm a running my bday fundraiser for @wecrunchme! If you appreciate our work *and* have the means, please consider chipping in a digital 🍺 If unable, retweets are v gratefully received too! TYSM, link below #MECFS #LongCovid

what were you worried about

5 Live Breakfast segment on the UK government's new #MECFS Delivery Plan (9 mins) Interview with Sarah Boothby “There is no expertise anywhere within the NHS and this plan is not going to provide any.” youtu.be/myisnymUcC0?si…

Lots going on today with ME coverage! 📺 📻 Some coverage we’re expecting today (pending news schedules): - Our co-founder @KarenLHargrave due to be featured on Radio 4 World at One between 1-2pm - #ThereForME Ambasador @BinitaKane due on Channel 4 News between 7-8pm

BBC Breakfast segment on the UK government's new #MECFS Delivery Plan (12 mins) Features Sarah Boothby and Dr Binita Kane, who warn the plan doesn't go far enough and won’t lead to immediate change for patients. youtu.be/GZbSrdtiA9k?si…

The Final Delivery Plan for ME/CFS has been released today. The full report was shared with some organisations and media outlets late yesterday. We’re waiting for it to go online. A short 🧵with some thoughts… (1/)

The average man in Blackpool has a life expectancy of 74 and a healthy life expectancy of just 53. Raising the state pension age means poor, working-class people are effectively subsidising the retirements of wealthy professionals who can expect to live longer, healthier lives.

Warning as children fall ill after swimming in the River Avon bathecho.co.uk/news/community…

ME awareness highlights we need to be more aware of this issue. Thank you @BinitaKane for talking about it on @BBCBreakfast today @SAHM_UK @MEawareness @mssocietyuk

Watching @BinitaKane and Sarah, Maeve’s mum on @BBCBreakfast talking about ME and Long Covid. Trying not to cry before work watching it, because it’s still too sad that there are no NHS services and nothing will change soon. We are lucky to be able to afford private.

National Identity In The UK More about the map: brilliantmaps.com/national-ident…

ME Research UK is delighted to announce that we have awarded funding to Dr Sarah Annesley at La Trobe University in Australia for a new study looking at microRNA profiles and their impact on platelet function and energy production in women with ME/CFS. bit.ly/annesley069

I’ve spent 3 years photographing people with #MECFS, a condition I’ve lived with since 1987. 50 people. Invisible & incurable illness. The work shows at Oxo Tower in September. Updates & book info here: tinyurl.com/58khuv8z #InvisibleIllness #PhotographyForChange

Pension age needs to go down, not up! 🙄

The biggest group that will be hit by the Sickness/Disability Benefit cuts are women over 60, followed by men over 60. Those cuts have nothing to do with young people not in work or training.

Sincerely hope that sharing our story will now bring about the withdrawal of the current, harmful #FII guidance and that our communities will no longer be targeted, just because we are perceived as 'different'. All humans are different. Time we did so much better than this 💜

Liz Kendall complains that almost half the country isn't saving ANYTHING towards retirement. That's because they don't have ANYTHING left over each month after paying their bills, Liz. 🙄

My concern is where Upton is. He should not be anywhere near patients.