Complex Disorders Alliance
@CODA_research
The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
It is my birthday this week 🥳🎈 And I'm a running my bday fundraiser for @wecrunchme! If you appreciate our work *and* have the means, please consider chipping in a digital 🍺 If unable, retweets are v gratefully received too! TYSM, link below #MECFS #LongCovid
Patients aren’t living with just one condition—they’re living with a network of immune, neurological, structural, and autonomic dysfunction. Complex, overlapping disorders demand a research engine built for their scale, complexity, and urgency. That’s what CODA is building.
We're proud to be researching across diagnoses and across systems - bringing together the best in science to research the whole patient. #LongCovid #MECFS #ChronicLyme #MCAS #POTS #Dystautonomia #EDS #HSD #Migraine #CRPS #Fibromyalgia #IBS #Endometriosis #Sjogrens #JoinUs
CODA is a full-scale research engine built to unite top-tier science across conditions, focusing on the interconnected biology that defines complex, overlapping disorders. Our approach is fast, coordinated, and data-driven—because that’s what patients need.
CODA is a full-scale research engine built to unite top-tier science across conditions, focusing on the interconnected biology that defines complex, overlapping disorders. Our approach is fast, coordinated, and data-driven—because that’s what patients need.
Neuroinflammation doesn’t stay in one lane. This new Science review shows how immune activation drives damage in MS, stroke, Alzheimer’s, Parkinson’s—and echoes what we see in #LongCOVID #MECFS #MCAS #POTS Overlapping diseases. Shared drivers. 🧠 science.org/doi/10.1126/sc…
We are very proud of our founder @fidjissimo for her beautiful commencement speech and helping to usher in the next generation of transformative and creative leaders. #leadership
I delivered the commencement speech @HECParis and gave students some guidance on how to embrace this moment of transformation as the greatest accelerant to human potential, and usher in their own golden age of creation. youtu.be/CbiWd9xZoO4?si…
In the U.S. alone: 🔹Over 39 million people experience migraines. 🔹Chronic daily headache affects 3–5% of adults. 🔹Many of these individuals also have overlapping conditions like CCI, POTS, EDS, or ME/CFS. and research is years behind. The CCI Study is designed to uncover how…
📢#MECFS research of potential treatment (Hydrogen Water): Volunteers needed. New study of OTC supplement for chronic fatigue symptoms. Home-based. Participants paid up to $100. For more information, study coordinator: [email protected] #MEAwarenessHour
Tomorrow @ 3 pm PT/6 pm ET! Register for “ADDRESS-LC Trial: Studying the Impact of #Bezisterim on #BrainFog & #Fatigue in People with #LongCovid.” We'll discuss how to join & implications for #MECFS. @biovie @MichaelPelusoMD #clinicaltrials ow.ly/LuQ450WiKtY
Must-read on scientific & patient-centered trailblazer @ImmunoFever @MIT. MAESTRO study is a model for what research should be: data-driven, deeply collaborative, & grounded in the lived experiences of patients. #ChronicLyme #LongCovid #MECFS #IACCS wsj.com/health/chronic…
Orthostatic intolerance isn’t just heart rate or blood pressure. It’s about cerebral blood flow. Up to 58% of people w/ ME/CFS or long COVID may be misdiagnosed bc CBF isn’t measured. We're launching a #CCI study to learn more. ahajournals.org/doi/full/10.11…
Together, we can drive research to deliver understanding and answers for chronic, complex disorders. To learn more or donate visit complexdisorders.org #socialmediagivingday
Only ~50 drugs are FDA-approved per year. 1% of the medical workforce is dermatology. 6% of drugs approved are in dermatology. Half of these in the last 5 years were Rx for itch. "The translational revolution of itch" was not hyperbole in 2022 at all. cell.com/neuron/fulltex…
Neuroscience and immunology are deeply connected. Disruptions in brain-immune signaling can trigger pain, fatigue, cognitive issues, and autonomic dysfunction, hallmarks of ME/CFS, Long COVID, MCAS, and related conditions. At CODA, we support research at this critical…
As a patient-led organization we seek to speed innovative research and breakthroughs for our patients. We're thrilled to sponsor this ADCNI-Cell Symposia: a forum pushing the boundaries of neuroimmune science! #LONGCOVID #MECFS #MCAS #POTS #MIGRAINE #EDS #CHRONICPAIN…
Early registration ended last week and it is looking like our joint ADCNI-Cell Symposia is on track to be a sold out conference! Thanks to @CODA_research for being a sponsor! It is very meaningful to us that patient organizations see value in neuroimmunology. @CellPressNews…
Last fall, Grace couldn’t get out of bed. This spring, she stood beside her sister at her engagement party. It felt like magic. But patients need more than magic. They need answers. That’s why we’re building CODA. Visit complexdisorders.org to be part of the solution today.
Read the latest from CEO @amyrochlin. This fight can’t wait. Patients deserve answers NOW—not someday. CODA's a research engine tackling the toughest questions in #MECS #LongCOVID #EDS #POTS & more. Join us. Fuel the science. Move progress forward. complexdisorders.org/ourceosblog/lu…
Immune dysfunction is a common thread in many complex conditions—yet its role remains poorly understood. At Complex Disorders Alliance, we’re supporting research that explores how immune pathways contribute to chronic pain, fatigue, and multisystem dysfunction. 💡 By uncovering…
Myasthenia Gravis (MG) is a rare, chronic autoimmune, neuromuscular condition that causes debilitating muscle weakness and impacts daily life in unpredictable ways. For too many, diagnosis is delayed, treatments are limited, and the path forward is uncertain. At Complex…
At Complex Disorders Alliance (CODA), we support structural mechanics research to uncover how physical forces in the body impact long-term health. This includes conditions like connective tissue disorders, craniocervical instability (CCI), and atlantoaxial instability (AAI).…
