Emily Johnson (is on Mastadon and Bsky)
@emily_rj
Design, news/book edits, social media, PR, linguistics. Medical/academic research & data. Disability/accessibility in media. Patient advocate. #FBLC #EDS #pwME
❤️ Please keep RTing, QTing, engaging ❤️ The more people who see it and donate, the sooner I can continue lifesaving neurosurgical care travels 2025, 2026 at least with lots of tests, surgeries, treatments on the table Medicare, Medicaid cuts will make this even harder now 😢
So half of a bone compressing my jugular is stuck in a nerve bundle and can’t be removed without major permanent nerve damage (half is out) Neurosurgeon: I will have nightmares about this! (jokes and steroids help, my bones ruining my life stays a joke) 🧵gofundme.com/f/help-emily-g…
Please share everywhere! Please help our friend @Mae_DayJ keep @ChronicLoaf_ running for everyone to enjoy! Mae is truly a media curator legendaire who has created a 24/7 space for disabled/chronically ill people to watch movies, shows, chat or not chat. 💖❤️🦋🌈✨💖❤️🦋🌈✨💖❤️
So I'm truly hoping that with your support our work can continue on! If we can reach our Patreon goal of $2000 a month we'll be secured for the foreseeable future. Please help! paypal.com/paypalme/Chron… ko-fi.com/chronicloaf# cash.app/$ChronicLoaf Patreon.com/CHRONICLOAF
Before I found out I had stage 4 endometriosis, my doctor kept telling me I just had IBS and got mad when I saw a urogyno "behind his back". I begged for an ultrasound which he gave me but said "when there's nothing on it you have to admit there's nothing wrong with you."
Reddit is so horrifying bc you can go to a sub for people with health problems and see tons of people desperate for help, strategizing on how to be taken seriously, and then you go to a doctor sub and it's full of professionals talking about hysterical women and blue hair.
It's been more than a year since I gave up on Google Search (I switched to Kagi.com and never looked back). I don't miss it. It had gotten terrible. It's gotten worse since, thanks to AI (of course): pluralistic.net/2024/04/04/tea… 1/
🚨 Only *8 more days* before August rent is due! I need 684.35£ or $929.61! Please donate, RT ❤️ paypal.com/paypalme/SaveL… #EDS #RentFund #MutualAid #MutualAidRequest #AbuseSurvivor #DomesticAbuse #LongCovid #pwME #MECFS #MillionsMissing #POTS #MCAS #endometriosis #HousingCrisis
🚨 Only *9 more days* before August rent is due, I need 832.33£ or $1,131.18 This is an emergency, I’m at risk of homelessness, I could not survive being unhoused Please RT/engage! 🚨 My friend Annie made this Rent PayPal: paypal.com/paypalme/SaveL… GFM: gofundme.com/f/save-nevra
🚨 Only *8 days* before August rent is due! I need 684.35£ or $929.61! Please donate, share ❤️ paypal.com/paypalme/SaveL… #EDS #RentFund #MutualAid #MutualAidRequest #AbuseSurvivor #DomesticAbuse #LongCovid #pwME #MECFS #MillionsMissing #POTS #MCAS #endometriosis #HousingCrisis
The 6 largest health insurance companies reported $31 billion in profits last year. Your reminder that health insurance companies make money by charging you for premiums, and then denying your claims. That’s $31 billion in denied claims. jacobin.com/2025/07/health…
The CSA has put forward a proposed standard and if this standard is adopted, respirators will be required in Canadian health care settings by default. Your feedback can help. publicreview.csa.ca/Home/View/2256…
Americans dont care about their health as much as the wellness industry would have you believe. We care about vanity. If health was a true concern, disability wouldnt be as demonized as it is Cancer patients will tell you how they are CONSTANTLY complimented on their weight loss