ICanCME Research Network
@ICanCMEResearch
The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Case reports of 9 patients with upper cervical instability who had reverse cervical lordosis showed significant improvement in their symptoms & functionality when the lordosis was improved (non surgically)! pmc.ncbi.nlm.nih.gov/articles/PMC10… #mespine #longcovid
🌟A positive step forward! 👉A platform to test efficiently & simultaneously multiple different therapies 🔸Funding is £200K over 18m 🔸Open until 2 December 🔸NIHRIO have already done a rapid horizon scac (report included). 🖇️ tinyurl.com/m2akv6rm.
Congratulations Todd. 👏👏👏
Grateful to be named one of the 317 Catherine Worthingham Fellows of the American Physical Therapy Association. Patients, participants, colleagues, friends, collaborators, and people with whom I disagree have pushed me for years to best help others in need. I owe this to them.
We are thrilled to announce that Dr. Rae Yeung, a world-leading expert in childhood inflammatory diseases @SickKidsNews @uoftmedicine, has been appointed the new Scientific Director of the CIHR Institute of Musculoskeletal Health and Arthritis. canada.ca/en/institutes-…
Cytokines are small molecules produced by a number of cells, including immune cells, in response to external stimuli. Read more about cytokines and OMF's large-scale biomarker study, BioQuest: omf.ngo/cytokines/
🚨 Excited to share our new paper on neuropsychiatric disorders in #MCAS. There are many interesting findings here, but the most striking is: 📢 The most common comorbidity of MCAS was #POTS occurring in 50% of female patients and 16% of male patients. sciencedirect.com/science/articl…
📢Patient Partners! Been asked to write a Letter of Support (LOS) and not entirely sure what that is? We co-created a resource with patient partners to explain about LOSs & offer some things you may think/ask about when approached: pxphub.org/a-resource-for… #PatientEngagement #PPI
This week, the project team reached a significant milestone: we are into the final analysis stage which tests millions of DNA variants for their association to ME/CFS. Completion of the write-up and announcement of the results will follow as soon as possible.
Aujourd’hui est la Journée de sensibilisation à l’#EncéphalomyéliteMyalgique #EMSFC, une maladie chronique invalidante causant fatigue extrême, douleur et symptômes accrus après un effort. @ICanCMEResearch s’emploie à faire avancer la recherche sur l’EM. icancme.ca/fr/?hsid=b97fd…
Today is #MyalgicEncephalomyelitis #MECFSAwarenessDay. ME, a disabling chronic illness, causes extreme fatigue, pain, and worsened symptoms after exertion. @ICanCMEResearch unites patients, researchers, and clinicians to advance ME research. icancme.ca/?hsid=bf5f1fa7…
Patient Partner Perspectives on Barriers and Facilitators to Patient Engagement in Research. February 5, 2025 at 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC zoom.us/webinar/regist… 1/2
How do we make research conferences accessible for patient or family partners with chronic illnesses? Rae shares personal insights and strategies to foster inclusion and trust. 🔗 Read now: pxphub.org/attending-in-p… #PxP #PatientEngagement #Accessibility #ChronicIllness
I'll keep repeating myself... "After 4 years there are no approved treatments" That's because of systemic neglect of #MyalgicEncephalomyelitis for around 50+ years. 69 years if you want to go back to the Royal Free outbreak. #GreatestMEdicalScandal #pwME
Any piece that talks about lack of treatments for LC without any mention of the systemic neglect of ME is an incomplete story.
Only silver lining to the sh*t show that is living as #pwME is that I was prepared when my children developed post acute viral illness; I knew what to listen to, what to ignore & the Dos & Donts to ensure best chance of recovery Knowledge is power. Educate our Drs! #LongCovid
Big news for applicants and reviewers! CIHR, @NSERC_CRSNG, and @SSHRC_CRSH will be transitioning away from the CCV to a new narrative-style CV for funding opportunities. science.gc.ca/site/science/e…