Adam

New Trailer for the #MECFS Scandal Explainer Video. It highlights the stigma, abuse, bad science, and harm in the treatment of #MECFS, which has been described by George Monbiot as the #GreatestMedicalScandal of the 21st century.

Sean O’Neill on Times Radio talking about the new government delivery plan for ME/CFS “I’ve never seen a plan that lacks detailed quite such as this. I think it you couldn’t really call it a plan at all, it’s a kind of wish list.”

1) Using a big healthcare database from the Bronx in New York, researchers found a 50% higher risk of being diagnosed with ME/CFS in people who tested positive for SARS-CoV-2. The risk of ME/CFS was the same for hospitalized versus non-hospitalized COVID-19.

This write up from @Channel4News is worth a look - more on @BentonNick18437’s story, who has done such an awesome job speaking out 💪

Dr Charles Shepherd (@MEAssociation ) and Janet Sylvester (@meactionscot ) spoke to BBC Radio Scotland about the government’s new ME/CFS delivery plan. youtu.be/FtRQe_EYxvA?si…

“The inquest found in its preparation was that there is no expertise anywhere within the NHS, and this plan is not going to provide any.” — Sarah Boothby, talking about the new ME/CFS delivery plan on BBC 5 Live Breakfast

The BMJ @bmj_latest has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…

“It is disappointing that there’s no dedicated funding, no ring-fenced [funding].” – Sajid Javid on the new #MECFS delivery plan. Clip from Channel 4 News, also featuring Dr Binita Kane (@BinitaKane) and Nick Benton (@BentonNick18437).

Dr & Public Health expert & #pwME LC Dr Alexis Gilbert @alexis___me has read the #ME Delivery Plan & created this thread on what the plan must include We need @AshleyDalton_MP @wesstreeting @DHSCgovuk to implement these recommendations if the plan is to be effective for #pwME 🧵

For the next few weeks I’ll share stories from my photo project about #MECFS Before Hillary became ill she was an entrepreneur, running companies, sponsoring motor racing, making music and living a full life. Updates on exhibition & book: tinyurl.com/58khuv8z #MEAwareness

I’ve spent 3 years photographing people with #MECFS, a condition I’ve lived with since 1987. 50 people. Invisible & incurable illness. The work shows at Oxo Tower in September. Updates & book info here: tinyurl.com/58khuv8z #InvisibleIllness #PhotographyForChange

Doctors are to be given training in better ways to diagnose and treat people with ME - as part of a long delayed action plan that's finally been published. The debilitating condition with a range of symptoms including severe exhaustion and constant pain, affects around 400,000…

“We didn’t even see his eyes for over a year.” “It was like dealing with someone almost in a coma.” Clip from Channel 4 News: Nick Benton (@BentonNick18437) and his family on life with severe #MECFS — as the government finally releases its delivery plan.

On S4ME, people pointed out that the PRIME project was due to efforts by Prof. Chris Ponting and his team. So it wasn't really an initiative taken by the government to support ME/CFS research. Source: s4me.info/threads/uk-gov…

Someone asked me to do a short piece on #MEcfs #c4news

Channel 4 News segment (5 mins) on the new government delivery plan for #MECFS. Interviews with Dr @BinitaKane, Sajid Javid and Nick Benton a patient and his family. youtu.be/1sYD5iBXw8k?si…

“I honestly just did not realise that it was possible, in the UK in 2025, to be as sick as my husband is & for there to be basically no specialist NHS services to provide any kind of support” Our co-founder @KarenLHargrave on Radio 4 WATO 👇 (Recording via @ABrokenBattery)

Clip Sarah Boothby on todays BBC Breakfast segment on the UK government's new #MECFS Delivery Plan “I was accused of fabricating Maeve’s symptoms right up to the point in which she died. Two days before she died, we were subject to safeguarding investigations.”

Article in The Times - @KarenLHargrave - “This is about more than words on paper: it is about the people lying bedbound in darkened rooms across this country, who desperately need safe NHS care and research to accelerate treatments.” archive.ph/2025.07.21-231…

Karen Hargrave - @KarenLHargrave on BBC The World at One talking about her husband, James with severe #MECFS and the new government delivery plan which lacks any concrete tangible solutions, also includes a representative from BACME. youtu.be/R6AReGLoy4o?si…

Full article in the Times My daughter died from ME. This new plan fails her and others like her - Maeve died at 27 from severe myalgic encephalomyelitis. What’s been published after years of waiting is little more than warm words archive.ph/2025.07.21-231…