Michael Gordon
@TeamKarenGordon
2/2 Heather is going to have more scans. She is keeping cheerful. Karen is having a very difficult time in Conquest hospital. ‘Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings’ petition: chng.it/CGMQTDVvRb Karen Michael & Heather
E Sussex NHS Trust considering trying to evict Karen from hospital which would be a death sentence. We posted an update on our petition on 20 July. To read it scroll down our petition page to UPDATES. Save Karen Gordon (…) chng.it/CGMQTDVvRb Please share. Thanks K H & M
Karen told East Sussex Healthcare NHS Trust are preparing to take legal action against her. We posted an update on our petition on 16 July. To read it scroll down our petition page to UPDATES. Save Karen Gordon from Dying (…) chng.it/CGMQTDVvRb Please share. Thanks K H & M
We posted an update on our petition on 15 July: Karen has been particularly poorly recently. To read it scroll down our petition page to UPDATES. Save Karen Gordon from Dying of Malnutrition and Dehydration (…) chng.it/CGMQTDVvRb Please share. Thanks Karen Heather & Michael

We posted an update on our petition on 4 June ‘More stress & no answers to our questions from East Sussex NHS; & update on Karen’s Hospital Stay’. To read it scroll down our petition page to UPDATES. chng.it/CGMQTDVvRb Please share. Thanks for your support. Karen & Michael
We posted an update on our petition on 18 May ‘Senior Nursing Management at East Sussex Healthcare NHS Trust stoop to new low’. To read it scroll down our petition page to ‘UPDATES’. chng.it/CGMQTDVvRb Please share. Thanks for your support. Karen & Michael
We have been told today that Karen will be moved to another room today. The other room is not suitable for Karen and her carer for many reasons. Karen is extremely distressed. She wants to speak to Jayne Black CEO of East Sussex NHS Trust with an advocacy worker. Karen & Michael
1/2 Thank you to everyone for your kind messages. Your support means a lot to us. Heather had the heart attack on Wed 7 May. It was planned Heather maybe discharged on Sat 10 but things have not gone as well as hoped so she is still in Eastbourne hospital.
Karen’s mum Heather had a heart attack on Wednesday 7 May & is in hospital. We have posted an update on our petition about this. To read it scroll down our petition page to ‘UPDATES’. chng.it/CGMQTDVvRb We are all now even more worried & stressed. Karen, Heather & Michael
We are looking for peoples’ experiences of St Marks IRU of people who have been referred for assessment & possible setting up HPN (home IV feeding). We are interested in any aspects of the experiences. Happy to DM. Please share this post Thanks Karen, Heather & Michael
Thank you to everyone who has signed our petition & shared & thank you to everyone who has chipped in to promote our petition. It is very generous of you. Thank you for all your support. It is all much appreciated by us. Please keep sharing! Best wishes - Karen, Heather & Michael
We posted an update on our petition on 20 Apr ‘Jayne Black new CEO of ESHT; & 3 Tertiary centres say NO to remote setting up of home TPN (IV feeding) for Karen’. To read it scroll down our petition page to ‘UPDATES’. chng.it/CGMQTDVvRb Please share. Karen, Heather & Michael
2/2 We posted an update on our petition on 30 Mar ‘UCLH ignoring risks for Karen’s ME & East Sussex NHS Trust causing her more stress & pressure’. To read it scroll down our petition page to ‘UPDATES’. chng.it/CGMQTDVvRb Please keep sharing. Thanks Karen, Heather & Michael
1/2 Thank you all for your support since we posted about UCLHs decision not to give Karen remote setting up of home PN (IV feeding). Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. chng.it/CGMQTDVvRb Karen, Heather & Michael
Video of Karen Gordon filmed on 8 Mar 2025 at Conquest Hospital Hastings UK. Please share with as many people as you can. Karen has very severe ME & has been in hospital for over a year. Please sign our petition to try to save Karen chng.it/CGMQTDVvRb Karen Heather Michael
We posted an update on our petition on 3 March ‘More stress for Karen from East Sussex Healthcare NHS Trust’. To read it scroll down our petition page to ‘UPDATES’. chng.it/CGMQTDVvRb Please keep sharing our petition. Thanks for your support. Karen, Heather & Michael
On 2 Feb we updated our petition page as our original piece that we wrote before we launched the petition in September 2023 was out of date. To read the updated version go to our petition page: chng.it/CGMQTDVvRb Thank you for all your support. Karen, Heather & Michael
We posted an update on our petition on 23 Jan ‘Steve Aumayer new acting CEO of East Sussex NHS Trust, UCLH referral & Karen’s hospital stay update’. To read it scroll down our petition page to ‘UPDATES’. chng.it/CGMQTDVvRb Thanks for your support. Karen, Heather & Michael
Thank you all for all your help and support in 2024. It is all much appreciated by us. We have posted an update on our petition. Please scroll down our petition page to ‘UPDATES’ to read it. chng.it/CGMQTDVvRb Best wishes to you all for 2025. Karen Heather & Michael
Karen has been in hospital for 1 year on 19 December. It has been & continues to be very difficult and we still fear for Karen’s future. We’ve posted an update on our petition. Scroll down our petition page to ‘UPDATES’ to read it. chng.it/CGMQTDVvRb Karen Heather Michael