Paula Knight

First attempt at #TheNailTest According to the diagram, this matches 'tortuous and dropouts' and maybe meandering. What does that mean? I recently finished a year on Apixaban which gave me a bit of an improvement. #pwME

#LizKendall wants you to work until you’re 72. I’m not sure people are grasping the enormity of this. She doesn’t want you to get your full pension (the lowest in the West) until you’ve reached 72 years old. Wake up people. FFS.

We now have 300,000 people signed up and the establishment is clearly frightened. Westminster is broken, but the real crisis is inequality: just fifty families now own more wealth than half the population. Let’s change that together. Join us: yourparty.uk

📢 Our Campaign Guide is out! It deals with common media traps that we need to know how to deal with 🗣️ Part One covers the ‘Bait & Switch' tactic: ‘Its not ALL in you Head But…’ Easy-to-read download incl 💌 Help shift the paradigm and share away! longcovidadvoc.com/post/not-all-i…

Completely stuffed it today Connections Puzzle #775 🟩🟦🟦🟨 🟦🟦🟦🟨 🟩🟦🟦🟨 🟩🟦🟨🟨

I ate a whole egg today. Waiting to find out if gallbladder accepts the egg. I've been fine with eating half a boiled egg at breakfast everyday so far. This wild exciting life 🤞

It's time for a new kind of political party - one that belongs to you. Sign up at yourparty.uk.

Not bad! Connections Puzzle #774 🟦🟦🟦🟦 🟨🟨🟨🟨 🟩🟩🟩🟩 🟪🟪🟪🟪

My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance

An entire population could be facing erasure. Israel has crossed red line after red line in Gaza. It's time for every single one of us who’ve been horrified by the events to speak up. I have joined the Red Line for Gaza. Will you? oxfam.org.uk/get-involved/c…

Today I was told that if I can’t cook simple meals for myself I should be institutionalized That people on disability should not be allowed to access “luxuries” like food delivery services because they’re unhealthy & expensive This is eugenics. Feeding oneself is survival 🧵

I am not okay If anyone comes in the comments justifying #starvation of babies - you are not welcome here. Check your humanity. A deliberate man made famine. A deliberate ethnic cleansing Please keep posting, keep sharing, keep talking, keep petitioning to your leaders and MPs…

My Etsy shop is open again!! If you're looking for unique gifts ideas, please have a look around or repost. Thank you 💜 #ElevensesHour #EarlyBiz #Mhhsbd #CraftBizParty craftymissbcrafts.etsy.com

Please sign ✍🏼 and share 🙏🏻 Savannah is in a UK hospital, she has very severe ME complicated by paralysing pain. She is suffering from neglect that has caused infections, and under threat of discharge to an FND service (dangerous for pwME). change.org/p/save-savanna…

A society that forces unpaid carers to hold up signs just to ask for rest is a society that’s failing. Sleep isn’t a luxury. It’s a basic human need. Why is no one in government calling out this abuse? #ProtestFromHome #GiveCarersABreak

The Universal Credit Bill has passed. The Motion of Regret did not. I am heartbroken. We got powerful truths spoken in the Lords which may help later in legal and public fights. But.... What is this thing called Labour. Not something I morally recognise Love to all x

While the universal credit bill passed in the lords, I am however so proud of how hard we all campaigned to make this bill much more watered down than it could’ve been. If you’ve been involved even a tiny bit I hope you still know you made a difference #TakingThePIP

I haven't read the delivery plan yet because I already feel hopeless. Is it going to make me feel any better as a 56yr old severe #pwME stuck in bed for 7 years straight?

I've started reading the delivery plan and I'm irritated. It uses 'feel' - how we feel we've been treated etc. No - how we have actually been treated. Facts not feels #pwME

Delighted that the Final Delivery Plan on ME is finally available 👇🏽 Now to look at the detail… gov.uk/government/pub…

🚨 THE BIG LORDS REVIEW OF THE UNIVERSAL CREDIT BILL IS TODAY 🚨 Quite a few Peers have told us they’ve been inundated with our emails—in the best way. 🧡 Incredible work, everyone. Now we hope for long, powerful speeches—and that the motion of regret passes. 🤞 #TakingThePiP