Mel Payne
@melpayne77
Mum to 2👭, 2 🐱🐱 & 1 crazy🐶. Wife to 1 ⛰ obsessed husband. Lifes ambition to meet Barenaked Ladies (done) New ambition - to make the 🌍 aware of PANS PANDAS.
Children with #PansPandas are still waiting & will turn into adults who will get lost in the system of an already overrun underfunded #mentalhealth system. Early treatment is crucial! #PansPandasHour
Glad to see @UHMBT at #rchcp2025 @RCPCHtweets hoping that NW clinicians are in attendance at the @PANSPANDASUK neuro workshop 🤞🏻@aaroncumminsNHS @LSCICB @ChrisOliverNHS @melpayne77
Sad not to be there in person today but good to be able to join virtually, interspersed with trying to get my appraisal in order .... #RCPCH25 #InnovateIntegrateInspire #ChildHealthMattersMoreThanEver #25percentofthepopulation #100percentofthefuture
I wonder how many lives would be saved by treating #PANS & #PANDAS properly? I wonder if my daughter would have a happy life, if she'd be able to go to school? I wonder if she would still be so consumed with #ocd she sometimes cannot move? #PansPandasHour
#PansPandasHour
Often when you have child with #Pans #Pandas you live life in lockdown. Horrific symptoms make leaving house seem impossible 2 child affected. They miss out on so much & lose childhood, family, friends & education. Sad fact is it really doesn't have 2 be this way! #PansPandasHour
Please please know the signs of #PANS #PANDAS. #PansPandasHour
This is a slide from a #PansPandas conference I attended in 2018.... 'Untreated #PANDAS #PANS could potentially lead to suicide'. Please don't let our children & young people become statistics #PansPandasHour #PansPandasUK
Research, diagnosis and appropriate treatment will save lives! Today's medical students need to be educated on #PANS #PANDAS @aaroncumminsNHS @NHSEngland @Doctors_net_uk @rcpg
Children with #PansPandas are still waiting & will turn into adults who will get lost in the system of an already overrun underfunded #mentalhealth system. Early treatment is crucial! #PansPandasHour
Families affected by #PansPandasHour continue to struggle to access appropriate medical care. Great to see experts @RCPCHtweets setting out need for clear diagnostic guidelines and treatment pathways. #PansPandasHour @ChildrensComm @DrNighatArif @uclh panspandasuk.org/post/perspecti…
Fantastic to see that Health Conditions in School Alliance are working with @PANSPANDASUK and linking #PansPandasHour resources on their new website medicalconditionsatschool.org.uk #Edutwitter @Headteacherchat @SEND_Network @sendagenda @senresourceblog #EdPsych @edpsydan @BrookesCYP
#panspandashour this is always the hardest week of the year for me, my boys Birthday week. This is the 6th consecutive birthday I won’t see him or speak to him. He won’t acknowledge his birthday at all. It’s so unfair on him. I could fill a thousand books with what I want to say…
Fuck you OCD! Just leave her alone! She's exhausted. It's 12.55am and she's in the shower. Not because she wants to be but because you didn't give her any choice #OCD #PANDAS #anxiety #ADHD #Tourettes
It's easy to dismiss what you don’t understand, but calling PANS/PANDAS a fraud ignores a huge amount of research and the reality of what families go through. This isn’t about kids just getting an infection and suddenly having “mental problems.” It’s about an immune response…
My 13 year old daughter,who is already in the depths of hell due to torturous symptoms of PANDAS, has been excluded for years & it has broken her 💔 She is the most loyal friend and has the kindest heart. Thank you Stella for being her voice ❤️
Exclusion: The Quietest, Cruellest Weapon A message from all those who don’t have a voice 🔉 💘You probably do not even realise you have done it. Maybe it was as small as not replying to a message, or as simple as looking past someone when they joined your group. Maybe it was…
Imagine waking up to find your child suddenly gripped by terrifying changes. Or watching it unfold gradually, day by day. OCD. Tics. Aggression. Food refusal. This is the reality for families facing #PANS and #PANDAS. When the immune system is supported and root causes are…
Children with #PansPandasHour become ghosts in their own lives—disappearing from school, friendships, + even their own personalities. It’s time to shine a light on their struggles + demand #guidelinesnow @wesstreeting @PSCommissioner @ChildrensComm @NICEComms @bphillipsonMP
After I went on TV to discuss Pakistani-Muslim grooming gangs, the police showed up at my door to intimidate me into silence. Now, they’re targeting Sammy for exposing how she was failed by Rotherham professionals. This is how they treat survivors. Ignore, intimidate, silence.
I’ve received a phone call from South Yorkshire Police tonight about my reporting on X. They’ve asked me to delete posts and not to report on Rotherham professionals moving forward even though they’re no reporting restrictions on the case. I’d like to add, the information I’ve…
These are the 364 MPs who voted against a national inquiry into child sexual exploitation and Pakistani-Muslim grooming gangs: Shame on them all. Jack Abbott (Labour) Debbie Abrahams (Labour) Shockat Adam (Independent) Zubir Ahmed (Labour) Luke Akehurst (Labour) Sadik Al-Hassan…
I feel like many people still don’t quite understand the level of depravity inflicted on those little girls — or just how young they were. Think of your sister, daughter, or granddaughter as a child. Picture them. Think of how young and vulnerable they were. Lucy Lowe was 14.…
Starmer was complicit in the RAPE OF BRITAIN when he was head of Crown Prosecution for 6 years. Starmer must go and he must face charges for his complicity in the worst mass crime in the history of Britain.
The details emerging about what the rape gangs (why call them 'grooming' gangs? It's like calling those who stab people to death 'knife owners') did to girls in Rotherham are downright horrific. The allegations of possible police corruption in the case are almost beyond belief.
When people went to the police, in some cases the perpetrators mysteriously seemed to know.