CSF Leak Association

@csfleakuk

The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.

Scotland, England, Wales & NI

Joined April 2016

826Following

931Followers

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CSF Leak Association@csfleakuk · Jul 18

Over on our Instagram, Facebook, & LinkedIn (links in bio) you can view the full set of the graphics. For further information - including more details around what a CSF Leak is, methods of donation, and the link to our Shop, please check out our website: csfleak.uk

csfleakuk's tweet image. Over on our Instagram, Facebook, &amp; LinkedIn (links in bio) you can view the full set of the graphics.
For further information - including more details around what a CSF Leak is, methods of donation, and the link to our Shop, please check out our website:
csfleak.uk

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CSF Leak Association Retweeted

Spinal CSF Leak Foundation@spinalCSFleak · Jun 29

We are back with updates from Day 2 of the 2025 Intracranial Hypotension conference in Amsterdam, with photos of the talk slides courtesy of our Board members, Vice-President Kyle Spawn and Isaac Brodsky, who were able to attend in person.

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CSF Leak Association Retweeted

Marcel Maya@marcelmaya · Jun 28

The Impact of #SIH “not just headaches” by Prof Manjit Manharu at 2025 Intracranial Hypotension Conference ⁦@CMECedarsSinai⁩ ⁦@spinalCSFleak⁩

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CSF Leak Association Retweeted

St Eds Cathedral@stedscath · Jun 1

From 1 June, the Cathedral tower will be lit blue all week for @csfleakuk - a charity working to raise awareness of cerebrospinal fluid (CSF) leaks. More here: csfleak.uk #leakweek2025 #leakweek #csfleak #csfleakassociation

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CSF Leak Association@csfleakuk · Jun 3

Free 🔓 article - Clinical Features & Diagnosis of Spontaneous Intracranial Hypotension The top article in this list and absolutely worth a read ⬇️ journals.lww.com/continuum/page… 💧#spinalCSFleak #leakweak #CSFleak #SIH #NeuroX #CSFDisorders

CContinuum: Lifelong Learning in Neurology@ContinuumAAN · Jun 3

The June Disorders of #CSF Dynamics issue, guest edited by Dr. Jeremy Cutsforth-Gregory, is now available on hubs.la/Q03qpm7Y0. @JCGneuro @LyellJ @AANMember #neurology #NeuroTwitter #MedEd

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CSF Leak Association@csfleakuk · May 31

🚨 ONE WEEK TO GO! Join us on 7th June at 3 PM as Dr. Ayman Qureshi shares expertise on blood patching techniques for spinal CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFLeak #StandUpForCSFLeakers #Webinars #SIH

csfleakuk's tweet image. 🚨 ONE WEEK TO GO! Join us on 7th June at 3 PM as Dr. Ayman Qureshi shares expertise on blood patching techniques for spinal CSF leaks. Still time to register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFLeak #StandUpForCSFLeakers #Webinars #SIH

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CSF Leak Association@csfleakuk · May 16

🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleaks

csfleakuk's tweet image. 🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFleaks

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CSF Leak Association@csfleakuk · Jul 22

Hello! Apologies for the delay in responding to this. If this question hasn't been revolved, do you want to email me (Aimee Wilson, Marketing Trustee) and I'll get this sorted for you...? [email protected] Thank you so much for your dedication to the cause

�🅚🅐🅨 💜💦@Assidens · Jul 21

Hi there, I appreciate you are all volunteers🙏 I was just wondering what's the best way to contact you regarding membership renewal?

