Wenddy 1
@Wenddy1234
chronic illness, parotid cancer looking to get better somehow someway #fuckcancer #Dysautonomia #postviral 😥 #complex patient
This thinking drives why @CODA_research is developing a mechanical & non-mechanical study around craniocervical instability (#CCI). Could instability lead to these symptoms or vice versa? These are some of the questions we urgently need to answer. #Neuroimmune #Dysautonomia
We have been rationing healthcare services in BC for many years but the rationing is getting exponentially worse. We are now rationing "essential" services that used to be available in a timely manner. We are limiting access to primary care, speciality care, diagnostics,…
I have treated over 40,000 patients since the 1980s, and I have seen medicine change from a compassion-based profession into a corporate greed-driven business.
Patients ask "when will I get a hospital bed and out of ER" and I politely explain I have no idea. That's because Ontario has learned to do with less. "The current situation is not sustainable" said the Ontario Hospital Association. I agree. By @egpayne ottawacitizen.com/news/ontario-h…
The BC Conservatives are raising alarm bells on emergency room wait times, saying thousands of people are giving up and leaving before they see a doctor. globalnews.ca/news/11303435/…
🚽💰 Would you pay $1,000 a month just to pee? Thousands of Canadians do—because intermittent catheters aren’t publicly covered in Ontario. Paralyzed, injured, disabled… It doesn’t matter. People are forced to re-use catheters—risking serious infections—just to survive. 🛑…
New FOI documents re: B.C.'s #MAiD Oversight Unit highlights need for public, transparent monitoring bccatholic.ca/news/catholic-…
Daily Dose of Dismissive Doctoring At birth: “We raised concern to many different doctors and nurses, including the pediatrician" 6 1/2 weeks later--Baby was in end-stage heart failure with dilated cardiomyopathy & needed a heart transplant to survive. people.com/newborn-grunts…
📈Nearly 142,000 people left BC's emergency rooms without receiving care between 2018 and 2024 - a huge increase. 🤯The Ministry of Health seems to think that's not a big deal. 🏥Something has to change. globalnews.ca/news/11303435/… #bcpoli
The Triad That Traps: PEM, Orthostatic Intolerance, and Brain Fog In ME/CFS and Long COVID, these domains drive the greatest morbidity. Mechanistically distinct from fatigue or pain, they better predict loss of function and treatment failure if not directly addressed.
What’s been your biggest frustration when trying to find the right provider? 👇 #Hypermobility #EhlersDanlosSyndromes #ChronicIllness #PatientAdvocacy #BendyBodiesPodcast #PosturalOrthostaticTachycardiaSyndrome #MCAS #InvisibleIllness #MedicalGaslighting #ChronicPain
In one small study on patients with hEDS and hypermobility spectrum disorder (HSD), 36% reported experiencing brain fog often, while 33% reported it sometimes, another 20% said rarely, and only 10% said they never experienced it. It is so common in our community.
New study (described in thread below) shows 2 yrs out #LongCovid still had autonomic imbalance, vascular dysfunction & exercise intolerance. I'm assuming the same/similar is true for a large segment of the #Sjogrens population. ⬇️⬇️
Sympathetic neural overdrive, vascular dysfunction, and diminished exercise capacity in patients with long COVID-19: a long-term study of cardiovascular sequelae(2 years) 🔥Small but very interesting study, confirming their earlier 3 months LC findings! ➡️"In the present study,…
“We are still caught up in an unresolved health care scandal, increasing emergency room wait times & increasing numbers of patients leaving emergency rooms without being seen. & there's no proof that tearing apart Alberta Health Services has helped…” rmoutlook.com/vox-populi/let…
Thank you all so much! 💙 Your amazing efforts impact ME patients not only in the UK, but globally too. Sending each of you hugs from Canada. 🇨🇦
Pet scans are often needed to determine appropriate cancer care. Considering rates of cancers are increasing in BC, everyone deserve equitable and timely care. Centralisation of services limits access to care and creates have and have not communities.
Another Cancer announcement in Kamloops but complete disregard for concerns raised by Mayors and Chiefs across the region demanding the #Kamloops Cancer Centre include a PET CT scanner like all the others in BC.Eby thinks a under designed Cancer Centre is appropriate for Kamloops
Most have no prior history of mental illness. Most were busy doing life. They are the epitome of Life, interrupted. By now we could have found a test&treatments. We have the knowledge. We are close. The plan should be about this. Finding causes&treatments asap.
It’s nearly always the same. Person going along fine through life. Person gets viral infection. Person expects to get better. Does not get better. Keeps trying to return to school/work/uni. Keeps trying to exercise.They don’t get better. They are then labelled as mentally ill
It’s so strange imagining people with fully functioning bodies. It stuns me how much a healthy person can accomplish in a day. Hearing my aunt talk about running errands, working, and traveling exhausts me just to think about. It scares me how foreign the idea seems.
Video of a Lone Star tick attached to me earlier today. I thought it was a brown skin tag then I saw the legs when I magnified it. I hope I do not get Erlichia or STARI! Our hose is right in front of a woods.