WouterSchievink

An INCREDIBLE #spinalcsfleak conference in Amsterdam! So much knowledge sharing, fresh ideas, hard hitting talks, controversies! introduction of @isscl & of course catching up with colleagues & dear friends. Thank you for a fantastic weekend! @WouterSchievink @PeterGKranz

Grateful for a ⁦@CMECedarsSinai⁩ well-run 2025 Amsterdam CSF leak meeting. An impactful Royal patient testimony and call to action, thought provoking scientific presentations and posters, introducing the ⁦@issclsociety⁩, and ⁦camaraderie ⁦@spinalCSFleak⁩

Congratulations to ⁦our former ⁦@CedarsSinai⁩ resident #DrAngeliqueTay’s 6th CSF leak paper! A systematic review of CSF-venous fistulas in patients with a good story for SIH but normal brain & spine imaging. Yield is not zero! ⁦@spinalCSFleak⁩ pubmed.ncbi.nlm.nih.gov/40533349/

An unforgettable evening with patients caregivers and physicians passionate about solutions for superficial siderosis. Humbled to meet the giants of SS care #ProfessorDavidWerring and #DrMichaelLevy ⁦@Harvard⁩ Loeb House ⁦@LivingwithSS⁩ ⁦@spinalCSFleak⁩

Visit beautiful Amsterdam, the Netherlands 🇳🇱, in 4 weeks to participate in the 2-day Intracranial Hypotension conference bit.ly/3Z86Sin hosted by ⁦@CedarsSinai⁩ @DukeU ⁦@FreiburgUni⁩ ⁦@UvA_Amsterdam⁩ sponsored by ⁦@spinalCSFleak⁩

Spontaneous intracranial hypotension is caused by spinal CSF loss in 99.9% of patients. In this girl the cause was not only at the level of the skull base but CSF was exposed to the milieu extérieur resulting in 2 bouts of meningitis ⁦@spinalCSFleak⁩ jamanetwork.com/journals/jaman…

A new study on the crucial role of Ferumoxytol-enhanced MRV in embolization of CSF Venous Fistulas: Spinal venous anatomy showed substantial variability MRV guides tailored embolization and reveals unexpected findings like azygos stenosis ajnr.org/content/early/…

We see spontaneous fistulas daily but traumatic ones are distinctly less common. This young man developed orthostatic headaches 2 years after a brachial plexus avulsion. Surgery with ⁦@DreBoyke⁩ was able to address both a lateral leak and a fistula ⁦@spinalCSFleak⁩

Hurt his back while hunting elk. Now an inoperable pseudomeningocele after 1 discectomy and 5 CSF leak repair attempts. What is risk of superficial siderosis? Maybe ⁦@LivingwithSS⁩ symposium in Boston or bit.ly/3Z86Sin in Amsterdam will tell ⁦@spinalCSFleak⁩

An amazing presentation by ⁦@HopkinsMedicine⁩ MD/PhD student Cassie Parks at the #AANAM today on our research on fibrillin-2 (FBN2) mutations in patients with spontaneous spinal CSF leaks. This groundbreaking research was performed in Hal Dietz lab ⁦@spinalCSFleak⁩

Getting ready for an afternoon session ⁦⁦@AANmember⁩ in beautiful San Diego on low and high CSF pressure disorders with fellow CSF aficionados ⁦@Ferdinandhui⁩ #DrKKnievel #DrCSchusse. ⁦@spinalCSFleak⁩

Submit your abstract for the 2-day Amsterdam Intracranial Hypotension conference. Be part of the discussion on CSF leak care. Submit at bit.ly/3Z86Sin Oral presentation for the two best abstracts and $2000 for the #1 abstract (educational grant) ⁦@spinalCSFleak⁩

International collaboration in CSF leak care is essential. We have been fortunate to host CSF leak specialist Dr M Slot from ⁦@amsterdamumc⁩. Dr Slot is the youngest and first woman chair in neurosurgery in the Netherlands ⁦@spinalCSFleak⁩ ⁦@AmsNeuroscience⁩

It took this metal hook 23 years to make its way through the dura resulting in a CSF leak with intractable orthostatic headaches and brain sagging @isscl ⁦@spinalCSFleak⁩ ⁦@SRS_org⁩

The Spinal CSF Leak Foundation is proud to support this year's 2-day Intracranial Hypotension Conference in Amsterdam, ⁩hosted by ⁦@CedarsSinai⁩ ⁦@DukeU⁩ ⁦@FreiburgUni⁩ & ⁦@UvA_Amsterdam⁩. ⁦ Virtual & in-person attendance options + the schedule: cedars.cloud-cme.com/course/courseo…

Monet m

Great #CSFLeak / #SIH session at #asnr2025 with my friends and role models @PeterGKranz and @WouterSchievink @TheASNR

The Inaugural Superficial Siderosis Symposium is coming this June. Join researchers, clinicians, and patients as we unite for the first time to advance SS care and research. Remote viewing is available: DM your email for access.#symposium #SuperficialSiderosis #RareDisease

Superficial Siderosis Symposium June 11-13 2025 ssra.livingwithss.com/blog/superfici… #teamsuperficialsiderosis

Incredible #ASSR25 panel with the world’s experts on CSF leak! @The_ASSR