Awareness
@RuudGrethe
Raising awareness about PANS - PANDAS - AE - BGE
Name one thing you think about when you see the words #PANS #PANDAS 🟠🟢🔴#PansPandasHour
I think about the parents who arrive at our clinic exhausted, scared, and doubting their own instincts. They have been told it is just autism or just anxiety, or that they need to “parent” better. That nothing can be done. To wait. Or medicate. But I have seen too much to…
#PansPandasHour vibes. ⚡ #ChildHealth #ChildRights
I think about the parents who arrive at our clinic exhausted, scared, and doubting their own instincts. They have been told it is just autism or just anxiety, or that they need to “parent” better. That nothing can be done. To wait. Or medicate. But I have seen too much to…
OCD. Panic. Suicidal thoughts. You’re told it’s psychiatric. But the body says otherwise. In a standout case series, 8 patients with treatment-resistant symptoms were diagnosed with MCAS - mast cell activation syndrome. They weren’t “mentally unwell.” They were inflamed.…
Inflammation Triggers Repetitive Behaviors in ASD and OCD A new study shows that chronic brain inflammation can trigger repetitive behaviors by overactivating NMDA glutamate receptors. In mice with a mutated NLRP3 gene, inflammation caused microglia to release the cytokine…
75% of anti-NMDA receptor encephalitis cases first present to psychiatrists—not neurologists. Could a manic or psychotic episode be an immune-mediated brain attack? Here’s what psychiatrists need to know about identifying and managing neuroinflammation. 🧵👇
One of my daughter’s was misdx 7 yrs ago after #Ebv & #Strep . We consulted a private immunologist & she was dx with #Pans #Pandas #MCAS. My other daughter was misdx with #FND last year she has improved after B12 injections #ListentothePatient #ListentoParents
To all medics out there Can we normalise believing parents The ones who know their child The ones who’ve watched the light go out The ones who said “something changed overnight” and were told there’s nothing you can do The evidence is not missing You just keep dismissing it…
Viral infections can play a role in many neuropsychiatric diseases. This new study shows patients with #schizophrenia or #bipolar disorder were up to 7 times more likely to have hepatitis C virus in the choroid plexus of the brain than healthy controls. nature.com/articles/s4139….
Hepatitis C Found in Brain Lining Linked to Schizophrenia, Bipolar Disorder A new study reveals hepatitis C virus (HCV) in the brain lining of people with schizophrenia and bipolar disorder, suggesting infection may play a role in these psychiatric conditions. Researchers…
#PansPandasHour ❤️
Hearing other families share their PANS PANDAS stories has helped me feel less alone. These stories help others understand, care more, and speak up for the kids & families they know. Thank you Lyndsay for sharing. @"Our son's brain is on fire"linkedin.com/pulse/our-sons… on @LinkedIn
It's just horrific the medical system! It's even worse for the kids with a diagnosis of #Autism. My son, now 20 years old, has just tested positive on the FRA test for blocking antibodies. This stops folate from entering the brain. Has he had this all his life? 🥲💔 just so wrong
We were given CBT and a councillor when in fact it was B12 deficiency.
My daughter struggled to walk, after EBV, Covid & Strep. She was dx with FND when in fact she had B12 deficiency. The haematologist said he is seeing more cases of B12 deficiency since 2020 😕 It was a homocysteine & MMA test that indicated B12 def. the NHS didn’t check this 😕
#PansPandasHour
Check out this cool astrocyte multitasking in the brain! It manages a blood vessel on one side while supporting a neuron on the other. Everything in the brain, from blood vessels to neurons, is interconnected! 🔬 🧠 #microscopy #Neuroscience
Check out this cool astrocyte multitasking in the brain! It manages a blood vessel on one side while supporting a neuron on the other. Everything in the brain, from blood vessels to neurons, is interconnected! 🔬 🧠 #microscopy #Neuroscience
Clinical guidelines are coming. Awareness of #PansPandasHour is rising. Will @UHMBT be ready to respond? Families need recognition, pathways, + support @Andrew4Pendle @DrGarethEThomas @ChrisOliver @aaroncummins @louise_fleming @paukjebb1 @sustie @faerycaramel @TabethaDarmon
PANS and PANDAS are neuropsychiatric conditions with sudden emotional and behavioural symptoms. Learn more about PANS and PANDAS, and access support resources, at panspandasuk.org
And I wonder what % of these children on waitlists actually have a medical root cause to their symptoms and are on an incorrect pathway? #PansPandasHour #camhs
“Children in Dublin waiting up to nine years for psychology services” Primary care (for early intervention) has been in crisis for many years, the crisis only deepens further. This will take years to rectify & directly negatively impacts on CAMHs irishtimes.com/ireland/2025/0…
The long-term effects of a mild traumatic brain injury (mTBI) include: - cognitive impairments - persistent headaches - sleep disorders - light sensitivity - mood swings - dizziness - anxiety And, according to this meta-analysis (see infographic), ...depression.🧵
🎉 A HUGE thank you to The James Tudor Foundation for continuing to back the work of @PANSPANDASUK ! The free accredited #cpd available for #EduTwitter is just one example of the on the ground work this amazing charity engage with #PansPandasHour @TheKingsFund @NuffieldTrust
A HUGE thank you to The James Tudor Foundation for their generous funding, enabling us to provide information and raise awareness of PANS and PANDAS amongst healthcare and education professionals❤️ panspandasuk.org/post/thank-you…
About time!! #PansPandasHour
🎉 Exciting news! Some #PansPandasHour research is officially underway ! 🧠👩🔬 Please helps us spread this progress far and wide. @UniofHerts @lynne_drummond @nikhilvasdevuro @midwifeteacher @BottomsLindsay @SamiaLtf @ProfKevinFenton @jsbamrah @alisonacton @anne_delaney
#PansPandasHour 🔥 Awareness is growing, yet children are still suffering, families in turmoil over an abrupt change in their child after infection, but there is hope as clinical guidelines are on the horizon. Silence and inaction is no longer an option. 👀 #NoMoreLostChildren
#RestrictedEating #Arfid #ResearchMatters @beatED @BeatED_Wales @BeatED_Scotland @bodywhys @CAMHSNetwork @cypsp @PCamhs panspandasuk.org/post/get-invol…