Kags ❇ 😷 #pwME 🏴
@Klang764
M.E (not cfs) for 27 years. Mainly here for M.E advocacy,disability rights & Scottish independence.
"But after 25 years I got bored of it and thought I'd try something new"
I’ve spent 25 years fighting for a fairer society and against poverty, inequality, and discrimination and intolerance of all forms. That’s my “agenda”. Always happy to discuss with members in person if you let me know who you are.
Hypocrisy of the highest order @stephenctimms
I hate it when the DWP is needlessly secretive with disabled people and fails to consult properly! If only you were to become Disabilities Minister Sir-how different things would be. 🤧
Maybe the @DWPgovuk would like to divulge how many billions they've cost everyone in sticking to a psychological view of #myalgicencephalomyelitis, affecting subsequent, similar illnesses? Investigate the DWP.
Our blog on the #DWP WCA training. 'This situation creates a damaging policy conflict where one government department (the DWP) is actively undermining the expert clinical guidance championed by the Department of Health and Social Care (DHSC).' stripylightbulb.com/2025/07/21/cha… #PwME
"@NHSuk must take measures to stop Dill deteriorating" @AshleyDalton_MP @wesstreeting severely ill #pwME are still being forced to petition to get the care they urgently need & are entitled to. Please sign & share ✍️🔁 chng.it/vXCgqMW7WF
U F O - Unidentified Fawning Object
Keir Starmer is appointing a former Sun editor to a top government comms role, while watering down the Hillsborough Law. Bootlicking the Murdoch press, betraying the people of Liverpool and insulting every campaigner for justice. Justice For The 97.
Keir Starmer promised people in Liverpool he wouldn't speak to The Sun. He now not only writes articles in The Sun but has just appointed a former Sun Editor to a senior Government communications role.
#pwME
The NHS must take measures to STOP Dill deteriorating - Sign the Petition! change.org/p/the-nhs-must… via @UKChange
Sweet Jesus, another young woman with very severe ME is being mistreated and neglected in an NHS hospital. What is the point of new NICE guidelines, multiple coroners' reports and a DHSC Delivery Plan if HCPs are just going to continue harming people with #MECFS? @wesstreeting
Please sign. NHS again ignoring the needs of those with severe ME, causing further deterioration & not putting in place care support that Dill needs to be discharged chng.it/sdhbhmtfqX
‘Not All in Your Head’ Think again. #ME A campaign guide for the bait and switch tactic . Brilliant new Substack from @LongCovidAdvoc open.substack.com/pub/longcovida…
“The illusion of help is the greatest cruelty of all.” They promised compassion. They delivered cuts. #WelfareReformBill #TakingThePIP
That’s @MEAssociation @actionforme especially. You’ve got a whole month to have statements and have them ready to go when they say it’s just a small part of the BPS puzzle etc and we shouldn’t just narrow our focus to one aspect as the real driver is likely psychological. #ME
Could I suggest that in the lead up to @DecodeMEstudy announcing results & the predictable carefully coordinated backlash from the BPS cabal via the SMC, those who will be representing #pwME as they engage with the media study this guide in order to be well prepared.
Regrettably, ‘medical gaslighting’ is experienced by many people with ME/CFS. An article published in Medscape looked at the reasons behind medical gaslighting, and provided tips to help health professionals avoid it. Read more here: bit.ly/44Ze974
Tomorrow's front page📰 Convicted US felon to arrive in Scotland
Check this out - The National, a paper that speaks truth 😆😆😆I certainly love to see it. Scotland, you rock!
This is what my daughter’s lost teddy looks like. She's lost without him. We were at Slough Premier Inn on Windsor rd and we took the train from Slough to Whitechapel on the Elizabeth line just before 10am. The train was going to Abbey wood. @TfL @premierinn #FindBumbleBear