Dr Ben Marsh 💙

#MedTwitter LISTEN Its time to finally re think Post viral syndromes #Covid_19 #LongCovid & #MECFS #ME Don’t dismiss or disbelieve symptoms you can’t immediately explain. Think, read, research #pwme #LongCovid must b believed, helped, supported & understood #meawarenesshour

Clear, robust, evidence-based, up to date & devastating in its scientific truth (not based on opinion or n=1 dubious experience) The fact this & other replies are still needed, in 2025, to counter achingly out of date opinion is dazzling Thanks @Huisarts_Vink as ever #MECFS #ME

When you really don’t have any expertise, beyond your own short, limited experience… But think you know more than expert medics, researchers & real sufferers… And keep going on & on about your own opinion to anyone who’ll listen (or pay 🤔), without listening… Maybe JUST STOP!

Annoyingly my ‘disordered health beliefs’ & ‘lack of will to recover’ & ‘secondary gains’ stop me resuming my successful medical career & tbh pretty good life.. & mean a good response to ‘opinion’ piece in @bmj_latest is beyond me atm, but @PutrinoLab puts it pretty well🤷‍♂️ #MECFS

We’re still offering free ME/CFS samples, which cover a range of patient groups for comparative research: ✔️ Mild, Moderate, Severe ME/CFS ✔️ Long COVID ✔️ Multiple Sclerosis ✔️ Healthy Controls Apply for your free samples by 31 July ➡️ bit.ly/MECFS-samples

Every morning Every crash Every small win Every friend let down Every dismissal or disbelief Every medicine or therapy that fails Every false dawn WE GO AGAIN!! Because we have to Together Every single day Sending love & strength today to all #PwME #PwLC #ME #MECFS #LongCovid

ME Medical is our quarterly magazine sharing the latest news, research developments and medical information about ME/CFS for healthcare professionals. If you are a healthcare professional who would like to receive the magazine, or if you would like to nominate your GP to be…

1/Response to Miller et al from 115 international experts: After decades of medical gaslighting, hope for ME/CFS must come from biomedical research, funded treatment trials, and better medical education—not unproven belief reframing. A 🧵 bmj.com/content/389/bm…

#pwME please help me with a brief anon survey. DWP’s response to my FOI request 👇🏽implied that v few #pwME access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe ME. Thank you! forms.gle/tqnzRUAki1nUiN…

Clip about the Lightning Process and #LongCovid on BBC Con or Cure. @oonagh_cousins explains the process of saying stop out loud to stop negative thoughts. Dr Melissa Heightman says it doesn't make "medical sense" also mentions #MECFS NICE Guideline.

“The evidence is now so strong that #MECFS is a serious multisystem neuro-immune disease that it becomes intellectually embarrassing for anyone to continue to consider it to be a psychosomatic disorder.” Exceptional letter by Countess of Mar in 2015, just as relevant today

#LongCovid Segment on BBC 5 Live (9 mins). @oonagh_cousins and @BinitaKane interviewed about #LongCovid 5 years on from the start of the pandemic. youtu.be/9Wh6lIEYZcg?si…

@KarenLHargrave and @GoreLloyd have created a brilliant (and beautifully designed!) MP briefing. It’s perfect for sharing with your MP, making it easy for them to support the cause (they appreciate that!). Link to the briefing in the next tweet. #ThereForME

‘Invisible’ illnesses aren’t actually invisible at all, are they?!?! They aren’t invisible to those close to them, to family, to partners, to friends that can cope & can stay, they are very very f&cking visible!!

For those just learning about the history of the treatment of #MECFS #PwME please watch this excellent summary of how such deliberate neglect & minimising came to be dialogues-mecfs.co.uk/films/the-tang…

We are delighted to share our first CrunchME report, aimed primarily at policymakers 🙌 The Future is a Policy Choice - Addressing Infection Associated Chronic Conditions This report has been led by @mildTin and we're extremely grateful to her work on it. 🧵 1/n

Caption competition for #PwME #PwLC - let’s go!! What interactions cause you to end up like this honey badger? - PIP application? - Trying to explain how yoga isn’t the answer? Let’s hear ‘em!! #ME #MECFS #LongCovid (Photo courtesy of Wildlife Photographer of the year)

Don’t take the ship down for the sake of the captain MEA The ship has done some V V important & significant things, it has some important & influential crew members & helps lots of people in need & helps find a way out. Please don’t sacrifice an impt ship, for a misguided captain

Talk about marking your own homework, then promoting it as new🙄 Original r/v on #CBT in #ME Done by: - someone involved in all 8 papers - 3 profs careers depend on CBT treating ME - 2 reviewers had potential financial conflict of interest! Thx @Huisarts_Vink for great new r/v