Beth 💙

🧵if you ever wonder what drives me to so passionately support children & young people this is it in a nutshell👇🏼✌️B is 2wks old here, I was super young, single parenting by choice, wholly unequipped for parenthood never mind life threatening complex medical needs & disabilities.

This is where MATology is taking us: an efficiencies-based structure, where children are grade-delivery units and their personal growth & happiness are redundant if they don't contribute to the higher purpose of academy plaudits.

School’s failings have cost LA half a million so far with independent specialist school transport now a large EOTAS package. D is very academically able and no behaviour issues it’s a ridiculous sum largely because school wouldn’t meet EHCP and threats of sanctions terrified her

Now told it’s just reading wrong breaths as keeps going off

Testing to dismiss? The “background “ bias bs? So after a year plus with no evidence of worms they found something else that wasn’t 🐛?!? Testing to dismiss in context with looking at the siblings other bloods over 2 years and ignored scan findings ... too low esr (too low…

I am terrified lve apparently now been told the machine maybe wrong and yet this is a child with diagnosed #EhlerDanlos with incidental findings years ago of trivial tricuspid and pulmonary regurgitation, but with circulation issues noted at the time, now with known bradycardia…

Nothing to see here @sheilaoliver16

I am speaking out because my daughter is being failed—by the very systems meant to protect and care for her. She is a disabled child with complex medical needs. She has documented bradycardia since being an inpatient with night-time heart rates as low as 35 bpm, and a…

That sounds absolutely terrifying I’m so sorry you're still going through this. It’s unthinkable that a child with those symptoms would have their monitor turned off! You shouldn’t have to be the one informing them of alerts or fighting to be taken seriously with those stats. No…

Tbf Elissa her heart was 35 beats and between 11/10 breaths during the night and that’s why she was on constant holter but her monitor has now been switched off by one of the nurses it had red beeped high and I told them, so it won’t read her heart now and that was main reason…

We sort of pushed the LA to Provide tutoring which they agreed but it’s not enough, and we are waiting to be referred to the EP trauma specialist as the bullying was too Much and the trauma is still there.

That’s why secondaries are brutal with SEND and kids that know won’t make good results, they push them out before their results get affected

Because the only indicator that matters is the progress 8 scores And that average goes up if you exclude anyone who might bring it down, Ofsted are complicit in this practice

💯 I know of another near me doing this too! I moved my son after 6 weeks and he was one of 70......in 6 weeks....imagine over years!

Thing is, it's not a strict behaviour policy It's selection by compliance SEND is expensive and bad for business, until the DfE grow a backbone and Ofsted stop regarding schools for being exclusive, big Trusts will keep gaming the system...

Nothing to see here

Frankly? It’s time parents across the country start to understand that Academies are not LA schools and what is going on inside many of these places is regressive and punitive, it’s affecting children lives and specially SEND.

itv.com/news/meridian/… 📣 Nearly 500 pupils have left Ark Alexandra Academy in Hastings in just three years — many before finishing their education. Staff say they were expected to hand out 25 detentions a week, even for things like “not walking close enough to the wall.” One…

The full FOI response can be read here: whatdotheyknow.com/request/childr…

Mid & South Essex ICB children's continence services failed to meet national standards with: – Poor early identification – No constipation or complex bladder care in Mid Essex – No non-medical prescribers – Long waits for follow-ups & reviews – Poor staffing

🧵 In an unpublished 2020 review, Mid & South Essex ICB found major failings in its commissioned children’s bowel & bladder service which have still not been addressed. This is what was uncovered through a recent FOI. 👇