Olenka Sayko
@coco_chatel
Ukrainian-American. Theater/film/music/book lover. Former arts finance girlie. Left-ish Libertarian-ish. Life on pause due to disabling #LongCOVID.
Let me tell you, if you are hopping on the “mock people for bringing up that disabled people often rely on delivery food to survive” bandwagon, you’re actively working in your community to shop and cook for housebound/disabled folks who can’t do that for themselves, right? RIGHT?
Absolute shame to @ZelenskyyUa and his cronies who are now openly ruining the agency of anti-corruption institutions in wartime. This is not going to happen.
⚡️🤬 The Ukrainian Parliament has passed draft law #12414 – a move widely seen as dismantling the country’s anti-corruption institutions
They die. Disabled people die.
I have never seen a homeless person with Down syndrome
ER doctors everywhere:
Japanese design firm Kenji Abe has designed a glass beer bottle that you can stick into the sand on the beach
My mental health assessment interview for SSD is August 1st. Any of you who were able to successfully acquire SSD: what’s your advice for how I should go about it?
Does anyone know when we’re supposed to get results from the RECOVER IVIG study for #LongCovid?
I’m quoted in this article about the impact of Medicaid cuts in the near future. I wish my disabled rage came out more americanbar.org/groups/diversi…
Please give to help Daryna get IVIG treatment for #MECFS and myasthenia gravis!
Friends, I need your help! I’m a 28yo living in a war zone in easern Ukraine with #severeME and #MyastheniaGravis My breathing’s getting worse. I was prescribed IVIG, which is crazy expensive. Last time IVIG HELPED ME PLEASE REPOST OR DONATE bit.ly/40iQqgM
Is it normal for very severe PEM lasting for 16+ days? Please retweet for better reach. #SevereME
My first SCIG infusion went really well. The mast cells stayed calm. I napped afterwards but when I woke up, my brain felt the most normal it’s felt since getting sick. My nervous system just feels really calm… wonder what tomorrow will be like.