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CSF Leak Association@csfleakuk · Jul 21

Our FAQ's... Answered! We aim to provide clear and concise information for these FAQ’s, but our answers are general in nature, so it’s important that you consult with a medical professional for personalised advice. For more in-depth answers: csfleak.uk/resource/frequ… #csfleak

csfleakuk's tweet image. Our FAQ's... Answered!
We aim to provide clear and concise information for these FAQ’s, but our answers are general in nature, so it’s important that you consult with a medical professional for personalised advice.
For more in-depth answers:
csfleak.uk/resource/frequ…
#csfleak

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CSF Leak Association@csfleakuk · Jul 10

Your Experience Matters! @NICEComms want to hear from those who have had a Transvenous Embolization for treating CSF venous fistula associated with spontaneous intracranial hypotension to guide future use of this treatment: nice.welcomesyourfeedback.net/s/IP1996More More info below! #CSFLeaks

csfleakuk's tweet image. Your Experience Matters!
@NICEComms want to hear from those who have had a Transvenous Embolization for treating CSF venous fistula associated with spontaneous intracranial hypotension to guide future use of this treatment:
nice.welcomesyourfeedback.net/s/IP1996More
More info below!
#CSFLeaks

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CSF Leak Association@csfleakuk · Jun 9

📺 AVAILABLE NOW! We're delighted to announce that webinars 5 and 6 in our CSF leak series are now available to watch on demand on our website or YouTube channel. 👉🏻 csfleak.uk/webinars #CSFLeakAssociation #standupforcsfleakers #csfleaks #webinars #SIH

csfleakuk's tweet image. 📺 AVAILABLE NOW! We're delighted to announce that webinars 5 and 6 in our CSF leak series are now available to watch on demand on our website or YouTube channel. 👉🏻 csfleak.uk/webinars

#CSFLeakAssociation
#standupforcsfleakers
#csfleaks
#webinars
#SIH

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CSF Leak Association@csfleakuk · Jun 9

🔬 Research scientist Bela shares why patient registries are game-changers for CSF leak research. 💝 Support our research efforts with a donation: ow.ly/AJEF50W6h2h #CSFLeaks #MedicalResearch #PatientRegistry #ResearchMatters #RareDisease #ScienceForGood

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CSF Leak Association@csfleakuk · Jun 9

🩺 Watch Bern, our Trustee, explain why a patient registry is crucial for CSF leak patients. 💝 Donate today: ow.ly/SUNs50W6gsC #CSFLeaks #PatientRegistry #MedicalResearch #RareDisease #CSFLeaksAssociation

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CSF Leak Association Retweeted

National Library of Ireland@NLIreland · Jun 4

💙 We're lighting the @NLIreland in blue to raise awareness for #CSFLeakAwarenessWeek, an annual event held from June 1st-7th, 2025. This week aims to help people understand the condition, recognise symptoms, and access timely diagnosis and treatment. @opwireland #LeakWeek2025

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CSF Leak Association Retweeted

Brighton Palace Pier@BTNPalacePier · Jun 2

We are lighting up blue! Clare Sargeant from CSF Leak Association explains the importance of finding out about this little-known condition csfleak.uk ⁦@csfleakuk⁩

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CSF Leak Association Retweeted

Mark Mamlouk@MarkMamloukMD · May 29

Excited to share our new research paper showing how decub CTM can identify the dural tear in extradural arachnoid cysts to aid in surgical repair. We also highlight several similarities with lateral CSF leaks & hint of a possible spectrum. @Niklas_Luetzen ajnr.org/content/early/…

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CSF Leak Association@csfleakuk · May 3

🚨 ONE WEEK TO GO! Join us on 10th May at 3 PM as Dr. Katharina Wolf shares expertise on symptom management in SIH and prognosis for CSF leak patients. Still time to register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleak

csfleakuk's tweet image. 🚨 ONE WEEK TO GO! Join us on 10th May at 3 PM as Dr. Katharina Wolf shares expertise on symptom management in SIH and prognosis for CSF leak patients. Still time to register 👉🏻 csfleak.uk/event/webinar-…
#CSFLeakAssociation #CSFleak

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CSF Leak Association@csfleakuk · May 1

🗓️Save the date! Leak Week 2025 happening 1st to 7th June 2025. #leakweek2025 #leakweek #csfleak #csfleakassociation

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