Spinal CSF Leak Foundation

It's the end of #leakweek & duradash®! We're thrilled to have met our goal of raising $20,000 to further our mission and fund research, education, and awareness of spinal CSF leak. We also had 15 landmark light-ups in the US, & our leakweek slides were shared far & wide!

🧠 World Brain Day 🧠 On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH

“A discogenic microspur is a common incidental finding and may be found in almost one-third of the general population. The length of the culprit microspur and the diameter of the spinal canal are distinct morphologic characteristics for type I associated CSF leaks."

An INCREDIBLE #spinalcsfleak conference in Amsterdam! So much knowledge sharing, fresh ideas, hard hitting talks, controversies! introduction of @isscl & of course catching up with colleagues & dear friends. Thank you for a fantastic weekend! @WouterSchievink @PeterGKranz

Below is Dr. @WouterSchievink’s talk from the Superficial Siderosis Research Alliance’s annual symposium this past June, presenting on surgery in superficial siderosis:

Grateful for a ⁦@CMECedarsSinai⁩ well-run 2025 Amsterdam CSF leak meeting. An impactful Royal patient testimony and call to action, thought provoking scientific presentations and posters, introducing the ⁦@issclsociety⁩, and ⁦camaraderie ⁦@spinalCSFleak⁩