parent of pugs
@senmum05
ADHDer EDSer DV survivor living my best life mummy to children all ASD ADHD
I know, this is what I find so sad 😢 I’ve just posted in another thread , I had to watch my daughter walk up & down the stairs bare footed in a busy city hospital. She was so weak & in pain but I didn’t say anything because they were very defensive. I was worried about #FII
I'm so so sorry. I hope yhis changes today, this is so wrong 💔
This looks like a classic case of diagnostic overshadowing — where serious symptoms are dismissed instead of properly investigated. The NHS knows the risks; Prevention of Future Deaths reports have repeatedly warned of the consequences. The failures in care here have been clearly…
Testing to dismiss? The “background “ bias bs? So after a year plus with no evidence of worms they found something else that wasn’t 🐛?!? Testing to dismiss in context with looking at the siblings other bloods over 2 years and ignored scan findings ... too low esr (too low…
Holy crap! 😳 what @senmum05 and her child are being put through is horrendous!
eventbrite.co.uk/e/the-national… #Disability #ADHD #autism #Dyslexia #Dyscalculia #SEND @martinimarie @senmum05 @draevans
Shocking it really is why are us parents always ignored 💔
I am speaking out because my daughter is being failed—by the very systems meant to protect and care for her. She is a disabled child with complex medical needs. She has documented bradycardia since being an inpatient with night-time heart rates as low as 35 bpm, and a…
Testing to dismiss? The “background “ bias bs? So after a year plus with no evidence of worms they found something else that wasn’t 🐛?!? Testing to dismiss in context with looking at the siblings other bloods over 2 years and ignored scan findings ... too low esr (too low…
Nothing to see here @sheilaoliver16
Incidental findings in #EDS and #POTS facebook.com/share/r/1AgeKw…
That sounds absolutely terrifying I’m so sorry you're still going through this. It’s unthinkable that a child with those symptoms would have their monitor turned off! You shouldn’t have to be the one informing them of alerts or fighting to be taken seriously with those stats. No…
Same area I believe? x.com/ElissaNoves/st…
🧵 In an unpublished 2020 review, Mid & South Essex ICB found major failings in its commissioned children’s bowel & bladder service which have still not been addressed. This is what was uncovered through a recent FOI. 👇