Anil van der Zee ©

1) OMG we did it‼️‼️ In this film for #MEawarenessmonth, five medical doctors open up about living with #PAIS/#IACC conditions like ME, #longCOVID, and chronic #Lyme. It’s a format that I believe has never been shown before, not just in the Netherlands youtu.be/J0ywwLIfH_w?si…

An exceptional study from Stanford found that lymphocytes from ME/CFS & #LongCOVID patients show elevated oxidative stress, disrupted redox balance, and mitochondrial damage. These abnormalities lead to excess energy use by immune cells, which may contribute to severe fatigue…

Words of @KarenLHargrave are so true. Over the past 3 years I've met & photographed many #pwME trapped in bedrooms, desperate for appropriate care. Info on exhibition and book tinyurl.com/58khuv8z #MECFS #DocumentaryPhotography #InvisibleIllness #ChronicIllnessAwareness

1) The Bragée clinic in Sweden published an uncontrolled study to test if intravenous saline improves symptoms in ME/CFS patients with dysautonomia.

1) 🇬🇧 In the UK, the delivery plan for ME/CFS has finally been published. Here's what it says about scientific research on ME/CFS...

I wonder why everyone is more concerned about courageous doctors prescribing off label treatments for long covid than about how we as patients are gaslit and left to rot in our beds. 1/

Really a well researched and insightful piece even dating back to 412 BCE. Well worth the read so that we don't make the same mistakes again... thinkglobalhealth.org/article/long-f…

archive.vn/MeYid Medicatie blijft uit voor kinderen met long covid: ‘Mijn lichaam doet zóveel pijn dat het niet uit te leggen is’ ad.nl/binnenland/med…

Another coroner in England issues "report to prevent future deaths" in case of ME-related death. virology.ws/2025/07/21/tri…

🟦 LongCovid 🟥 bij kinderen 🔲 opmerkelijk artikel in AD vandaag 🔲 off-label medicatie: behandeldilemma zo mogelijk nog groter dan bij volwassenen? door @Ellen_Gaalen met kinderarts Danilo Buonsenso @surf4children

ME Wetenschap Centraal - video 23/28: Rob Wüst: Bloedsomloop & signaaloverdracht Op onze site de video (met de door ons geëditte ondertiteling) podcast versie en volledig uitgeschreven transcript voor als bewegend beeld en geluid teveel voor je is. 👇 mecentraal.wordpress.com/2025/07/21/me-…

ME Science Centraal, a collab project of NMCB consortium for biomedical research on ME and patient platform ME Centraal Videos featuring Patients' Questions to Scientists Video’s 20-23: @RobWust on his project MuscleME English subs available youtube.com/playlist?list=… #MECFS

1) 🇪🇸 New study from the Spanish research group of Elisa Oltra. Previous research suggested that Sars-Cov-2 could awaken ancient retroviral genes (HERV-W envelope protein) but this study found that HERV-W ENV is increased in ME/CFS and fibromyalgia patients as well.

I had a dream about a special service for people with ME, involving sex workers who truly understand what ME entails. Of course, I was helped too. It was a beautiful dream—like a sign that something like this needs to exist! 😇😂🤘 #pwme #myalgicE #millionsmissing

🟦 ME CVS 🟥 DE CENTRALE RAAD 🟨 LIVESTREAM TERUGKIJKEN 🔲 voor wie het gemist heeft of nog eens rustig opnieuw wil kijken (duurt 20 minuten) 🔲 dat kan hier, link 👉 media.rechtspraak.nl/MediaSite/Play…

This is so sad to hear that she passed away days after this post...

1) The research team of Wenzhong Xiao took a closer look at the muscle samples from ME/CFS participants in the intramural NIH study. They analyzed metabolic pathways and found downregulation of the alanine and aspartate as well as the arginine and proline metabolism pathways.

1) Korean researchers developed a small eye-tracker that might be useful to assess fatigue. It uses CCPC (cylindrical carbonnanotube-paper-composite) sensors built into a wearable eyeglass frame to monitor eye movements and blinking.

1) Had a look at the REGAIN, a randomized trial of the supplement oxaloacetate for Long Covid. The primary outcome (Chalder Fatigue Scale) had a clear null result, suggesting oxaloacetate did not improve fatigue.

Wat geschiedkundige context m.b.t. de UWV overwinning van donderdag. Kwestie die al 30 jaar speelt! 1997 in het AD "rechtspraak lijkt roulette voor ME-patiënten" #UWVreselijk #MyalgischeEncefalomyelitis #MECVS

If you think that I (severely chronically ill) can work from my bed for a customer service because occasionally I can tweet, you must know that my responses would be the same as here because that's all I can do. Customer: I didn't receive the book I ordered Me: 💔🫂