Julie Rehmeyer

@julierehmeyer

Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.

Santa Fe, NM

Joined September 2009

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Emily Johnson (is on Mastadon and Bsky)@emily_rj · Jun 27

So half of a bone compressing my jugular is stuck in a nerve bundle and can’t be removed without major permanent nerve damage (half is out) Neurosurgeon: I will have nightmares about this! (jokes and steroids help, my bones ruining my life stays a joke) 🧵gofundme.com/f/help-emily-g…

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Julie Rehmeyer@julierehmeyer · Mar 27

I had the pleasure of helping the president of my alma mater, St. John’s College, write this important piece about the degradation of attention in our age and how education must be structured to help to reclaim it. latimes.com/opinion/story/…

julierehmeyer's tweet card. Attention is a muscle that requires building. This could be seen as the central task of education.

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Julie Rehmeyer@julierehmeyer · Dec 30

I’m proud to be a matching donor for @Open_Notebook, which is an extraordinary organization improving the quality of science journalism by helping journalists improve their craft. Please, let me double your donation! theopennotebook.com/donate

julierehmeyer's tweet card. Please help support The Open Notebook, a 501(c)(3) organization whose mission is to foster a supportive, diverse, and inclusive global community that enables journalists who cover science to learn...

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Putrino Lab@PutrinoLab · Jul 11

I'm glad to see @BuzzFeed running educational content about tick- and vector-borne illness like #lyme, but I must disagree with Dr Shapiro, who is quoted in this article, that an infected tick *has* to be on for 24-36 hrs to transmit Lyme Disease. The 1/ buzzfeed.com/jillianwilson/…

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Julie Rehmeyer@julierehmeyer · Jun 28

This is a can't-miss for anyone interested in ME and Long Covid research.

PPatient-Led Research Collaborative@patientled · Jun 24

We're hosting a Patient-Led Research Fund (PLRF) webinar on July 9, 1–4:30PM ET! Hear results from 10 PLRF-funded biomedical studies (on microclots, T cell exhaustion, trials, & more), all selected by a panel of patient-researchers. Register: us02web.zoom.us/webinar/regist… #LongCOVID

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Julie Rehmeyer@julierehmeyer · May 6

Last year, I spoke at the conference that led to this excellent roadmap for ME/CFS research. #MEAction has been advised to resubmit the proposal now. 10,000 signatures are needed to give it heft.

##MEAction Network@MEActNet · May 5

We are fighting for funding for the ME/CFS Research Roadmap. We have a letter urging Dr. Bhattacharya to allocate $50 million to fund the ME/CFS Research Roadmap. Sign our new letter now: bit.ly/MEcfsRoadmap #PwME #MECFS #NIH

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Julie Rehmeyer@julierehmeyer · Mar 16

Kira Stoops is KILLING it with her advice on how to live a fabulous disabled life. Her latest is on dating while diseased. Check it out! open.substack.com/pub/imperfectw…

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Julie Rehmeyer@julierehmeyer · Mar 2

This is fantastic and important research.

JJeffrey Lubell (EDS, ME/CFS, LongCOVID Research)@JeffLubell_C19 · Mar 2

A new preprint confirms that generalized joint #hypermobility is a risk factor for #LongCOVID, while breaking new ground by examining risks of extreme hypermobility and whether hypermobility risk varies based on severity of initial COVID infection. 1/12 medrxiv.org/content/10.110…

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Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research)@JeffLubell_C19 · Mar 2

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Julie Rehmeyer@julierehmeyer · Dec 15

For those who deal with mold issues: The moldie communities that I know are super toxic places. Is there any way for a person new to the mold world to get decent peer support?

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Renegade Research@RenegadeRes · Dec 3

Exciting news this Giving Tuesday! We’re excited to announce that our nonprofit, Renegade Research, has been awarded a grant from @VitalikButerin’s Kanro Filantropic Fund to kickstart 8 innovative patient-led research projects focused on #MECFS & #LongCOVID. 1/8

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Julie Rehmeyer@julierehmeyer · Dec 4

Unless Congress acts in the next three weeks, Medicare will stop covering telehealth. For people like me, too sick to leave home for months, that would mean losing all access to healthcare. Please sign this petition prodding your representatives to act: actionnetwork.org/letters/preser…

julierehmeyer's tweet card. Preserving Telehealth Many U.S. telehealth benefits are set to expire shortly at the end of this year (December 31, 2024). With this email campaign, you can simply fill out your information and it...

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Julie Rehmeyer@julierehmeyer · Nov 10

Anyone know anything about sulodexide for treating endothelial dysfunction? It’s only available in Italy, where it’s over the counter.

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