Joanne Holloway
@CharmingAngelCo
Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
As the parent,guardian,family member or friend of a child or adult with #pans #pandas I would like ......
#PansPandasHour
Check out this cool astrocyte multitasking in the brain! It manages a blood vessel on one side while supporting a neuron on the other. Everything in the brain, from blood vessels to neurons, is interconnected! 🔬 🧠 #microscopy #Neuroscience
#PansPandasHour Awareness is key. A retweet can make all the difference to a child's life. @NickyByrne @RebeccaFMusic @DrJDMcMullen @markrusselluk @Paulmcgrath5 @JohnDCaudwell @HollyHNews @PForde123 @monty_lyman @crisiscafeni @TommyBowe @First5_Ireland @azsweetheart013
#PansPandasHour 🔥 Awareness is growing, yet children are still suffering, families in turmoil over an abrupt change in their child after infection, but there is hope as clinical guidelines are on the horizon. Silence and inaction is no longer an option. 👀 #NoMoreLostChildren
#PansPandasHour
Sorry to hear this 😕. We first heard about Pans Pandas 6 yrs ago when our daughter developed symptoms after EBV & Strep. She was misdiagnosed for 2 yrs & we were told it couldn’t be Pans Pandas because she was too old (she was 15 at the time ). Things have got to change 🙏🏻💚
#PansPandasHour
A recently published review article by dysautonomia expert Svetlana Blitshteyn confirms what many clinicians and patients already know: dysautonomia is a common, disabling, and often overlooked contributor to #chronicillness What is Dysautonomia? #Dysautonomia is a dysfunction…
#PansPandasHour
We’re partnering with Long Covid Families to fight Long COVID with advocacy, education, and research—especially for children. Together, we can create real change. Learn more: braininflammation.org/long-covid-fam… #LongCovid #ResearchMatters #BrainHealth
#PansPandasHour
Strep? It can lead to a lot of stress 🔵🔵🔵 #PansPandasHour
#PansPandasHour
Dr. Amy Proal last week: “When people get an infection, there’s a huge assumption that it just clears after their symptoms go away… Little amounts of the pathogen [can persist] in parts of your tissue, parts of your nerves—where they can still drive inflammation and directly…
#PansPandasHour
Neuroimmune illnesses, such as PANS/PANDAS, can be triggered by infections. Please visit thealexmanfullfund.org to learn more about the impactful work that The Alex Manfull Fund is doing to identify the biologic mechanisms contributing to this devastating illness. The Manfull's…
#PansPandasHour
Immune cells can 'talk' to neurons and vice versa. Abnormal communication between these cell types is found in: - PANDAS/PANS - Long COVID - Depression - ME/CFS - PTSD - etc. A new study discovered how...🧵
#PansPandasHour
Fantastic to see researchers on #CYP #MentalHealth coming together. #ResearchMatters #PansPandasHour
#PansPandasHour
It still surprises how many parents don’t want to hear how a virus, infection, Lyme, Bartonella can trigger 🧠 inflammation. They assume it will never happen to them. When you or your family have been affected it can be v isolating. I still believe that awareness is crucial.
#PansPandasHour
B12 deficiency affects cognition /balance often the patient comes with complain of difficulty walking and inability to think and coordinate tasks and movements so much a look alike to multiple sclerosis, also delusion prevents self care @Hopesaxons @LadyBraginton
#PansPandasHour
I’ve not seen this face or heard his voice for nearly 5 years. He has PANDAS after a Strep infection. Could you please share for me as it doesn’t have to be this way. Early intervention & treatment reverses this illness in weeks. I love you Son and I’m in awe of your strength ❤️
#PansPandasHour
#MECFS and long covid people with visible tremor might be interested in this thread re possible causes.
#EHCP Highlighting EHCP barriers #PansPandasHour ✍️ panspandasuk.org/post/highlight…
#PansPandasHour
A new study just revealed how psychologically damaging it is to tell a patient that their symptoms are in their head. Here is what they found...🧵