NickyProctor

@wesstreeting @AshleyDalton_MP I used to teach & research @leedsbeckett Now I can't think clearly enough to write up my #PhD or tolerate noisy groups. The Delivery Plan for ME is an opportunity to invest in our future. Without funding it's no plan at all! #FundThePlan

- The study, published in Nature Medicine, uses AI to analyze multi-omics data from patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). - Researchers collected blood samples to measure 48 clinical features, 443 immune cells and cytokines, and 958…

It’s very interesting and exciting to see that Prof. Lipkin’s preprint talks about potential alterations in extra cellular matrix. Our work shows beyond doubt that Fibronectin, the key component of ECM is altered in ME/CFS & is a key player linking autoimmunity and inflammation.

Karen, Gigi, Dill... How many more severe #MyalgicEncephalomyelitis (M.E.) patients are currently receiving substandard care in an NHS hospital? #MECFS

The NHS must take measures to STOP Dill deteriorating - Sign the Petition! change.org/p/the-nhs-must… via @UKChange

Please sign ✍🏼 The level of neglect Dill and other Very Severe ME patients are experiencing in NHS care is unconscionable. Infections, bed sores, left lying in urine for goodness sake. That’s aside from the ME specific harm being done @tessamunt 😪💔

Please sign. NHS again ignoring the needs of those with severe ME, causing further deterioration & not putting in place care support that Dill needs to be discharged chng.it/sdhbhmtfqX

Google Translation of: “Statement from the German Society for ME/CFS on the statement of the German Society of Neurology of 22 July 2025” www-mecfs-de.translate.goog/statement-zur-… #MEcfs #CFS

DWP research, commissioned to gain an understanding of the ways in which PIP claims journey affects claimants who are predisposed to experiencing anxiety, has highlighted that the PIP journey itself is a significant source of anxiety. Read the story here: disabilityrightsuk.org/news/claiming-…

Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS medrxiv.org/content/10.110… Co-authored by some of the biggest names in the ME/CFS world in the US #MEcfs #CFS 1/

📢 Our Campaign Guide is out! It deals with common media traps that we need to know how to deal with 🗣️ Part One covers the ‘Bait & Switch' tactic: ‘Its not ALL in you Head But…’ Easy-to-read download incl 💌 Help shift the paradigm and share away! longcovidadvoc.com/post/not-all-i…

Looks like it's going to be a beautiful weekend in the UK. If you want something free to do, why not take a trip to London or Cambridge and do one of our walks linked to the history of Economics. You'll learn a lot & you can enjoy drinks along the way. open.spotify.com/show/44pI1bcAK…

7 in 10 PIP appeals won on the same evidence @DWPgovuk already held | Disability Rights UK share.google/ZrY6o8SQg6fZUx…

My partner has asked me to share this poem he wrote for a fellow Very Severe ME-sufferer. It's designed to be read just 2 words at a time, whenever able. I think you could change the name to yours if you wanted it to be your poem too! 💙

It is with sadness that ME Research UK learns of the death of former CMO Sir Kenneth Calman. In July 1998, he launched process which resulted in "A Report of the CFS/ME Working Group: Report to the Chief Medical Officer of an Independent Working Group" tinyurl.com/yuxwzpv8

Listen below to Dr Charles Shepherd (@MEAssociation) and Janet Sylvester (@meactionscot) talking about the DHSC Delivery Plan on Radio Scotland this morning #MyalgicE #DeliveryPlan #DepartmentOfHealthAndSocialCare #MyalgicEncephalomyelitis

Last week, the first meeting of ME Research UK’s ‘Researcher Circle’, aimed (initially) at PhD-students working on projects funded by ME Research UK, took place virtually. Read more about what was discussed in the session, and what the students thought: tinyurl.com/4ayja4m2

Handing in a petition to the House of Commons for economic sanctions, to cease all arms sales to Israel and to stop the genocide in Gaza. #York #Gaza #Petition

Dr Charles Shepherd (@MEAssociation ) and Janet Sylvester (@meactionscot ) spoke to BBC Radio Scotland about the government’s new ME/CFS delivery plan. youtu.be/FtRQe_EYxvA?si…

The BMJ @bmj_latest has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…

I really want to help awareness advocacy for Severe ME Day (August 8), but I have very limited energy. If you know of some good campaigns to back or stories to share, please reply below 👇 #SevereME #SevereMEAwareness