eIisa
@mildTin
Humanity's better future: Zero chronic illness. End needless suffering. Millions with Long Covid and ME/CFS working and waiting to get our lives back.
Ok I finally set up my @wearlumia head blood flow track yesterday, have been logging data since last and using live mode today I’m a convert, this is the real deal, every #POTS and #OrthostaticHypotension patient should have this, wow is this neat and helpful!
V. excited to join the SPEAR (Spike Protein Elimination and Recovery) team with @MichaelPelusoMD @microbeminded2 @PutrinoLab @Invivyd to study whether broadly neutralizing mAb can treat Long COVID and post-vaccination syndrome subset driven by persistent spike protein.…
Madrid-based Joan B Soriano, advisor to WHO and scientific lead at Spain’s REiCOP network, is pushing for better diagnosis and care for long COVID, a complex condition with over 200 symptoms and still lacking unified clinical guidelines. thelancet.com/journals/lanre…
Fort Lauderdale scientists report salubrinal may ease ME/CFS and long COVID by reducing WASF3, a protein that disrupts mitochondria. In cell studies, salubrinal restored energy and may reverse brain fog symptoms. Human trials are still needed. cell.com/trends/molecul…
Anktiva—the BioShield for HIV—published today! Prof. Caskey (Rockefeller Univ): “What we’re most excited about is… some participants maintain low-level viremia for a prolonged time.” Next up: Long COVID trials. NK cells matter. Clear the virus! #HIV aidsmap.com/news/jul-2025/…
And that will require all of us, @ThereForME_UK included, to step up our game making the case for change. This is not about a DHSC process. It’s about real lives, people like my husband, who deserve a future & to feel that their lives matter. We won’t give up that easy 💪 (10/)
The Final Delivery Plan for ME/CFS has been released today. The full report was shared with some organisations and media outlets late yesterday. We’re waiting for it to go online. A short 🧵with some thoughts… (1/)
June 30 + 22… 🥳 I’m hugely relieved that DHSC is apparently publishing the Final Delivery Plan today. But it’s contemptuous that it is only being released as the long Summer Recess starts, depriving MPs of the opportunity for proper scrutiny. tinyurl.com/5zf6h89p
Torrance and Phoenix researchers analyzed blood from 14 long COVID patients and found SARS-CoV-2 peptides in serum extracellular vesicles, suggesting a potential biomarker for lingering viral activity. link.springer.com/article/10.100…
Recognition of chronic Lyme. It took almost 30 years to get here & there’s still a lot of work to be done, but I’d call this a win. wsj.com/health/chronic…
This is just a nice sounding factoid, in reality Humira and Enbrel are two of the highest grossing drugs in history, both for autoimmune diseases which are similar in prevalence and severity to ME
Few points from this article: Lauterbach says ME/CFS is in a pharma "death zone": - Too rare for a drug to become a mass product - Too common to charge massively as a rare disease drug "Economically, everything speaks against therapeutic research into ME/CFS for the industry"
Blocking IL23 in Crohn's disease (in particular, with guselkumab) is emerging as the possibly the most promising treatment And it all dates back to this genome-wide association study – from 2006!
GALAXI 2 and 3 trials of guselkumab maintenance in patients with Crohns disease just published 🌟Guselkumab superior to placebo and ustekinumab @TheLancet @LancetGastroHep @geteccu @sepdigestiva @aegastro ➡️ thelancet.com/journals/lance…
"Growing recognition of post-acute infection syndromes" Komaroff A. PNAS (2025) pnas.org/doi/10.1073/pn… #MECFS #MEresearch #PAIS #longCOVID