Jo Greer
@DrJoGreer
Educational Psychologist. Personal account. All views my own. http://theredtreeandme.substack.com
Especially after yesterday, a MASSIVE shoutout to @ABrokenBattery for capturing so many of these moments! 🙏 Total public service to the ME community and we’re very, very grateful.
We’ve been working to change narratives around ME and Long Covid. Narratives can be notoriously difficult to shift but we’ve been chipping away at them over the past year. Part of this has been getting our team out in the media. We’ve also supported others to tell their stories
My friend, Savannah, a 23yo woman with severe ME/CFS, is currently in a London hospital being denied the care she needs after being told to seek psychiatric help instead. Please help - sign the petition. change.org/SaveSavannah @MEAssociation @MEActNet @WorldMEAlliance
The BMJ @bmj_latest has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…
Sarah's excellent response should be coming from the UK medical establishment, not a grieving parent. Shame on you @bmj_latest
The stigma is how mental health diagnose mental health disorders on those with ME and PEM. It is wrong for obvious reasons mainly because they give you the wrong treatment, which is not helpful Gigi is back in hospital and suffering as she did 6 years on again we have stigma
Well 2019 I reported on Gigi and the unfathomable treatment she underwent. The stigma that was reported in the ME Plan was not defined I would like to take time today to show what the #MEcommunity define the stigma as @wesstreeting are you listening?
I am not okay If anyone comes in the comments justifying #starvation of babies - you are not welcome here. Check your humanity. A deliberate man made famine. A deliberate ethnic cleansing Please keep posting, keep sharing, keep talking, keep petitioning to your leaders and MPs…
I can point to tests that show the profound physiological nature of my child’s illness. So could the clinicians who tried to take her away from us. But still they tried, at great cost to my daughter, and our family. We are a pattern, not an anomaly. There is unthinkable…
Clip Sarah Boothby on todays BBC Breakfast segment on the UK government's new #MECFS Delivery Plan “I was accused of fabricating Maeve’s symptoms right up to the point in which she died. Two days before she died, we were subject to safeguarding investigations.”
To think that we waited so long for this plan. How the hell am I meant to reassure my daughter with #ME that she won't end up dying as her sister did if this is the best they can come up with after all this time.
Some of the press have focused on NHS staff being trained on ME/CFS. This is not accurate. The delivery plan is only going to promote its optional (bad) eLearnings. There is no training plan to produce specialists or even have the NHS staff broadly aware of ME/CFS at all.
This would be a gamechanger. My daughter has lost 4 yrs of her childhood. A vague hope of a lottery-win of spontaneous recovery is all we have. The current plan changes nothing for those w/ severe ME. We need more than words. We need action. @AshleyDalton_MP @wesstreeting
Dr Alexis Gilbert has outlined what the Final Delivery Plan for ME/CFS *should* have looked like (on IG): instagram.com/p/DMa8sjPMzd2/
This write up from @Channel4News is worth a look - more on @BentonNick18437’s story, who has done such an awesome job speaking out 💪
ME Delivery Plan: will it make a difference? channel4.com/news/me-delive…
We’re a small team and we can’t do it all. That’s why building a coalition is part of our strategy. We think change for people with ME and Long Covid will be the result of a diverse coalition calling for action from many directions. Some of our allies so far 👇
Karen Hargrave - @KarenLHargrave on BBC The World at One talking about her husband, James with severe #MECFS and the new government delivery plan which lacks any concrete tangible solutions, also includes a representative from BACME. youtu.be/R6AReGLoy4o?si…
Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."
BBC Breakfast segment on the UK government's new #MECFS Delivery Plan (12 mins) Features Sarah Boothby and Dr Binita Kane, who warn the plan doesn't go far enough and won’t lead to immediate change for patients. youtu.be/GZbSrdtiA9k?si…
BBC Breakfast segment on the UK government's new #MECFS Delivery Plan (12 mins) Features Sarah Boothby and Dr Binita Kane, who warn the plan doesn't go far enough and won’t lead to immediate change for patients. youtu.be/GZbSrdtiA9k?si…
#pwME, @Bridget_OShea calling out those who are responsible for 'the greatest medical scandal of the century' doing what ever she could to let the world know what's happening to patients with #ME while she was able to Now she's also gone, yet another tragic early death from #ME
More from @Bridget_OShea, who died last week, on Substack in 2023. I wish, so much, that those who hamper real research and education about #ME would acknowledge that they are responsible for an ever growing list of deaths from the illness.
After 3+ years of waiting the Final Delivery Plan for ME is being released today. Our comment 👇
Thank you @KarenLHargrave of #ThereForME for commenting so strongly on the DHSC Plan for #ME published in The Times today.
Great interview. The parents and the kids that end up with PTSD after FII investigations, so much harm done, all completely avoidable.
Really grateful to @GMB for bringing this issue to the fore. I hope @RCPCHtweets will now discuss with Professor Andy Bilson, Professor Luke Clements, Dr Fiona Gullon-Scott, Cathie Long and @emilydugan amongst many others. Time for change 🙏💜
This 'plan' changes nothing for my 18 yo daughter who is bedridden & tube-fed or the many others with severe / very severe #MyalgicEncephalomyelitis. Bottom line: No funding and some warm words after decades of neglect of #pwME. We need an NHS and parliamentarians #ThereForME
June 30 + 22… 🥳 I’m hugely relieved that DHSC is apparently publishing the Final Delivery Plan today. But it’s contemptuous that it is only being released as the long Summer Recess starts, depriving MPs of the opportunity for proper scrutiny. tinyurl.com/5zf6h89p