Spinal CSF Leak Canada Charitable Organization

@SpinalCSFCanada

🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.

Canada

Joined December 2018

379Following

936Followers

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 9

Thank you to everyone who participated in, attended, and contributed to the success of the 2nd Canadian SIH Conference! This event would not have been possible without the dedication of our incredible speakers, organizing committee, board members, volunteers & our sponsors.

SpinalCSFCanada's tweet image. Thank you to everyone who participated in, attended, and contributed to the success of the 2nd Canadian SIH Conference!
This event would not have been possible without the dedication of our incredible speakers, organizing committee, board members, volunteers &amp; our sponsors.

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jul 22

🧠 World Brain Day 🧠 On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH

SpinalCSFCanada's tweet image. 🧠 World Brain Day 🧠
On #WorldBrainDay and every day, we advocate for greater awareness and more research to improve diagnostic tools, treatment options, and long-term outcomes for patients affected by #spinalCSFleak/#SIH

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jul 4

🚨 Don't miss this! 🚨 We’re diving into everything post-dural puncture headache next Tuesday, July 8 at 4 PM ET with @ASRA_Society — diagnosis, myths, prevention, and management. 🆓Free & open to all — RSVP/Register now! 👇 ow.ly/WOEK50WjkrJ

AASRA Pain Medicine@ASRA_Society · Jul 1

Our next @ASRA_Society educational webinar is next Tuesday, July 8 at 4 pm ET! Join us as we discuss post-dural puncture #headache (PDPH): its criteria, common myths, treatment options, how to minimize risk, etc. Free to all to join live, just RSVP: ow.ly/WOEK50WjkrJ

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WCVB-TV Boston@WCVB · Jul 1

Mystery headaches left a New England mom in a coma until rare brain leak diagnosis saved her life | Click on the image to read the full story wcvb.com/article/sponta…

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jul 1

Happy Canada Day! Bonne fête du Canada! 🇨🇦 Today we celebrate the diverse people, rich cultures, and beautiful landscapes that make Canada truly special. From all of us at Spinal CSF Leak Canada, we wish you a safe and joyful Canada Day! #CanadaDay2025

SpinalCSFCanada's tweet image. Happy Canada Day! Bonne fête du Canada! 🇨🇦
Today we celebrate the diverse people, rich cultures, and beautiful landscapes that make Canada truly special.
From all of us at Spinal CSF Leak Canada, we wish you a safe and joyful Canada Day!
#CanadaDay2025

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 29

📢 Exciting news from the #2025IntracranialHypotension conference in Amsterdam! @PeterGKranz presented the launch of @issclsociety , the first international society for physicians for #SpinalCSFLeak A major step forward for global collaboration and research in this field!💧🌍

SpinalCSFCanada's tweet image. 📢 Exciting news from the #2025IntracranialHypotension conference in Amsterdam!
@PeterGKranz presented the launch of @issclsociety , the first international society for physicians for #SpinalCSFLeak A major step forward for global collaboration and research in this field!💧🌍

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Peter Kranz@PeterGKranz · Jun 29

Even more controversy!! @DrIanCarroll discusses treatment without imaging confirmation.

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Peter Kranz@PeterGKranz · Jun 29

More controversy! @ThienHuynh15 advocates for transvenous embolization in CVFs at Amsterdam #SIH conference.

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Peter Kranz@PeterGKranz · Jun 29

Controversy! @TimAmrheinMD of @DukeNeurorad breaks down the evidence for targeted EBP at Amsterdam #SIH conference.

