GC

I’m having a hard time explaining this to people. Just because I can do something like the dishes or cook, doesn’t mean it won’t wipe me out. For them it’s nothing, for me it could cost me days. How do you explain that kind of energy disparity to people who don’t get it?

So half of a bone compressing my jugular is stuck in a nerve bundle and can’t be removed without major permanent nerve damage (half is out) Neurosurgeon: I will have nightmares about this! (jokes and steroids help, my bones ruining my life stays a joke) 🧵gofundme.com/f/help-emily-g…

I’m curious, for those who developed a chronic illness later in life. Did you always have trouble sleeping, or did the sleep problems start after you got sick?

Someone died in our community and instead of grief, some of you are picking apart how. Your first instinct was to play coroner, not friend. “ME doesn’t kill.” “It was a heart attack, not ME.” “Probably COVID.” Are you serious? You sound like the people we’ve all spent years…

Do you ever feel like chronic illness has put a wall between you and everyone else? Not because you pushed them away but because they didn’t know how to stay close.

Any gamers? DBD? Fortnite? COD? Add me let’s go

The cost of chronic illness isn’t just physical. It’s losing friends and family. Losing time. Losing dreams. Losing pieces of who you used to be. Losing hobbies. Losing jobs. Losing stability. All while being shamed for not “staying positive.”

Pain with chronic illness isn’t just some occasional discomfort. It’s persistent, complex and often miserable. It’s not just aches, like most healthy people experience, chronic pain can be relentless and systemic. Here’s what the experts have to say about it. 1.Dr. Alan…

I was debating getting a tattoo that represents my chronic illness. I was sharing this idea with someone today to which they responded, why let your illness define you? The thing is, my illness does define me. When something dictates your energy, your pain, your sleep, your…

The stigma around medication needs to stop. People don’t take stimulants, benzos, or pain meds to “get high” They take them to function. To get out of bed. To go to work. To survive. You wouldn’t shame a diabetic for taking insulin. So don’t shame us for our meds.

“It’s only for an hour” To you, maybe To me that hour could hijack my entire day and I’ll be paying for it for the next 48 hours. Chronic illness doesn’t just make things harder, it makes everything cost more.

POTS isn’t “just a fast heart rate.” It’s a disorder of the autonomic nervous system. This is the system that controls everything out body does without us having to think about it. This basically means our “autopilot” system is broken. Breathing. Blood pressure. Sweating.…

Hello friends. Finally have some good news to share for once. Everyone who follows me knows how much I struggle as a mail carrier dealing with POTS and EDS. The extreme weather, the walking, the long hours. Well, I finally got my own route, and guess what. It’s all mounted.…