CrunchME
@wecrunchme
Data-informed advocacy to accelerate research on ME/CFS, Long COVID, and other infection-associated chronic conditions (IACCs) 馃挋
There is a lot that needs to change in the world of ME, Long COVID & other IACCs. But it is also important to acknowledge progress. And it is clear that, across the board, research activity into these long-neglected diseases is growing 馃搱 A visual 馃У #MECFS #LongCovid
It is my birthday this week 馃コ馃巿 And I'm a running my bday fundraiser for @wecrunchme! If you appreciate our work *and* have the means, please consider chipping in a digital 馃嵑 If unable, retweets are v gratefully received too! TYSM, link below #MECFS #LongCovid
In case you鈥檙e feeling generous and want to donate to a worthy cause, Ror鈥檚 birthday fundraiser for @wecrunchme is still active. #ME #LC #ResearchFundingForPAIS
We've also surpassed my birthday fundraiser goal of 拢1,000 for @wecrunchme, so thank you so much for your support and to those who donated or shared! 馃挋 #MECFS #LongCovid
A reminder of what the global research output on #MECFS looks like, when compared to other diseases 馃槼 In the US at least, each of these other diseases now has a lower burden (measured in DALYs) than ME/CFS - and yet ME is barely off the floor. #MECFS #LongCovid
Anyone who鈥檚 spent time in the ME community knows this disease isn鈥檛 just profoundly disabling - it can kill. And the trend is clear: mentions of ME/CFS on death certificates are rising globally 馃搱 This mini-series takes a look at data from 馃嚞馃嚙馃嚭馃嚫馃嚘馃嚭 馃У (1/4)