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 28

We’re excited to see @AnahitaMalvea also presenting her abstract poster on optimizing the density of intracranial contrast at DSM, based on research conducted with @FarbRichard. #2025IntracranialHypotension #Amsterdam #SIH @CedarsSinai @CanadianNeuroIR @UHN #MedED

SpinalCSFCanada's tweet image. We’re excited to see @AnahitaMalvea also presenting her abstract poster on optimizing the density of intracranial contrast at DSM, based on research conducted with @FarbRichard. #2025IntracranialHypotension
#Amsterdam #SIH @CedarsSinai @CanadianNeuroIR
@UHN
#MedED

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 28

Dr. F. Amoozegar is showcasing two of her poster presentations, research funded by @SpinalCSFCanada at the 2025 Intracranial Hypotension Conference in Amsterdam. If you're attending the conference, be sure to stop by and take a look! #CedarsSinai #CME

SpinalCSFCanada's tweet image. Dr. F. Amoozegar is showcasing two of her poster presentations, research funded by @SpinalCSFCanada at the 2025 Intracranial Hypotension Conference in Amsterdam.
If you're attending the conference, be sure to stop by and take a look!
#CedarsSinai #CME

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Mark Mamlouk@MarkMamloukMD · Jun 28

On the first day of the international SIH leak conference in Amsterdam, @NeuroradLal highlights the role of targeted patching for the various types of CSF leaks.

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Peter Kranz@PeterGKranz · Jun 28

@WouterSchievink , a figurative giant in the field of #SIH, presents on surgical treatment of spinal CSF leak. #SIH #GPB at Amsterdam CSF leak conference

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Andrew L Callen MD@AndrewCallenMD · Jun 20

New multi- center study on outcomes of patching Type 2 #CSFLeaks in @TheAJNR out today! Check it out: ajnr.org/content/early/…

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Yasmine Hoydonckx@YHoydonckx · Jun 16

Proud to have co-chaired our 2nd Canadian SIH Conference. Grateful to our amazing US & Canadian faculty—together we push for more awareness & improved care for SIH across Canada.⁦@SpinalCSFCanada⁩ ⁦@DrIanCarroll⁩⁩ ⁦⁦@WouterSchievink⁩⁦@AndrewCallenMD⁩

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 9

Last day of our fundraising campaign, “Stand Up for Spinal CSF Leak Patients” There’s still time to show your support. Visit the campaign page and click “Donate Now,” or contribute to one of the individual fundraisers or teams. 🔗 spinalcsfleakcanada.ca/stand-up-for-s…

SpinalCSFCanada's tweet image. Last day of our fundraising campaign, “Stand Up for Spinal CSF Leak Patients”
There’s still time to show your support. Visit the campaign page and click “Donate Now,” or contribute to one of the individual fundraisers or teams.
🔗 spinalcsfleakcanada.ca/stand-up-for-s…

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 8

As we wrap up our #SpinalCSFLeakAwarenessWeek2025, we want to thank everyone who helped us raise awareness throughout the week. A big thank you as well to 🇬🇧@csfleakuk & 🇺🇸@spinalCSFleak for their collaboration.

SpinalCSFCanada's tweet image. As we wrap up our #SpinalCSFLeakAwarenessWeek2025, we want to thank everyone who helped us raise awareness throughout the week. A big thank you as well to 🇬🇧@csfleakuk &amp; 🇺🇸@spinalCSFleak for their collaboration.

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 8

#SpinalCSFLeakAwarnessWeek Awareness, research & diagnosis are improving. 🧠 New registries are launching in 🇨🇦🇺🇸🇬🇧 🤝 Patient-led advocacy is rising 🌍 A new international physician society is coming soon With your support, we can reduce suffering & improve access to care. 💜

SpinalCSFCanada's tweet image. #SpinalCSFLeakAwarnessWeek
Awareness, research &amp; diagnosis are improving.
🧠 New registries are launching in 🇨🇦🇺🇸🇬🇧
🤝 Patient-led advocacy is rising
🌍 A new international physician society is coming soon
With your support, we can reduce suffering &amp; improve access to care. 💜

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Spinal CSF Leak Canada Charitable Organization@SpinalCSFCanada · Jun 6

A heartfelt thank you to the patients who courageously shared their journeys. We are deeply grateful for your honesty, vulnerability, and commitment to this cause.💜 #SpinalCSFLeakAwarness ▶️youtu.be/Uy1Wim4h60I

SpinalCSFCanada's tweet image. A heartfelt thank you to the patients who courageously shared their journeys. We are deeply grateful for your honesty, vulnerability, and commitment to this cause.💜
#SpinalCSFLeakAwarness
▶️youtu.be/Uy1Wim4h60I

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