Marie Follayttar
@MarieFollayttar
@mariefollayttar.bsk @marie_follayttar on instagram
In all fairness, an infrared sauna is absolutely helping many of us with our chronic diseases after Covid. I use an infrared mat. And they’re kicking us off healthcare and destroying our hospital system.
Republicans are kicking 17 million people off their health insurance. RFK Jr. has fired scientists who keep us safe. But don't worry— RFK and his lackeys are helping billionaires get a tax break on their $9000 saunas.
Been in my bed for 5 hours and am only now starting to warm up. I don’t want to drink bcs I’ll have to use the bathroom. How fscked up is it to be a prisoner in this room. He goes away tomorrow, hopefully early. Who do I call? What do I do? I just don’t know #ME #PEM_PENE
You clearly don’t have ME/CFS
I like how deodorant brands say “72-hour odor protection!” like we’re going to not shower for three days to test that claim.
Please, I’m begging you all, stop using flashing graphic esp in your mutual aid posts #Disability#Crowdfund
"They are considering trying to evict Karen from hospital. This would be without TPN and IV fluid which would mean Karen would die of dehydration and malnutrition. Karen does not want to die and Heather and Michael do not want to lose their beautiful and precious daughter."
Link to the update here: #SaveKarenGordon change.org/p/save-karen-g…
What a blessing!! I’m - finally - drinking enough on my own. No more 3 ivs a week. I go in when I need them. Oncology tomorrow & iv fluid.
It’s been 2+ long years I have needed IV fluids at home almost on the daily and fighting with insurance to get it covered. Today’s the day I received my first box of supplies! Don’t stop fighting for yourself. Next up is port placement because I’ve run out of veins to access.
“There are millions of immunocompromised people out there, they can really get sick.” As long as you’re not immunocompromised or these are your kids, who cares right? cbsnews.com/video/cdc-says…
It seems we never even had the chance to pick up the phone for Bridget. I'm so sorry. This world let you down in the most profound way possible. 💙 We will all miss you and we will never forget you. 💙💙💙
We won’t hang up 💙💙💙
This is so devastating — I’m so sorry @Bridget_OShea. The world failed you & you deserved so much better. It’s incredibly hard to lose patients in this community. RIP💔 Please talk about — & take time to learn about #MECFS & #LongCovid. If you’ve ever minimized either, stop now.
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
She passed away three days later. Her own mother didn’t believe her. We don’t have to “prove” we’re sick, we don’t want your suggestions, pity, or judgement. Just LISTEN TO US. BELIEVE US.
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
Rest in peace dear warrior. Bridget died. Many in my community are abandoned & dismissed by the community who should support them. Bridget had me/cfs. dignitymemorial.com/obituaries/chi…
I called my mom. I told her I'm afraid I'm going to die. Her response? She hung up. 😫#MECFS
A new NIH RECOVER study followed hundreds of children under 6 and found that up to 15% met criteria for probable Long COVID—many with symptoms lasting over a year. Distinct symptom patterns were seen by age group. Poor appetite, chronic cough, sleep issues, and fatigue were…
Badassery as only Mainers can do.. this crew of MidCoast Mainers kayaked outside of the island retreat of Chief Justice Roberts today in a flotilla with signs reading, "shame," "protect democracy" and "you made a king." #MEpolitics
Signs line the road in Tenant Harbor. Mainers are protesting the Justice’s support of a far-right agenda & the erosion of democracy. “Now is the time to demand resistance to tyranny from people in positions of power, as we move closer to a dictatorship." - Susan Macneil-Densmore
Mainers kayaked to the island summer home of Chief Justice Roberts this morning to protest the extremist agenda & demand resistance to tyranny. By land and by sea Mainers get it done! #MEpolitics
Bravo!
Mainers kayaked to the island summer home of Chief Justice Roberts this morning to protest the extremist agenda & demand resistance to tyranny. By land and by sea Mainers get it done! #MEpolitics
Thank you Maine kayakers.
Mainers kayaked to the island summer home of Chief Justice Roberts this morning to protest the extremist agenda & demand resistance to tyranny. By land and by sea Mainers get it done! #MEpolitics
This is how its done and we need more of it
Mainers kayaked to the island summer home of Chief Justice Roberts this morning to protest the extremist agenda & demand resistance to tyranny. By land and by sea Mainers get it done! #MEpolitics