Carolina Iten-SpinalCSFLeak Awareness Switzerland

Very honored to have been part of the enriching & inspiring SIH Conference 2025. Heartfelt thanks to physicians and patient foundations for their tireless dedication. Grateful to continue standing with this meaningful cause, healed. Congrats on the launch of the ISSCL Society!👏🏻

We hope this thread was useful for those who were not able to attend. To conclude, we're sharing a photo with our Board members and those from @SpinalCSFCanada, & @csfleakuk alongside other conference attendees. We learned a lot this weekend. Congrats to all involved!

🚨 BREAKTHROUGH IN SPINAL CSF LEAK TREATMENT! 🚨 A new study characterizes the intracranial shifts in volume in patients with spontaneous intracranial hypovolemia (SIH) after treatment. 🧠💉 Key Findings: ✅ Early increase in ventricular CSF volume ✅ Significant decrease in…

🚨 We're excited to announce our sixth speaker, Dr. Katharina Wolf, clinical scientist from Germany. Join to learn about symptom management in SIH and prognosis for patients with CSF leaks. Register 👉🏻 csfleak.uk/event/webinar-… #CSFLeakAssociation #CSFleak

On #TagDerKranken2025 I’m proud to support the Swiss campaign motto #helpforselfhelp sharing my story. From 2018 to 2021, I battled chronic post-dural puncture headache #cPDPH. Full portrait here (German): tagderkranken.ch/portr%C3%A4ts-… Statement:spo.ch/aktuelles/geme… 💜

New #CSFLeak paper: Patterns of Epidural Patch Distribution: The Influence of Spinal Level, Injection Technique, and Patch Volume/Composition on Craniocaudal and Ventral Epidural Dispersion @DanielM737 et al. @TheAJNR ajnr.org/content/early/…

The Spinal CSF Leak Foundation is proud to support this year's 2-day Intracranial Hypotension Conference in Amsterdam, ⁩hosted by ⁦@CedarsSinai⁩ ⁦@DukeU⁩ ⁦@FreiburgUni⁩ & ⁦@UvA_Amsterdam⁩. ⁦ Virtual & in-person attendance options + the schedule: cedars.cloud-cme.com/course/courseo…

📄 New paper on venous embo of CVFs in 🇫🇷: Brain MRI changes revealed quickly in 50%, 82% eventual cure rate. RIH 33%, usually resolved by 1 wk. pubmed.ncbi.nlm.nih.gov/39947894/

CT-Guided Epidural Contrast Injection for the Identification of Dural Defects, #pPDPH #chronicPDPH pubmed.ncbi.nlm.nih.gov/39134368/

Bud-on-brunch-sign! A MRI finding in lateral #SIH leaks #CSFleaks See images in this recent article #radiology #Neuroscience Congrats to @Niklas_Luetzen!

Preparing for the 2025 Intracranial Hypotension Conference in Amsterdam involves polishing up the churches and palaces in town. Register to attend at bit.ly/3Z86Sin and also enjoy the Amsterdam 750th anniversary celebrations ⁦@spinalCSFleak⁩ ⁦@Iamsterdam⁩

New Neurosurgical Focus issue, open access, all free, depicting methods to manage CSF leaks in neurosurgery! @thejns.org

This bleb (pseudomeningocele) at L2-3 really looked like from an LP but patient and his mom were certain that patient had never had an LP and then produced evidence of a possible alternate explanation ⁦@spinalCSFleak⁩ ⁦@acupuncture2day⁩ ⁦@AmerAcadPainMed⁩

Brain sagging can cause symptoms of behavioral variant frontotemporal dementia. A spinal CSF leak is found in <50%. Azygos vein stenosis is another possible underlying cause ⁦@SchmahmannLab⁩ ⁦@spinalCSFleak⁩ ⁦@ISTAART⁩ ⁦@AFTDHope⁩ ajnr.org/content/early/…

Videos for all 40+ presentations from our 2024 Bridging the Gap conference are now available! You can find the replays on our Bridging the Gap 2024 landing page. We've also included transcripts for each talk. spinalcsfleak.org/conferences/br… Thank you to all who joined us.

This review of #SIH (spontaneous intracranial hypotension) by @WouterSchievink and myself is suitable for newly diagnosed patients and clinicians unfamiliar with it. rarediseases.org/rare-diseases/…

The 2025 Intracranial Hypotension Conference will be held in the Queen Máxima and Marble halls at the Royal Tropical Institute (kit.nl). All profits go towards their projects focusing on global health. bit.ly/3Z86Sin to register. ⁦@spinalCSFleak⁩