Katy B

@KatyBruce108

Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://www.dialogues-mecfs.co.uk/videos #pwME

Joined January 2013

6KFollowing

6KFollowers

Pinned

Katy B@KatyBruce108 · Feb 27

Wonderful @oonagh_cousins reading my words for me as, due to severe #ME, I'm not able to do this myself. @AshleyDalton_MP @wesstreeting we need you to hear every #pwME who's doing everything possible to ask you to #FundThePlan for #ME

OOonagh Cousins@oonagh_cousins · Feb 27

A message from the wonderful @KatyBruce108 , read by me. (Now posted with subtitles) #FundThePlan @ThereForME_UK

156

5.0K

Katy B Retweeted

Channel 4 News@Channel4News · 17 h

Doctors are to be given training in better ways to diagnose and treat people with ME - as part of a long delayed action plan that's finally been published. The debilitating condition with a range of symptoms including severe exhaustion and constant pain, affects around 400,000…

141

12.0K

Katy B Retweeted

Paul Keeble ME/LC@PaulRKeeble · 13 h

The main danger in the ME/CFS delivery plan of something getting worse is the local healthcare support model. This will mean a nurse with 30 minutes eLearning being the only contact and a loss of referrals to specialists in hospitals. It could be a strategy to deny care.

1.0K