Sim
@docsimsim
PhD Biochemist. #SevereME 🛌
🚨 We are in need of healthy controls for our 31 marker and RNA sequencing projects: - Must be UK based and able to travel to London (London, EC1Y 8QP) - We will pay you £50 for the effort and cover all draw fees You’ll be helping research, so very greatful! Dm or comment
I've been a parent carer to kid/s with ME for over 13 yrs. In this time we've had new NICE guidelines and now the Delivery Plan but really nothing has/seems like it will change for the better. We'll still be left pleading for care & hoping that any professional we see believes us
The main danger in the ME/CFS delivery plan of something getting worse is the local healthcare support model. This will mean a nurse with 30 minutes eLearning being the only contact and a loss of referrals to specialists in hospitals. It could be a strategy to deny care.
Israel allowing airdrops of food into Gaza is just spectacle. Airdrops are notoriously expensive and inefficient. They are no way to feed two million starving Palestinians. Only an end to Israel's effective blockade will do that -- and stop the genocide. nytimes.com/2025/07/25/wor…
For people who conflate Hamas with all Palestinians… Hamas won power in the 2006 election There have been no elections since They won with 11% of the votes of the total population 11% …and yet 100% are paying the price.
Even if it were true Hamas are stealing the aid, then the way to stop it would be to flood Gaza with food and medicine. There would then be no value to Hamas in stealing it. #c4news Either way, they should let it all in.
The BMJ @bmj_latest has not published a rapid resopnse from Maeve Boothby O'Neill's mum, Sarah, to its ME/CFS "hope" propaganda piece from members of the biopsychosocial ideological brigades. So I have posted it here: virology.ws/2025/07/23/tri…
‘The hunger first targets those with pre-existing health conditions. Said has Cerebral Palsy and has gone for 3 days surviving only on water.’ Such heartbreaking scenes from Gaza, where ‘people are neither dead or alive, but walking corpses.’ 😢 #C4News #GazaGenocide
Hi @grok, Can you give me a word to describe people who push the idea that 115 internationally renowned aid organisations telling them the same thing (Israel is causing starvation in Gaza) are ALL lying to them and that they should believe Benjamin Netanyahu instead?
Has anyone here with #severeME tried full leg compression devices, like this one? ⬇️ Would appreciate RT/repost if you can so I get eyes on this post. 🙏🏻🙏🏻🙏🏻 #MECFS #LC #MyalgicEncephalomyelitis
Clip Sarah Boothby on todays BBC Breakfast segment on the UK government's new #MECFS Delivery Plan “I was accused of fabricating Maeve’s symptoms right up to the point in which she died. Two days before she died, we were subject to safeguarding investigations.”
Clip of Dr @BinitaKane speaking on BBC Breakfast about the new #MECFS delivery plan. The plan changes nothing now. “There are no commissioned services, so clinicians can’t practice this medicine within it. That forces both doctors and patients into the private sector.”
It's partly due to BACME and the likes of Anna Gregoroski that there are NO specialist services for severe ME. Just Double speak from her.
My daughter died from ME. This new plan fails her and others like her. thetimes.com/uk/healthcare/…
Sarah Boothby on the BBC Breakfast segment about the new delivery plan "The way Maeve was treated while she was in hospital was she was constantly being referred to psychiatric services because the conception has been that ME is a mental illness. It isn't a mental illness."
BBC Breakfast segment on the UK government's new #MECFS Delivery Plan (12 mins) Features Sarah Boothby and Dr Binita Kane, who warn the plan doesn't go far enough and won’t lead to immediate change for patients. youtu.be/GZbSrdtiA9k?si…
Tell me you know nothing about severe ME without telling me you know nothing about severe ME. #severeME #Bedbound
Whether you like painting, drawing, photography, poetry or anything else - please send us your artwork which we can share this Severe ME Week. If you have an image which you think helps to raise awareness or understanding about Severe ME, please send us to:…
E Sussex NHS Trust considering trying to evict Karen from hospital which would be a death sentence. We posted an update on our petition on 20 July. To read it scroll down our petition page to UPDATES. Save Karen Gordon (…) chng.it/CGMQTDVvRb Please share. Thanks K H & M
Ridiculous take. Completely the wrong message. What this sends out is look at what they can do. It’s minimising. Should be shouting THIS IS WHAT THEY CAN’T DO! THEY NEED HELP THEY NEED RESEARCH THEY NEED TREATMENTS
Whether you like painting, drawing, photography, poetry or anything else - please send us your artwork which we can share this Severe ME Week. If you have an image which you think helps to raise awareness or understanding about Severe ME, please send us to:…
We took part in #FileOn4Investigates by @matthewhillbbc in 2017. Isla was v keen for her story to be told to help spread awareness of ME & FII. Our part is about 22 mins in. We hoped things would improve after this, 7 yrs later Isla died. #FundThePlan #ME bbc.co.uk/sounds/play/b0…
RIP 🕯️💔. I once told my brother this (via text) & he never replied. I learned 2never ever mention dire state of my health 2him again. And anyway nowadays he only messages on New Year’s Eve with a generic HNY meme. I’ve been totally erased from his mind. #SevereME #bedbound
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
There are more than enough under/unemployed GPs to replace every Physician Assistant in 1° care ASAP. They need no supervision, can write their own scripts & order ionising radiation themselves. That frees up ‘supervising’ GPs to see more patients too. Win win @wesstreeting 🙌🏼
If currently unemployed GPs replace each PA in Primary Care, there will be a great deal more than 20.8M appointments added for a safer & more cost effective solution to patients seeking medically trained help. I think @DrSteveTaylor has figures on additional appointments/GP.