davidtuller

In this study, researchers who believe the "chronicity rhetoric" inhibits healing string together lots of quotes and opinions from other researchers who believe "chronicity rhetoric" inhibits healing. Not very convincing!!! But I'm a crowd-funded academic, so what do I know???

“The inquest found in its preparation was that there is no expertise anywhere within the NHS, and this plan is not going to provide any.” — Sarah Boothby, talking about the new ME/CFS delivery plan on BBC 5 Live Breakfast

Sean O’Neill on Times Radio talking about the new government delivery plan for ME/CFS “I’ve never seen a plan that lacks detailed quite such as this. I think it you couldn’t really call it a plan at all, it’s a kind of wish list.”

Really need to hold this woman, who lost her child to ME, as she speaks truth to the nation. She literally has nothing else to lose and is speaking only to help others

“We didn’t even see his eyes for over a year.” “It was like dealing with someone almost in a coma.” Clip from Channel 4 News: Nick Benton (@BentonNick18437) and his family on life with severe #MECFS — as the government finally releases its delivery plan.

Today we’re celebrating a year to the day since @KarenLHargrave & @GoreLloyd launched #ThereForME! We had a busy day yesterday responding to the Delivery Plan release. It’s clear how much more our campaign has left to do - but today we’re reflecting on what we’ve done so far.

The BMJ @bmj_latest has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…

A silver lining of today is the powerful media coverage we've seen. Brilliant voices building a new narrative on ME, one that reflects the true reality of this illness. Crucial for real progress. Legends @KarenLHargrave @BentonNick18437 @TimesONeill @swastrosarah @BinitaKane

Another coroner in England issues "report to prevent future deaths" in case of ME-related death. virology.ws/2025/07/21/tri…

Oxford scholars say biomedical research requirements for evidence help "construct" what they call "chronicity rhetoric" around fibromyalgia. That means biopsychosocialists aren't allowed to make whatever "recovery" claims they want. Hm. virology.ws/2025/07/18/tri…

Always worth reading ME/CFS Skeptic's posts.

1) The Dutch research agency ZonMw announced a list of new Long Covid studies that will receive funding. The total budget was approximately €6 million. There are some interesting projects that will also be relevant to #MECFS.

A study from Japan in a BMJ journal found that 100 of almost 300 Long Covid patients who had neurological exams showed "positive signs" of functional limb weakness. The problem? Only 16 of those 100 patients reported actual limb weakness during the exams: virology.ws/2025/07/15/tri…

Sander Zurhake, a journalist with NOS, the Dutch broadcast organization, recently reported on the potential harms of psycho-behavioral treatment for kids with ME/CFS and received some pushback. This interview has had 1000+ views so far: youtube.com/watch?v=WFxTpu…

Paul, you obviously have no concerns that the lead authors of the fraudulent PACE study were in bed with health/disability insurers for years and did not disclose this to patients in the study--thereby violating their promise to adhere to the Declaration of Helsinki.

The article complains that the Chrysalis Effect--a mind-body program with no evidence of benefit beyond anecdotes--was barred from making claims of "recovery" in promotions. The article attacks this evidentiary requirement as biomedical "hegemony." (Disclosure: I'm crowdfunded!)

As the crowd-funded individual you're referencing, I find it interesting that the article dismisses the need for actual evidence of efficacy by arguing that complex interventions can't be tested well in trials. So practitioners should be able to make "recovery" claims anyway.

In this study of "functional limb weakness" (FLW) among almost 300 Long Covid patients, 100 had "rule-in" FLW signs. But only 16 of those 100 reported limb weakness as symptom. How can they have FLW without actual limb weakness? Hm. neurologyopen.bmj.com/content/7/1/e0…

Sander Zurhake, a journalist with NOS, the Dutch broadcast organization, recently reported on the potential harms of psycho-behavioral treatment for kids with ME/CFS and received some pushback. Here's my talk with him: youtube.com/watch?v=WFxTpu…

Sander Zurhake, a journalist with NOS, the Dutch broadcast organization, recently reported on the potential harms of psycho-behavioral treatment for kids with ME/CFS and received some pushback. Here's my talk with him: virology.ws/2025/07/07/tri…